LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Maintenance Antibiotics after Initial treatment?

 - UBBFriend: Email this page to someone!    
Author Topic: Maintenance Antibiotics after Initial treatment?
sfcharm
LymeNet Contributor
Member # 9392

Icon 1 posted      Profile for sfcharm   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just curious if anyone here is on a maintenance antibiotic after your treatment?

I've heard that once you are treated successfully some Dr.'s like to keep you on low dose antibiotics for life?

My Lyme Nurse is hoping to wean me off them after bartonella treatment ends in December. I've done 2 full years of antibiotics with 11 full months on Rocephin IV.

I'm love to hear from the people who currently have their lyme in check and are on maintenace orals or no antibiotics.

Thanks,

Barb

Posts: 281 | From san francisco | Registered: Jun 2006  |  IP: Logged | Report this post to a Moderator
hiker53
Frequent Contributor (5K+ posts)
Member # 6046

Icon 1 posted      Profile for hiker53     Send New Private Message       Edit/Delete Post   Reply With Quote 
Talk to Lymetoo. I believe she is off antibiotics and keeping her self in remission with rife and Xango. Hiker53

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

Posts: 8016 | From Illinois | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
lymebytes
Frequent Contributor (1K+ posts)
Member # 11830

Icon 1 posted      Profile for lymebytes   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I believe most are weaned off abx and if they "relapse" then must remain in treatment.

--------------------
www.truthaboutlymedisease.com

Posts: 2003 | From endemic area | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
Clarissa
Frequent Contributor (1K+ posts)
Member # 4715

Icon 1 posted      Profile for Clarissa     Send New Private Message       Edit/Delete Post   Reply With Quote 
Some LLMD's recommend the nutramedix herbs like Cumanda from the Cowden Protocol. I'm not well-versed in the herbs but many people are on the board.

My LLMD likes Mesosilver (colloidal silver) but beware: It was supposed to be my maintenance protocol and, because it goes deeper than abx, it found "something" and I'm herxing a bit again.

At least I know it's killing something that may have reared its ugly head in the future.

I'm sure more people will chime in.

Best,

--------------------
Clarissa

Because I knew you:
I have been changed for good.

 -

Posts: 1625 | From Florida | Registered: Oct 2003  |  IP: Logged | Report this post to a Moderator
Peacesoul
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
That is ridiculous!
That is like saying once you're in remission for cancer, the dr will keep you on a low dose of chemo

Once the germ load is down, that is when you have to give your body the strength it needs to stay strong and keep the immune system strong.

I would be very worried about a LLMD who suggest life long abx.

IP: Logged | Report this post to a Moderator
Doomer
LymeNet Contributor
Member # 11013

Icon 1 posted      Profile for Doomer     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
That is ridiculous!
That is like saying once you're in remission for cancer, the dr will keep you on a low dose of chemo

Once the germ load is down, that is when you have to give your body the strength it needs to stay strong and keep the immune system strong.

I would be very worried about a LLMD who suggest life long abx.

Long term, low dose chemo is the suggested treatment in many types of cancers, its called consolidation treatment.

Perhaps some research is needed before making such bold statements.

If symptoms and disease progression are held at bay with life long medications then that is the
mode of treatment. Many diseases are treated with life long medications and perhaps TBI is one of them.

So, would you be worried about an oncologist who suggest long term chemo for survivial and symptom management?

Posts: 188 | From ID | Registered: Jan 2007  |  IP: Logged | Report this post to a Moderator
Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759

Icon 1 posted      Profile for Hoosiers51     Send New Private Message       Edit/Delete Post   Reply With Quote 
Maybe the best decision would be seeing what works best for you. My plan is to treat until my symptoms are gone or greatly reduced, then to stay on a few months longer to be "safe," then to go off, but still maintain a healthy lifestyle.

If you try this method though, and you find you need to be on something to feel normal, it MIGHT be worth it to stay on something as maintenance if it improves your quality of life.

I think it could go either way for people. I am just looking forward to being off antibiotics so I know I can detox fully, and be sure I don't have yeast.

You may be thinking, "I don't feel well, I need to be on these for maintenece," but your real problem may be yeast anyways. So my point is maybe after you go off, you could just fine-tune your health to make sure there is nothing else causing remaining symptoms.

All that said, listen to your body. If you feel your body needs maintenance abx, you may need them. Wish I could give better advice!

