posted
Just curious if anyone here is on a maintenance antibiotic after your treatment?
I've heard that once you are treated successfully some Dr.'s like to keep you on low dose antibiotics for life?
My Lyme Nurse is hoping to wean me off them after bartonella treatment ends in December. I've done 2 full years of antibiotics with 11 full months on Rocephin IV.
I'm love to hear from the people who currently have their lyme in check and are on maintenace orals or no antibiotics.
Thanks,
Barb
Posts: 281 | From san francisco | Registered: Jun 2006
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hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
Talk to Lymetoo. I believe she is off antibiotics and keeping her self in remission with rife and Xango. Hiker53
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 9180 | From Illinois | Registered: Aug 2004
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lymebytes
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Member # 11830
posted
I believe most are weaned off abx and if they "relapse" then must remain in treatment.
Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
Some LLMD's recommend the nutramedix herbs like Cumanda from the Cowden Protocol. I'm not well-versed in the herbs but many people are on the board.
My LLMD likes Mesosilver (colloidal silver) but beware: It was supposed to be my maintenance protocol and, because it goes deeper than abx, it found "something" and I'm herxing a bit again.
At least I know it's killing something that may have reared its ugly head in the future.
quote: That is ridiculous! That is like saying once you're in remission for cancer, the dr will keep you on a low dose of chemo
Once the germ load is down, that is when you have to give your body the strength it needs to stay strong and keep the immune system strong.
I would be very worried about a LLMD who suggest life long abx.
Long term, low dose chemo is the suggested treatment in many types of cancers, its called consolidation treatment.
Perhaps some research is needed before making such bold statements.
If symptoms and disease progression are held at bay with life long medications then that is the mode of treatment. Many diseases are treated with life long medications and perhaps TBI is one of them.
So, would you be worried about an oncologist who suggest long term chemo for survivial and symptom management?
Posts: 188 | From ID | Registered: Jan 2007
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Maybe the best decision would be seeing what works best for you. My plan is to treat until my symptoms are gone or greatly reduced, then to stay on a few months longer to be "safe," then to go off, but still maintain a healthy lifestyle.
If you try this method though, and you find you need to be on something to feel normal, it MIGHT be worth it to stay on something as maintenance if it improves your quality of life.
I think it could go either way for people. I am just looking forward to being off antibiotics so I know I can detox fully, and be sure I don't have yeast.
You may be thinking, "I don't feel well, I need to be on these for maintenece," but your real problem may be yeast anyways. So my point is maybe after you go off, you could just fine-tune your health to make sure there is nothing else causing remaining symptoms.
All that said, listen to your body. If you feel your body needs maintenance abx, you may need them. Wish I could give better advice!
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
i don't believe you can attain full remission with abx alone. sorry. have you looked into alternative treatments? i work in the health care field,(i am a physical therapist) and up until last year only agreed with western medicine. but since i have developed and treated myself for lyme, i would urge you to look into rife and salt/c
i was on abx for 11 months as well only to relapse hard after it ended. i decided against retreating with abx and instead bought a doug coil and started salt/c and in the short three months that i have been treating, i have made great progress. now, i am not out of the woods, and i have a long way to go, but for the first time, i am off all abx and feeling pretty good some days.
keep in mind i have had lyme for 20 years, so this is quite a feat.
sfcharm, i feel for you, i have been there. just look into other treatments. i know they sound kookey and when i first read about rife i thought it was CRAZY...but guess what it works....
also, i highly suggest rosner's top ten book. it is great... best of luck to all in this journey.
Posts: 82 | From philadelphia | Registered: Aug 2007
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Peacesoul
Unregistered
posted
quote:Originally posted by Doomer:
quote: That is ridiculous! That is like saying once you're in remission for cancer, the dr will keep you on a low dose of chemo
Once the germ load is down, that is when you have to give your body the strength it needs to stay strong and keep the immune system strong.
I would be very worried about a LLMD who suggest life long abx.
Long term, low dose chemo is the suggested treatment in many types of cancers, its called consolidation treatment.
Perhaps some research is needed before making such bold statements.
If symptoms and disease progression are held at bay with life long medications then that is the mode of treatment. Many diseases are treated with life long medications and perhaps TBI is one of them.
So, would you be worried about an oncologist who suggest long term chemo for survivial and symptom management?
consolidation treatment is a course of treatment with anti-cancer drugs given to the patient whilst in remission with the aim of killing any remaining cancerous cells. Consolidation therapy: Cancer treatment given after induction therapy to consolidate the gains obtained, further reduce the number of cancer cells and achieve a complete remission. Often just called consolidation.
The overall sequence of therapy may be induction, consolidation, and maintenance therapy. Induction therapy is the initial step toward reducing the number of cancer cells. Consolidation is designed to further diminish the number of cancer cells and achieve a complete remission. Maintenance is given to maintain the remission and prevent a relapse.
This form of treatment is used primarily in AML or some other forms of leukemia and only UNTIL remission is reached. Not AFTER remission
My best friend is a PHD cancer reseacher. Here are her credetials
and she also has CML and takes meds to keep the illness at bay which is not chemo and yes which destroys her body. But she has NO CHOICE!
Cancer and Lyme are not the same monster. Lyme can be controlled with natural "meds" and diet changes, leukemia cannot.
And yes, I would fire my oncologist if he/she wanted to give me chemo if i was in remission.
Life long abx is insanity. Eventually they will stop working along with your body's own ability to fight off illness.
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groovy2
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posted
Hi All
I know of several long term lymies that are on a maintenance dose of ABX for years-
They are taking Low dose -
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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sutherngrl
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Member # 16270
posted
I know people personally that have been completely cured of LD. They do not continue to take antibiotics. They have been cured for 4 years.
I definitely believe that LD can be completely irradicated. I have seen it happen and my LLMD says it is very curable.
I believe you must be symptom free and off of antibiotics for 3 months to be considered cured.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
I was treated with abx for 14 months - the last two months symptom-free.
I decided myself to maintain a good vitamin regimen and I do some Cowden herbs/Buhner herbs to keep all infections down/gone.
I continue to be symptom-free. Two years this winter.
When I got lazy some months ago, some tingling returned, but now it is gone.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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adamm
Unregistered
posted
I know one patient who has been off of abx for 12 years now
and is fine (she was ill for 9 months, I think, before treatment
posted
It's really taken on a case by case basis. Read Dr. B's guidelines at www.ilads.org. He does say that some need maintenance abx and others don't. Personally, I wouldn't do "nothing".
I plan on taking herbs and supplements for life as Lyme has a high relapse rate.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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valymemom
Frequent Contributor (1K+ posts)
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posted
Six - that is kind of my philosophy, also.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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