I have a couple of questions and I hope someone can answer.
I had Lyme over the late summer. I first felt the aches on Labor Day weekend and by that night was on the couch is pretty bad shape. I spent a little over a week with the horrendous symptoms, thinking I had the flu, until I called my doc and he told me to come in. He found the bite/rash between my shoulder blades. I was put on the meds that day, and took them for 3 weeks. I also had the rash elsewhere on my body, but not severely. I felt better after the meds, but still feel like I have a couple of symptoms.
- I am tired a lot. I've always been a high-energy person, the kind who gets up at 5am without an alarm going off, and is on the move all day until 10pm. Since the Lyme though I feel like I could sleep 12 hours a night or more. I got to bed around 9 and have to drag out around 5:15. I can make it through my day OK, but honestly feel like I could sleep for hours at any point! Could this be a lasting impact of the Lyme, even though I seem to be cured?
- the second question is does Lyme ever cause lasting localized aches? My hands are really sore, which I think has more to do with too much time on the computer - - but I thought I'd mention it.
Fatigue (energy issues) has been my #1 symptom from the get-go. You should make sure that you were/are checked for co-infections as well.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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Frequent Contributor (5K+ posts)
Member # 18524
Localized and moving pains. I showed a lung specialist my hot red toe of the day
one time last year while trying to find out what was wrong with me,
and she thought I was nuts.
Toes and fingers especially. Sometimes red hot burning pains,
sometimes sharp stabbing pains like it came from somewhere else.
They like vitamin D which will cause pains on depletion.
They are finding out a lot more about this and are even culturing borrelia in it.
It can get so bad you cannot stand to be touched.
I would offer my pinkie for a hand shake.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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I wouldn't call that "cured!" Sleeping all day is a sign of Lyme and/or babesia, which you could have contracted with the same tick bite.
I would NOT under ANY circumstances stop antibiotics at this time. You will suffer a LONG time in the future if you do.
Please go over to Seeking a Doctor and ask for help in your area. We'll help you find a dr who will test you thoroughly and get you WELL.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 95350 | From Texas | Registered: Feb 2001
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Fatigue is my worst symptom.
You were definately undertreated.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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YES to all above; you were undertreated and STILL have lyme!!
do NOT go to an infectious dr. who undertreat causing you to become CHRONIC LYME like you have now. they don't believe in chronic lyme.
you can learn more in my newbie welcome below! BEST WISHES AND POST IN SEEKING DR. NOW so mon. am you can start calling for a good LYME LITERATE MD, LLMD, appt.!!
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
DebAZ's 12.08 comparison of 05 to 08 new guidelines:
Differences in newest Guidelines compared to 2005 Guidelines
Page 25 26 and 27 Added section "Sorting out the co infections"
Page 28 New info given to get supplements from additional places
In all areas of Supplements there has been various changes and additions to each description and i advice people to re read the full supplement section as well the following additions to the whole supplement section:
Basic Daily Regimin NT Factor Added
Alternative Treatments CITICHOLINE Added
Immune Support Transfor factor Added
For Fatigue Took out "For Fatiuge" section
Other Optional Vitamin D Added
Page 31 "Lyme Disease Rehabilitaion" is rewitten and added to
He mentions Flexcreme (Flex Cream) by Pharmanex as great for body pain
. suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
sorry, link takes you to END vs. beginning, so just use UP ARROW and go to the TOP for detailed info! thanks!
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!
Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.
please go to my newbie links, copy the entire thing, and then print this off....
financial burdens compiled by melanie reber pages 74 - 92; outstanding info there.
also in my table of contents, for FINANCIAL BURDENS, i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences. thoughts and prayers headed your way..
Betty's POSTING GUIDELINES
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
LYMETOO'S DR. C'S EXPLANATION OF WESTERN BLOT TESTING!
PRINT THIS OFF the full explanation, and then CIRCLE the numbers that coincide with your positives, IND! That will explain your no. results! ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
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