LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Rifampin, Mino or both making me an emotional/anxious mess?

 - UBBFriend: Email this page to someone!    
Author Topic: Rifampin, Mino or both making me an emotional/anxious mess?
robi
Frequent Contributor (1K+ posts)
Member # 5547

Icon 1 posted      Profile for robi     Send New Private Message       Edit/Delete Post   Reply With Quote 
Wow ........... I just want to cry all the time since starting these. Is this a usual side effect?

I am also bouncing off the walls with ANXIETY!!!!!!!

I have done both of these rx's before but it was long ago and don't remember ...........

--------------------
Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy'

Posts: 2503 | From here | Registered: Apr 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sounds awful!!!!

I would think the combo could really do you in. Both are really rough drugs, as they work on the brain.

Rifampin may be giving you a bart herx. What's the dosage of each?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95729 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628

Icon 1 posted      Profile for METALLlC BLUE     Send New Private Message       Edit/Delete Post   Reply With Quote 
Both are known to do that. If it becomes intolerable, lowering the dose slightly on the Minocycline should alleviate symptoms. Consult your physician before making any changes though.

I'm on Minocycline and Rifampin, I just started. I expect hell to break loose. I'm on a lot of things, but this is the core antibiotic portion. It's going to be brutal.

--------------------
I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.

E-mail: [email protected]

Posts: 4157 | From Western Massachusetts | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
Clarissa
Frequent Contributor (1K+ posts)
Member # 4715

Icon 1 posted      Profile for Clarissa     Send New Private Message       Edit/Delete Post   Reply With Quote 
Both drugs are hitting BART which will cause herxes involving:

sobbing
depression
crying jags
horrific anxiety (crawl out of your skin)
calf pain
feelings of doom

The good news: You're hitting the Bart HARD and killing.

The bad news: The herxes are right out of Nightmare on Elm Street

That was me Jan 07-March 07. Xanax was my only relief. I highly recommend you get your LLMD to prescribe you some to get you through the herxes.

As everyone on the forum already knows, I would have jumped off my roof during those herxes had it not been for my anti-anxiety Xanax meds.

Hang in there. TOTALLY normal...just be easy on yourself and get some meds to control herxes.

Hugs,

--------------------
Clarissa

Because I knew you:
I have been changed for good.

 -

Posts: 1625 | From Florida | Registered: Oct 2003  |  IP: Logged | Report this post to a Moderator
feelfit
Frequent Contributor (1K+ posts)
Member # 12770

Icon 1 posted      Profile for feelfit     Send New Private Message       Edit/Delete Post   Reply With Quote 
clarissa has given excellent advice.

feelfit

Posts: 3975 | From usa | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
merrygirl
Frequent Contributor (1K+ posts)
Member # 12041

Icon 1 posted      Profile for merrygirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Wow thanks for this thread!

I have been having SEVERE anxiety and was wondering what the heck was going on. I am on Rifampin and Zith. The last few days have been so bad.

I keep having these doom and gloom feelings too.

I have been on Rifampin for 2 months now. The initial herx was rough and I have been ok until this anxiety.

I sure hope this goes away for all of us.

Melissa

Posts: 3905 | From USA | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
Mo
Frequent Contributor (5K+ posts)
Member # 2863

Icon 3 posted      Profile for Mo     Send New Private Message       Edit/Delete Post   Reply With Quote 
years ago when treated with rifampin - my daughter and i had raging herxheimers (funny, actually, in retrospect, to see a mom and toddler yelling randomly throughout the day..good thing we live in the boonies)
but we had much improvement after that initial period passed.

son, on different treatment time/course, only got better with it - mainly in areas of personality and lucidity.

i think emotional lability is common on this drug and tbd's, tho. see it mentioned here allot.

hang in there, it will pass. try and set yourself up with some outlets for relief.

mo

Posts: 8337 | From the other shore | Registered: Jul 2002  |  IP: Logged | Report this post to a Moderator
minoucat
Frequent Contributor (1K+ posts)
Member # 5175

Icon 1 posted      Profile for minoucat     Send New Private Message       Edit/Delete Post   Reply With Quote 
When I started on rif and mino, I became incredibly anxious and emotional, and very very cranky.

