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» LymeNet Flash » Questions and Discussion » Medical Questions » Ugh--spasticity/tremors setting in fast. HOw bad is this?

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Author Topic: Ugh--spasticity/tremors setting in fast. HOw bad is this?
adamm
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And my LLMD appt. isn't until the Dec. 8.

I scheduled a visit with a doc at my school's student health service--hopefully I'll luck out and

they'll be willing to coordinate with the LLMD and get me on a

different treatment.


I don't know--I am quite scared that this I'm

starting to develop MS or something like that from the Lyme. Is

this necessarily the case, or could it just be caused, like the rest

of the brain sx, by hypoperfusion? Is it reversible?

[ 11. November 2008, 01:17 PM: Message edited by: adamm ]

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adamm
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pab
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Can you call your LLMD and let him know what is going on?

We usually send a fax to our LLMD.

--------------------
Peggy

~ ~ Hope is a powerful medicine. ~ ~

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adamm
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Just did that [Smile]

Any more thoughts?

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adamm
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up once more
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jamieL
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Could you be herxing?

I never had a tremor or muscle spasm till after I started treatment. They're mostly gone now after three months treatment.

What were your symptoms before dx? When did you start treatment?

--------------------
Diagnosed with :yme and mycoplasma pneumonia Aug 08.
Treating with Doxy and Ceftin ever since. 15 sessions in hyperbaric o2 chamber

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adamm
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Nope--as my prescription actually ran out a week ago (got it refilled today), there's no way it could be from a herx.
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tickssuck
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Hi Adamm,

These are symptoms I have - both prior to treatment and since starting treatment - when I'm having a bad time of things/herxing, whatever.

I don't have an answer for you. Just wanted to tell you, I struggle with tremors, internal trembling, have had hyper-reflexes (off and on), spasticity issues etc. For me...I completely believe it is Lyme or one of the multiple co's I have.

I have been tested for everything under the sun (MS etc.), no other answers but a fairly clear WB and + for coinfections. I am hopeful with more treatment these issues will resolve, albeit painfully slow, ugh! I am 8 months into orals, some days/hours I think I see slow improvement, other days/hours - I'm not so sure.

Hope you see improvement soon. Hang in there. TS

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Andie333
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Hi, Adamm

For me, seizures and tremors were part of neuro Lyme and were especially bad in the beginning of treatment.

After I'd been on abx for awhile, both things vastly improved, and the seizures completely disappeared.

Three years into treatment, I still have just the slightest tremor in my hand, but it's barely noticeable.

Lots of things changed with continued treatment.

Andie

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adamm
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Thanks all--I just needed to hear that this doesn't necessarily mean I'm developing some type fatal condition like ALS from my LYme.
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