LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Marnie Can you 'Dumb Down' your Info?

 - UBBFriend: Email this page to someone!    
Author Topic: Marnie Can you 'Dumb Down' your Info?
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067

Icon 1 posted      Profile for seekhelp     Send New Private Message       Edit/Delete Post   Reply With Quote 
I posted in another thread, but Marnie you seem to know everything possible about Lyme and how to kill it.

The problem is 90%+ of members on here can't comprehend what you're illustrating. Can you provide any recommendations in 'layman terms' for us not so scientifically geared. I'm not dumb by any means, but when you start talking about pathway inhibitations and so on...I get lost in space.

If you're going to keep posting these tidbits, it would be so nice to help others w/o your extensive medical background. I'm just trying to learn what I can.

Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-

I'm always glad to see Marnie's posts for they are very educational - and I'd never see these otherwise.


However, I also have trouble focusing and often can't read much at all. What I've found to help me with technical articles is to copy it into a Word file.

Then I change the type and create more white space so that I can ferret out the key sentences.


Often, I'll just go straight to the conclusion.


I think it is important to see the full article - at least the original link but I also really appreciate any extra thought or simplified conclusions or "take-home points" such as "be sure to take B-6 with magnesium - and sublingual B-6 is best," which she recently posted.


Marnie is always available, coming back to the threads, to answer questions and that is really appreciated.


So, be sure to post questions - the discussions about these articles can be enlightening as well. A lot may go over my foggy head, but I do so appreciate access to knowledge and Marnie sharing her finds.


-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
djf2005
Frequent Contributor (1K+ posts)
Member # 11449

Icon 1 posted      Profile for djf2005     Send New Private Message       Edit/Delete Post   Reply With Quote 
ive been saying this since i got on here 2 plus yrs ago.

either she doesnt understand the request/s or she is preoccupied with inflating her ego and doesnt care.

either way, the info is useless and her explanation of "posting the info in this manner in order to educate scientists who browse LN" is a bit far fetched.

i do hope someone is reading it and assimilating some type of attack plan political or medical but i doubt very much this is true.

good luck

derek

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
pab
Frequent Contributor (1K+ posts)
Member # 904

Icon 1 posted      Profile for pab     Send New Private Message       Edit/Delete Post   Reply With Quote 
I wish Marnie was my sister.

--------------------
Peggy

~ ~ Hope is a powerful medicine. ~ ~

Posts: 2775 | From MN | Registered: Apr 2001  |  IP: Logged | Report this post to a Moderator
Marnie
Frequent Contributor (5K+ posts)
Member # 773

Icon 1 posted      Profile for Marnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
For a long time, I have been asked...which Mg is best?

It appears to be MgCl. That looks to be the BEST form of Mg to use.

Magnesium chloride.

Ideally, IV/IM doses given over several days...along with (esp) B6 - which must be taken sublingual since our stomach acids destroy it.

Source Naturals makes sublingual B6 = P5P. B6 helps control Na levels and it is the vitamin with the most functions.

Why is Mg so vital?

For many many reasons:

1. It is an ANTI-INFLAMMATORY

2. It is needed to make our enzymes and our antibodies...esp. those antibodies to Bb's OspB (one of its outer surface proteins).

3. It INactivates HMG CoA reductase (an enzyme) and shuts down the cholesterol pathway which IS the pathway Bb takes.

4. It is attached to our ATP as Mg-ATP and helps to transfer phosphate groups.

Why chloride?

It looks like that "channel" is open. (Frontline blocks the GABA A and GABA C *chloride channels* and prevents the disease.)

It appears GABA A and GABA C - when they lock onto their receptors - transmit signals to our T cells.

No transmission = no infection. That looks to be HOW Frontline PREVENTS the disease in dogs.

Bb infects our defense cells.

But once infected, it looks like NaCl and CaCl goes into the cells.

It appears a channel, called TRPM8, is open/activated. This channel is "cold activated".