3 months into rifampin and mino, my anxiety and emotionalality are much reduced, though still present at a low-moderate (varies daily) level. I'm still quite snappish, although that's not as bad either.

So my take is, it's 70% die off and 30% med side effects.

Rifampin in particular affects hormones (the literature on it particularly discusses its depression of adrenal and sex hormones) and can cause insomnia (my insomnia has been horrendous since I started it).

Hang in there. Take what you need to take to sleep -- I don't think that any "sleep hygiene" practices can overcome the insomnia effects of rifampin, so I've resigned myself to sleep meds for the time being.

Tincture of passionflower or passionflower tea may help with the anxiety. Definitely go for more intense relief, like Xanax, if you need it.

"Anxiety" is such a mild term for describing the feeling that you're hanging by your peanutbutter-coated toes over a rift between Universes, and rats with sharp teeth are a-coming...

[ 28. August 2008, 11:38 PM: Message edited by: minoucat ]

--------------------
*********************

RECIDITE, PLEBES! Gero rem imperialem!
(Stand aside plebians! I am on imperial business.)



Posts: 2331 | From WA | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
bernieb4
Member
Member # 14654

Icon 1 posted      Profile for bernieb4     Send New Private Message       Edit/Delete Post   Reply With Quote 
I did Rifampin 600mg with Minocycline 400mg. It tore me apart in every way. My moodswings were out of control, as was my libido. One second I'd be raging with unprompted anger, the next my libido would kick in, then I'd feel depressed. It felt like a longterm acid trip. But my brain was sick and I was desperate for help. In the end I think it definitely killed off some bartonella and lyme.

I did have a bad sinus infection and case of conjunctivitis flare up for nearly 6 weeks, which I wrongly accepted as a herx. The doc put me on Augmentin and that cleared things up.

He was sure the Minocycline caused my eye probs, so be careful.

Posts: 98 | From WI | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 1 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
My rate for phone call consultations has gone down due to the bad economy.

Now, instead of being 2 cents an hour... I am running a 1/2 price special for anyone living within a 40 mile radius of you.

For everyone outside the 40 mile radius.... it is free.

[lol]

I'm here huckleberry... so use me up and spit me out.

And a meal on the pier would be nice!

If you promise not to jump off.

[Big Grin]

But really dear one...

I am feeling your pain.

If you need anything.. give me a ring a ding. OK?

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
sweet pea
LymeNet Contributor
Member # 6495

Icon 1 posted      Profile for sweet pea     Send New Private Message       Edit/Delete Post   Reply With Quote 
I believe I had an emotional herx when on the strong stuff. I learned what true depression is. Example: I was also having the chills, and it was wintertime, so my partner heated up a blanket in the dryer then wrapped me in it on the floor...for some reason I imagined myself wrapped up like a corpse and felt very morbid! Then the emotional herxed passed after a couple of weeks and I've been fine since then.

So I think this could be a good thing for you. So unless you're suicidal or just can't take the hurt, hang in there! And obviously, take good care of yourself!

Posts: 449 | From Vermont | Registered: Nov 2004  |  IP: Logged | Report this post to a Moderator
aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960

Icon 2 posted      Profile for aklnwlf     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hang in there Robi!

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

Posts: 5529 | From Columbus, GA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
Rianna
Frequent Contributor (1K+ posts)
Member # 11038

Icon 1 posted      Profile for Rianna     Send New Private Message       Edit/Delete Post   Reply With Quote 
Its so tough Robi but hang in there, make sure you use a band aid like clarissa says 'valium or xanax' just to get you through - I had to use valium but ended up backing down no probs - I still use it through bad herx's.

I sure know how this feels but you will get through and then life is oh so sweet - Hang in there but again get something to take the edge off and then one day you will forget to take it or just know you can lower your benzo dosage.

Rianna

Posts: 1172 | From UK | Registered: Jan 2007  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.