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» LymeNet Flash » Questions and Discussion » Medical Questions » Need help in RI

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Author Topic: Need help in RI
nriccio
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Member # 18733

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Just diagnosed with Lyme by LLMD in Wellesley, MA after feeling sick since October and exhausting every specialist in RI. Lyme is mimicing ALS and MD feels that aggressive treatment with IV antibiotics is essential. I am now left with the task of finding an IV homecare agency, finding a place to have a PICC line inserted, getting insurance to cover it all and try to get my MD to take me out of work for a short time so I can collect TDI. All while taking care of 2 small children. I am overwhelmed! Anyone in RI that can offer any advice or suggestions would be greatly appreciated. Thanks a million!
Posts: 4 | From RI | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
steelbone
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Worse case is you could ask to start out with oral abx. That way u could some what take care of your children

Good luck

--------------------
All The Best,
Paul
[email protected]

The harder you work the luckier you get!

Posts: 965 | From Nebraska Cornhuskers fan in Massachusetts | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
MY3BOYS
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your doc prescribing IV antibiotics should set you up for the PICC line, can be done at hospital in outpatient

doc should also set up the IV through home health, let them know if you have a preference of companies.

as for the insurence-- depends on your carrier and policy. usually this is done by md office submits "pre-auth" to ins. and they approve or deny, if deny the doc goes at it again with them.

hope that helps

--------------------
i am not a Dr. any info is only for education, suggestion or to think/research. please do not mis-intuprest as diagnostic or prescriptive, only trying to help. **

dx in 08:lyme, rmsf, bart, babs, and m.pneumonia.

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DW213
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I am in RI and went through this in 2008 (except the TDI).

My PICC line was put in by RI Vascular Institute in Providence. My PICC was managed and drug delivered by Clinical IV Network in Pawtucket. Hope this helps.

Posts: 78 | From Rhode Island | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
luvdogs
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Also, Kent County hospital is great for putting in PICCs - they were wonderful with me!

My home health care was - i can';t remember name but right next to Salvation Army on Eddy Street near Woman and INfants - If I can find the paperwork I will let you know.

But normally the doc arranges this -

Insurance should cover it all without question.

Congratulations - this is a positive thing. And good luck on the road to healing!

Posts: 584 | From Rhode Island | Registered: Jun 2006  |  IP: Logged | Report this post to a Moderator
Tracy9
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Since you are out of state from the doc, she should give you written prescriptions. I just went through this with same doc. Was able to call local hospitals, and get PICC with the written script. They did call her for whatever they needed. Same deal with homecare company.

--------------------
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13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
   

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