So what does our body do? It sends in "de-icers".

Yea, you read that right.

De-icers.

NaCl and CaCl are de-icers.

But so is MgCl.

We've even used MgCl to de-ice our roadways, but it impacts...get this...our electical lines. It is smaller than CaCl.

I urge you to read and try to understand all that you can about magnesium chloride.

Start with Dr. Pierre Delbet.

He found MgCl cured many diseases, but this information was "lost" because, we were developing vaccines to PREVENT the diseases.

Bb looks to need both Ca (likely for its flagella) and Na (for quorum sensing = "communicating").

It causes those to minerals to go into the infected cells.

Bb has a PKC inhibitor. I'm pretty sure it is PKDd = protein kinase C, delta.

This is a calcium (that is where the C comes from) activated protein kinase (phosphate transfer)inhibitor.

Translation: because Bb has a PKC inhibitor, a transfer of a phosphate to an amino acid isn't happening.

How do we respond to Bb's PKCd inhibitor?

Estrogen activates PKCd.

So, "he" attracts "her".

Estrogen is neuroprotective. Estrogen comes FROM cholesterol.

Clever guy.

I think curing lyme is a 2 step process:

1. Tame down the immune system (proinflammatory TNF alpha AND IL1 B). Mg IS anti-inflammatory (so is E EPA - OmegaBrite)

while simutaneously (or very close time-wise)

2. closing the TRPM8 channel "doors".

I linked a video of that happening (from a neuro website).

When energy (photons) go into the cell, this activates a G protein (helper)called Transducin and what happens on the right is the gates/doors close.

Watch it happening in the link below. This looks to be how far infrared is working..."de-icing"...

http://neurobio.drexel.edu/SesslerWeb/sessler.php

Scroll down a little and watch for the blue box on the left side.

You may have to use your computer tools to make that bright blue box bigger.

On the left side...the word, "Photon" (pure energy, no charge) will appear in white as the animation goes on.

In the upper middle, the word, Transducin, will appear.

Notice what happens to the Na-Ca channel on the right.

It closes.

In Germany, this treatment was followed by giving IV MgCl (+ vitamins?)

Once Bb is destroyed, it maybe very necessary to counter the toxins released...supporting our liver functions. ("Google" MgCl liver).

Keep in mind, we CAN use our largest organ (skin) to absorb nutrients we need (MgCl) and bypass our stomach.

Ancora Imparo.

Translation: I am still learning...from many of you on this board too!

We WILL find a way.

P.S. My sister has the severe crippling arthritic form of lyme. She does NOT have neuro symptoms which MIGHT be due to the high doses of Prozac she is taking...offering some protection...OR she "simply" had a different strain of Bb. There are many strains.

Posts: 9402 | From Sunshine State | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
btmb03
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Who's Marnie....a lyme patient, educator? scientist? I vaguely remember SOB her posts which unfortunately for me are waaay too complex for my lyme brain! (Like most everything these days)!

I'd love to be able to understand some of that stuff too and how it may impact our treatment in general.

IP: Logged | Report this post to a Moderator
btmb03
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Woah- we must have been posting at the same time -

So..."estrogen comes from cholesterol"..is this why some docs recommend a low-fat diet? Especially since pain is often estrogen-driven esp in women??

IP: Logged | Report this post to a Moderator
Marnie
Frequent Contributor (5K+ posts)
Member # 773

Icon 1 posted      Profile for Marnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am a retired OB RN whose sister got lyme in 1999-2000 and was misdiagnosed and given steroids. She did not see the tick or rash.

Steroids initially = disasterous.

She was/is extremely ill.

At one point she almost lost her eyesight. She has had both knees replaced. Her hands are very crippled and her legs are edematous. She has lost most of her beautiful curly hair. She has been formally dx'd "autoimmune" now.

All the abx....all of them (including those to fight babesia) failed to halt the disease. IV doses of Rocephin too. Humira helped, but only lowering TNF alpha isn't enough.

