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» LymeNet Flash » Questions and Discussion » Medical Questions » what happens after you get a clear IGenex report?

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Author Topic: what happens after you get a clear IGenex report?
lam
Junior Member
Member # 18635

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I had lyme disease/babeois for about 9 years. In 2007 I got a negative test from Igenex. After that I developed Hashamoto disease, which in turn I have also developed Aerial Fibration(?) I was wondering if anyone else has had trouble with heart papulations? When my lyme dr. said I would never be the same, what did he mean? There is nothing I can find that tells you what does occur after you are told you no longer have lyme disease. Please help if anyone else is having these same problems...Thanks lam :confused:
Posts: 1 | From California | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
eric555
LymeNet Contributor
Member # 18343

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sorry you are going through this,

in my opinion when a doctor says that nothing can be done,

run out of his office and go see another doc...

just my view.

oh and unfortunately i have to come to learn that there are plenty of False Negative results.

hope this helps.

good luck !!!


Best regards,
Eric

[Wink]

Posts: 570 | From philadelphia, pa | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
adamm
Unregistered


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http://www.anapsid.org/lyme/lymeseroneg.html

In other words: a negative test means nothing.

If you're in ill health and your doctor is telling you there's nothing he can do for you, you should find a different doc.

Best of luck,

Adam

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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359

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Plenty of lymies get heart palps that are often benign and transient. So make sure you have the correct diagnosis of your heart issues.

I know my heart issues sent me to the ER once and then they later just disappeared. I'm still running too.

Bottom line--make sure you get more opinions if you have significant doubts.

Some lyme docs believe in a post lyme syndrome in which the immune system mistakes the body's own cells for Bb or something along those lines. Perhaps that is what your doc is talking about but I know my doc treats that as well.

--------------------
"Whatever can go wrong will go wrong."

Posts: 2062 | From CT | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Topper
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Member # 18568

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I have hashimotos disease- basically hypothyroidism. I take synthroid for it. I don't know if it was from the Lyme Disease or not.

My LLMD does not treat the Hashimotos-my endocrinologist does. I will never be the same- my thyroid will be monitored and medicine adjusted as necessary.

I also have SVT-supra ventricular tachycardia-and I take atenolol for that. Again, my LLMD did /does not treat me for that - my primary care doctor does. I don't have heart palps anymore like I used to-wound up in ER couple of times. Now it's just minor-and I take the atenolol every morning.

I can live quite easily with both of these.

BTW- I am no longer in treatment for Lyme Disease, although my LLMD told me upon discharge that he doesn't think Lyme ever goes away really.And if I relapse then I will just go back on antibiotics again.

Posts: 33 | From USA | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
bettyg
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welcome! many here do have heart problems.

i have hashomoto too or did when 1 of my many tests was done; have had thyroid problems 25 yrs. plus.

what symptoms do you STILL have besides your thyroid problems? see the long lists in my newbie package link ok!
************************


Welcome; i'm so glad you found us!! You've come to the right place for education and support!


Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @

http://www.betterhealthguy.com/images/stories/PDF/LYMDX8RX2008-October.pdf

DebAZ's 12.08 comparison of 05 to 08 new guidelines:

Differences in newest Guidelines compared to 2005 Guidelines

Page 25 26 and 27
Added section
"Sorting out the co infections"

Page 28
New info given to get supplements from additional places

In all areas of Supplements
there has been various changes and additions to each description
and i advice people to re read the full supplement section as well the
following additions to the whole supplement section:

Basic Daily Regimin
NT Factor Added

Alternative Treatments
CITICHOLINE Added

Immune Support
Transfor factor Added

For Fatigue
Took out "For Fatiuge" section

Other Optional
Vitamin D Added

Page 31
"Lyme Disease Rehabilitaion"
is rewitten and added to

He mentions Flexcreme (Flex Cream) by Pharmanex as great for body pain

. suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.


Dr. B's Supplement List
http://www.lymepa.org/Nutritional_Supplements.pdf


this link, making the most of your LLMD visit, may help you also.
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=020605#000005


please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you!
@ http://tinyurl.com/58eyou

sorry, link takes you to END vs. beginning, so just use UP ARROW and go to the TOP for detailed info! thanks!


Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!

Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.

***************

please go to my newbie links, copy the entire thing, and then print this off....


financial burdens compiled by melanie reber
pages 74 - 92; outstanding info there.


also in my table of contents, for FINANCIAL BURDENS, i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
thoughts and prayers headed your way..


Betty's POSTING GUIDELINES

When you post or reply, please break up your solid, continuous block text [Smile] welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.


please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.


now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.


if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.


NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.


IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.

specifically, delete the first 4 characters of 2ND LINE of a ""


[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox


then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND


we thank you for helping us; [Wink] otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.


LYMETOO'S DR. C'S EXPLANATION OF WESTERN BLOT TESTING!

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077

PRINT THIS OFF the full explanation, and then CIRCLE the numbers that coincide with your positives, IND! That will explain your no. results!

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TO LIFE
Unregistered


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Hi Their,

I am from CA too. But on a serious not, were you treated for BART..

Much Love, Roz

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