LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Obsessive Compulsive _ Lyme Treatment Research

 - UBBFriend: Email this page to someone!    
Author Topic: Obsessive Compulsive _ Lyme Treatment Research
tonyp
LymeNet Contributor
Member # 14960

Icon 1 posted      Profile for tonyp     Send New Private Message       Edit/Delete Post   Reply With Quote 
My story like so many others is that I self Diagnosed my lyme disease thru my research of the internet. So now, I have in my mind placed a considerable amount of value associated with having knowledge.

In my case, the medical profession said it was stress and arthitis. If I accepted that dx along with my normal ELisa test, I would have detoriated with chronic lyme symptoms.

My issue now is that I have become obsessive with trying to find the latest and greatest lyme treatments. I am spending approx 2 to 3 hours a day researching lyme treatments. This is after putting in a 9 hour day, so effectively it is most of my " free" time.

Do other's do the same? I know the benefit of getting on with life, so how do I break this compulsive behaviour.

--------------------
Dx 3/2008 Pos. WB and Bart- igenex
Levequin 500 mg March 2008
Amox 6000 mg - May 2008
Doxy 400 mg - June - oct
Biaxin and Flagly 1000 each, oct-dec
Zitro, Malarone and Flagly Jan - feb
Remission for 6 months
Relapse Sept 2009 zithro/flagyl

Posts: 130 | From canada | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
AmyPW8
LymeNet Contributor
Member # 11504

Icon 1 posted      Profile for AmyPW8     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have had this problem a lot. But I am not near as bad as I was before I started treatment.

Mindsoothe at http://www.nativeremedies.com/ocd-alternative-treatment.shtml. I haven't tried it yet but I have had lots of luck with St. John's Wart and activated B vitamins.

Good Luck!

--------------------
Amy

Diagnosed April 29, 2007.

Posts: 136 | From Joplin, MO | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
TerryK
Frequent Contributor (5K+ posts)
Member # 8552

Icon 1 posted      Profile for TerryK     Send New Private Message       Edit/Delete Post   Reply With Quote 
You asked - do others do the same thing?

I can't speak for others but I have spent way beyond 3 hours a day learning about lyme over a number of years.

I personally think this is normal for some people and frankly I don't feel it is a bad thing up to a point.

Knowledge is power and since our quality of life and (not to be too dramatic but) our very life is at stake then we have to know as much as we can so we can make good decisions.

I think most people slow down on the research once they are making progress and are satisfied with their level of knowledge.

I personally don't feel a need to force myself to stop doing what I feel is necessary for my survival. That said, I am learning about other aspects of my health (methylation cycle issues) since that is a big part of why it is taking me so long to see progress.

I still spend a fair amount keeping an eye on what is happening in the lyme world because I am still really sick after 2 years of treatment and all of my siblings are sick as well.

My big fear is that my brain will deteriorate so I am researching and keeping detailed notes now, while my brain is still functioning relatively well.

I won't stop being obsessive until I feel well enough to live a reasonably normal life and I can help my siblings feel better too.

If you want to spend less time learning about lyme, try finding something else that you enjoy doing. Break the pattern. Stay off the computer or start researching something else that you find fascinating.

edited to add:
You may also consider examining the reasons that you feel you are obsessed so that you can work through those feelings and either decide that it's OK that you are obsessed for now or resolve the feelings that are driving your obsession.

Terry

[ 12. August 2008, 07:02 PM: Message edited by: TerryK ]

Posts: 6282 | From Oregon | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
herxuk
LymeNet Contributor
Member # 15873

Icon 1 posted      Profile for herxuk     Send New Private Message       Edit/Delete Post   Reply With Quote 
Progress to this disease has become stagnant, in the medical profession. Until things change, I will continue gaining as much knowledge as possible, I don't think for now I have much choice.

This disease is Globally on the increase, it is not Mass Hysteria, the time will come when it will have to be taken more seriously.

Meanwhile I arm myself with as much knowledge as possible from the wonderful people on this forum, at the moment, it seems to be the only way.

To me, this is not an ignorance is bliss situation.

Posts: 153 | From England | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
Clarissa
Frequent Contributor (1K+ posts)
Member # 4715

Icon 1 posted      Profile for Clarissa     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think it's totally normal and I feel that knowledge is power.

Go easy on yourself.

If this is still happening a year from now, let's talk! [Big Grin]

--------------------
Clarissa

Because I knew you:
I have been changed for good.

 -

Posts: 1625 | From Florida | Registered: Oct 2003  |  IP: Logged | Report this post to a Moderator
tonyp
LymeNet Contributor
Member # 14960

Icon 1 posted      Profile for tonyp     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks, all of you have brought up some good points.

I am making progress, however not ready to throw a parade yet. So I will continue to learn more about how to eradicate this bug.

Thanks to all, we will win. Stay positive everyone.

--------------------
Dx 3/2008 Pos. WB and Bart- igenex
Levequin 500 mg March 2008
Amox 6000 mg - May 2008
Doxy 400 mg - June - oct
Biaxin and Flagly 1000 each, oct-dec
Zitro, Malarone and Flagly Jan - feb
Remission for 6 months
Relapse Sept 2009 zithro/flagyl

Posts: 130 | From canada | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
Alv
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
KNOWLEDGE is the POWER!

You spent 3 hrs a day .How about 20 hrs in 7 days..NO kidding.I was dying and I was determenied to find out that I was not making up my seizueres , fainting , chocking to death , tachiocardia , loos of hearing loss of balance..and I knew I had a monster in my body!

It took me 2 years , analizing my lab works ..collected my entire file for the last 5 years ..jot down everything and checked eveyr symtoms against my blood works that WAS SCREWED up for at least 4 years.

NOUROLYME and on top of that the challenge to learn all in ENGLISH! Juts had moved to USA and GOT sick to death.Can you imagine.

I learned and learn and nothing was a waste.At thye end you are the doctor on your own body .LLMD just fill me in .

So never never consider posession.It will come a time that you will grasp most of the information..and that little new coming out you will grasp easily .YES we all want to know all the treatment and adjust it to the best ways based on our financial abilities and what is doable.
Than it comes a time that you see new people that are very sick and they have a NEUROLYME sufering for years and they just can not finish a sentence like I could not last year THANKS TO THE FULL BLOWN ENCHEPHALITIS.

MY brain could not fit in.IT WAS EXSPLODING !!!!

I ihad no room on my neck or frontal lobe...nowhere...could not see 1 foot away!

THAN you jump to help them out.I think this is not obsesion.People are there out to help you understand than it is your time to gives something back.

It is all the learning process and growing.IF you did not have lyme you would never be able to do that!

people that are healthy will never understand it.

THEY JUST DO NOT CARE.UNTIL IT HITS THEM!!!
NO I do not call obsession.I call it FREAK CONTROL.I am .I want to be in control of my life.I hate the unknown.

So that is what I do .TRY TO DO THE BEST to take control of my life back when lyme stole it from me and it was invisible to me.

NOW I KNOW MY ENEMY .

IP: Logged | Report this post to a Moderator
steven
LymeNet Contributor
Member # 13101

Icon 1 posted      Profile for steven     Send New Private Message       Edit/Delete Post   Reply With Quote 
i know exactly what you mean: how much research is too much? my family sometimes urges me to stay away from the computer and sometimes they might be right.

for me researching now, after 7 years of lyme, is a bit frustrating cos normally i research until i find a solution. but with this disease there is so little information that it always ends up in a one-way-street.

Posts: 226 | From earth | Registered: Sep 2007  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.