Coming from a medical background, I wanted to know WHY the meds didn't work and so I began a nonstop journey to try to understand this pathogen and what it was doing to us.

Never in a million years would I have believed I would someday be promoting "alternative" therapies...Rife, far infrared, and nutrients.

Over the past 9 years I have learned a LOT, from you all here and from the internet as I tried hard to slowly piece this together.

This pathogen is incredibly complex and dangerous. It is as bad, IMO, as HIV, but not as "fast".

Your body is trying hard to find alternative routes to prolong your life and to destroy Bb. One example is oftentimes, vitamin D levels rise to prevent cancer. You are sleepy because serotonin is converting to melatonin which is an anti-oxidant. There is a tremendous amt. of oxidative stress going on as the body is trying to "oxidize"/"burn up" Bb's outer cell wall proteins. All the ROS...reactive oxygen species = damage to healthy cells too.

Because Bb takes from us many nutrients, this throws our own body way out of balance.The antibiotics compound the problem in many respects (esp. when it comes to destroying our bowel beneficial bacteria).

I understand that abx. DO prolong your life, alter the immune response and DO help, but IMO, they do not CURE.

My focus is/has always been on finding a CURE.

Some people HAVE been cured of lyme using treatments and even meds which are "out of the box".

It IS possible.

Keep a very open mind and keep trying to exercise your mind...learning. We actually MAKE more neuro receptors as we learn.

Don't ever give up hope. You CAN recover.

If someone tells you, you are now "autoimmune" (high ana titers) and you accept that dx, you need to know that others here have had their ana titers LOWER with treatment.

It is NOT a death sentence or impossible to overcome AIDS (which is not limited to HIV/lupus, etc.).

I, for one, believe this disease can be halted and a lot of the damage can be reversed.

I believe and I hope you do too.

Posts: 9402 | From Sunshine State | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
btmb03
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Marnie, what a touching and inspiring post...so sorry to hear everything your sister has had to endure.

One question: can we all pool our resources here and send you to med school?? [Smile]

IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
--

Marnie . . .

Thanks so much for your efforts on every level of lyme education. Your sister is very fortunate to have you - and so are we.


Keep the info. coming! My brain may not grasp it all at first - but I have a "Marnie" file so I can look back over all this later.


-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sometimes I study Marnie's posts by googling the vocabulary to learn more about biochemistry. I think learning additional science like this has helped me to better understand these diseases.
Posts: 13041 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Larkspur
LymeNet Contributor
Member # 5131

Icon 1 posted      Profile for Larkspur     Send New Private Message       Edit/Delete Post   Reply With Quote 
Marnie - I took one of your posts to my LLMD once

It's nice to learn about your backgroun

--------------------
"We must be willing to get rid of
the life we've planned, so as to have the life that is waiting for us" - e.m. forster

Posts: 921 | From PA | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196

Icon 1 posted      Profile for Silverwolf     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks to <<<<< Marnie, topic Poster and All who shared here >>>>>,

I have been trying to find a better way to take Magnesium [I get Stuck w/ Immodium days/nights from most Magensium. However,I get some severe Charley horse cramps in my legs.

I will try to remember MagCL w/ the Chlorides!

I know the technical issues are hard to understand,but anything we can glimmer from them may help one or more of us.

Marnie, I sure hope a way is found to help your sis' get better again!

The tech stuff gets over my head,but I still keep trying to read!

Prayers for better health going up for all of us...

Just Silverwolf here

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3467 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
glm1111
Frequent Contributor (5K+ posts)
Member # 16556

Icon 1 posted      Profile for glm1111     Send New Private Message       Edit/Delete Post   Reply With Quote 
Marnie,


Have you approached the possibility and or avenues that your sister may be infected with filarial worms?


Willy Burgdorfer found filarial worms in ticks and as an aside found spirochetes. I really think this is a big factor that is being overlooked in a lot of people.