Posts: 4590 | From Midwest | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
sammy1
Member
Member # 12754

Icon 1 posted      Profile for sammy1     Send New Private Message       Edit/Delete Post   Reply With Quote 
i don't believe you can attain full remission with abx alone. sorry. have you looked into alternative treatments? i work in the health care field,(i am a physical therapist) and up until last year only agreed with western medicine. but since i have developed and treated myself for lyme, i would urge you to look into rife and salt/c

i was on abx for 11 months as well only to relapse hard after it ended. i decided against retreating with abx and instead bought a doug coil and started salt/c and in the short three months that i have been treating, i have made great progress. now, i am not out of the woods, and i have a long way to go, but for the first time, i am off all abx and feeling pretty good some days.

keep in mind i have had lyme for 20 years, so this is quite a feat.

sfcharm, i feel for you, i have been there. just look into other treatments. i know they sound kookey and when i first read about rife i thought it was CRAZY...but guess what it works....

also, i highly suggest rosner's top ten book. it is great...
best of luck to all in this journey.

Posts: 82 | From philadelphia | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
Peacesoul
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Doomer:
quote:
That is ridiculous!
That is like saying once you're in remission for cancer, the dr will keep you on a low dose of chemo

Once the germ load is down, that is when you have to give your body the strength it needs to stay strong and keep the immune system strong.

I would be very worried about a LLMD who suggest life long abx.

Long term, low dose chemo is the suggested treatment in many types of cancers, its called consolidation treatment.

Perhaps some research is needed before making such bold statements.

If symptoms and disease progression are held at bay with life long medications then that is the
mode of treatment. Many diseases are treated with life long medications and perhaps TBI is one of them.

So, would you be worried about an oncologist who suggest long term chemo for survivial and symptom management?

consolidation treatment is a course of treatment with anti-cancer drugs given to the patient whilst in remission with the aim of killing any remaining cancerous cells.
Consolidation therapy: Cancer treatment given after induction therapy to consolidate the gains obtained, further reduce the number of cancer cells and achieve a complete remission. Often just called consolidation.

The overall sequence of therapy may be induction, consolidation, and maintenance therapy. Induction therapy is the initial step toward reducing the number of cancer cells. Consolidation is designed to further diminish the number of cancer cells and achieve a complete remission. Maintenance is given to maintain the remission and prevent a relapse.

This form of treatment is used primarily in AML or some other forms of leukemia and only UNTIL remission is reached. Not AFTER remission

My best friend is a PHD cancer reseacher.
Here are her credetials

http://www.llslifemosaic.com/lifemosaic/patient_story.jsp?patientid=196
http://mcb.asm.org/cgi/content/full/28/6/2066

I can post more, but you get the gist!

and she also has CML and takes meds to keep the illness at bay which is not chemo and yes which destroys her body. But she has NO CHOICE!

Cancer and Lyme are not the same monster. Lyme can be controlled with natural "meds" and diet changes, leukemia cannot.

And yes, I would fire my oncologist if he/she wanted to give me chemo if i was in remission.

Life long abx is insanity. Eventually they will stop working along with your body's own ability to fight off illness.

IP: Logged | Report this post to a Moderator
groovy2
Frequent Contributor (1K+ posts)
Member # 6304

Icon 1 posted      Profile for groovy2   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi All

I know of several long term lymies that
are on a maintenance dose of ABX for years-

They are taking Low dose -

Posts: 2999 | From Austin tx USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

Icon 1 posted      Profile for sutherngrl     Send New Private Message       Edit/Delete Post   Reply With Quote 
I know people personally that have been completely cured of LD. They do not continue to take antibiotics. They have been cured for 4 years.

I definitely believe that LD can be completely irradicated. I have seen it happen and my LLMD says it is very curable.

I believe you must be symptom free and off of antibiotics for 3 months to be considered cured.

Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
valymemom
Frequent Contributor (1K+ posts)
Member # 7076

Icon 1 posted      Profile for valymemom     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was treated with abx for 14 months - the last two months symptom-free.

I decided myself to maintain a good vitamin regimen and I do some Cowden herbs/Buhner herbs to keep all infections down/gone.

I continue to be symptom-free. Two years this winter.

When I got lazy some months ago, some tingling returned, but now it is gone.

Posts: 1240 | From Centreville,VA | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
adamm
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
I know one patient who has been off of abx for 12 years now

and is fine (she was ill for 9 months, I think, before treatment

was started.)

IP: Logged | Report this post to a Moderator
sixgoofykids
Moderator
Member # 11141

Icon 1 posted      Profile for sixgoofykids   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
It's really taken on a case by case basis. Read Dr. B's guidelines at www.ilads.org. He does say that some need maintenance abx and others don't. Personally, I wouldn't do "nothing".

I plan on taking herbs and supplements for life as Lyme has a high relapse rate.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
valymemom
Frequent Contributor (1K+ posts)
Member # 7076

Icon 1 posted      Profile for valymemom     Send New Private Message       Edit/Delete Post   Reply With Quote 
Six - that is kind of my philosophy, also.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.