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» LymeNet Flash » Questions and Discussion » Medical Questions » Should I be worried - or is this part of Lyme?

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Author Topic: Should I be worried - or is this part of Lyme?
Michele
LymeNet Contributor
Member # 13669

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Hi all,

I have had head pressure that started around my eyes and ears about 5-6 weeks ago and has now traveled to the back of my neck.

I'm weak, dizzy and sick to my stomach.

I am also now very emotional - cry at anything and can get irritable in a minute.

I had a very bad night last night and went to the ER. They did a CT of my head and chest x-ray. All tests were normal.

I can't find any relief for the pain/pressure in my head/neck.

Could this all be part of Lyme? I'm so worried that there is something more serious like menengitis that they are missing.

Anyone else experience these symptoms?

Thanks everyone for being here! [Smile]

Posts: 124 | From Indiana | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
feelfit
Frequent Contributor (1K+ posts)
Member # 12770

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Hi Michelle,

If you have been diagnosed with Lyme and alll other reasons for head pressure have been ruled out....

chances are it is caused by Lyme and /or other TBI's.

For me, head pressure, headaches (killer), facial numbness, anxiety (severe), depression (better now) are my most troubling symptoms.

Hope that you are seeing a LLMD and getting proper treatment?

Hang on, the ride is rough, often long, but I hear that an awesome destination often awaits us!

Best,
Feelfit

Posts: 3975 | From usa | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
Michele
LymeNet Contributor
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Thanks for the reply FeelFit.

I was diagnosed this January by an LLMD for Lyme.

A CT was ran last night and before that I took Amox. for a possible sinus infection.

ER doc said I might consider seeing a neurologist.

Has anyone had any experiences with a neurologist?

They also suggested a ear, nose and throat doctor. Any experiences???

Thanks.

Posts: 124 | From Indiana | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
Jenny in MI
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We who are suffering Lyme will get treated like we are crazy from neurologist. I have seen the best neurologists, even Dr. Brian Weinshenker at Mayo Clinic. He thought my dizziness, skin and face numbness, and back pain, muscle weakness were psychosomatic. After spending thousands of dollars to fly my mom and I to Mayo, he sent me for 6 hrs of neuro testings and an hour with a psychiatrist. If Mayo had diagnosed me I wouldn't be as sick as I am today.

I have been to the ER with the head-neck presure and at least 5 normal ct scans of the head and chest x-rays. That is one of my worst symptoms. The ER doesn't help. They may give you some extra strength pain meds and 10mg of valium, but it will not help your ear pressure, neck stiffness, eyeball pain.

I have found the neck stiffness and other problems you mention are starting to go away with doxycycline, but I TOTALLY understand. It is so scary. You feel like you are going to have a seizure you have so much pressure in your head.

Hang in there. You might try a liver detox vitamin. These have helped me alot. I use "Lipotropic detox" made by PURE. It has folic acid, b12, and some other components. It will help your liver unload the toxins.

Hang in there. Also try a Probiotic to off-set the damamge the abx will do to your gastro flora.

You will get better. Stick with your LLMD. Jenny =)

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Wildthing
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Michele,

I am seeing a Neurologist. I know it's probably the wrong thing to do, but I am doing it anyway. I am sure that many people here have had horrible experiences with them, but since I am experiencing neurological symptoms now, I want to make sure it is nothing else.

If they try to tell me I'm crazy, I will remind them that I have been bitten an average of 5 times per year-for the past 4 years, by deer ticks. I have had 3 documented rashes, tested positive 2 times for lyme and also have all of the clinical symptoms of chronic lyme and have only been treated by my family dr. twice in the past 4 years.

It doesn't matter to me if they say it's all in my head. I know it's not, just like everyone else here knows it's not.

My neuro said that even if everything shows OK, they will use these tests as a "baseline", in case I get worse.

She also said that if it is lyme, then I will need to be put on IV antibiotics, so it seems like she may be willing to treat me for lyme.


Hope this helps,
Teresa

--------------------
Powerful Women's Motto: Live your life in such a way that When your feet hit the floor In the morning, Satan shudders & says 'Oh ****!...She's Awake!!

WildThing
www.wildthingstodo.com

Posts: 160 | From Royersford,PA,USA | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
Michele
LymeNet Contributor
Member # 13669

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I guess even if they tell me it is all in my head I might have some peace knowing that nothing showed up.

Right now my fears are of having menengitis, encephalitis or some kind of mass in my head. It is just really scarey right now not only for me but for my 2 children as well.

It was so bad yesterday that I started my own obituary.

PS - my LLMD mentioned a med called Diamoxx (sp?). Has anyone tried this medication? If so, with or without success?

Thanks all!
[group hug]

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troutscout
Frequent Contributor (5K+ posts)
Member # 3121

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My question.......what abx are you on?

Trout [Wink]

--------------------
Now is the time in your life to find the "tiger" within.
Let the claws be bared,
and Lyme BEWARE!!!
www.iowalymedisease.com
[/URL]  -

Posts: 5262 | From North East Iowa | Registered: Sep 2002  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


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check out this symptoms list ok [Smile]

Symptom list from Dr. Burrascano from LDA site 9.05

http://www.lymediseaseassociation.org./SymptomList.doc

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