It is really admirable how you are trying to help your sister. I am a retired trauma nurse and the medical terminology that you posts hurts my head and I SOB.


Maybe if you just took the info and explained it in your own words it could help clarify.


Thanks for your efforts,


Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
AnnaInga
Member
Member # 19162

Icon 1 posted      Profile for AnnaInga     Send New Private Message       Edit/Delete Post   Reply With Quote 
Marne

I am an RN too....too sick to work now...don't dumb down a thing. I need the scientific reasoning.

Posts: 11 | From Great Lakes | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
TerryK
Frequent Contributor (5K+ posts)
Member # 8552

Icon 1 posted      Profile for TerryK     Send New Private Message       Edit/Delete Post   Reply With Quote 
Marnie - I appreciate your efforts very much. It's hard to follow your reasoning sometimes but I continue to try.

Please keep posting. We need you!

As others have said, I hope your sister recovers. You are an amazing sister and your sister is very lucky to have someone like you and so are we.

Terry

Posts: 6282 | From Oregon | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
randibear
Honored Contributor (10K+ posts)
Member # 11290

Icon 1 posted      Profile for randibear     Send New Private Message       Edit/Delete Post   Reply With Quote 
well if antibiotics don't work (for some like me), then what else can we do?

i can't afford a rife machine....

i read your posts and can get a general idea but frankly, some of it is way over my head....

no problem tho, i'll let others explain things.

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
quote:
Originally posted by AnnaInga:

Marne

I am an RN too....too sick to work now...don't dumb down a thing. I need the scientific reasoning.

marnie,
thanks for your above posts written in simpler "neuro lyme" language for the MAJORITY of us here who do NOT have medical backgrounds like you, anna, gael, and many other RN members.

my request too is for the NEURO LYME USER FRIENDLY LANGUAGE. i have tried and tried to get things out of your posts; but they are way beyond my 39 yrs. of neuro lyme.


so anna, my request would be for those of you in medical field to pursue that by posting for scientific info as a reply to her NEURO USER FRIENDLY language for the MAJORITY of us who come her daily/weekly, etc. then it can be a WIN WIN situation where we ALL are learning from marnie's vast research.

yes, marnie's sister is truly blessed to have her, and i bet she goes to every llmd visit too learning more!! [group hug] [kiss]

IP: Logged | Report this post to a Moderator
kelmo
Frequent Contributor (1K+ posts)
Member # 8797

Icon 1 posted      Profile for kelmo     Send New Private Message       Edit/Delete Post   Reply With Quote 
If someone tells you, you are now "autoimmune" (high ana titers) and you accept that dx, you need to know that others here have had their ana titers LOWER with treatment.

My daughter's ANA went from elevated to negative with treatment. Her body temp was 95-96 for several years; it's now a consistent 98.

Posts: 2903 | From AZ | Registered: Feb 2006  |  IP: Logged | Report this post to a Moderator
lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742

Icon 1 posted      Profile for lymielauren28     Send New Private Message       Edit/Delete Post   Reply With Quote 
Marnie,

You bring so much to the table here it is unbelievable, and more appreciated than you could ever know.

In reading the parts about Estrogen activating PKCd - When I became infected with Lyme I developed endometriosis almost over night.

My estrogen levels were through the roof. I've fought very hard to keep my estrogen levels down by eating right, cutting out all parabens and posphates in all household products inluding my shampoos and lotions and supporting my liver as best as I can.

Are you saying the body produces excess estrogen to protect itself from Lyme and then the Lyme uses the estrogen to help activate itself??

I'm trying to understand this...

Also I steer clear of any type of supplemental Mag and have posted about this before.

Everytime I supplement it my symptoms explode. I always thought the mag was activating BB, but after reading your posts it was most likely a herx reaction???

If you could clarify these things that would be great!

Lauren

--------------------
"The only way out is through"

Posts: 1434 | From mississippi | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
bejoy
Frequent Contributor (1K+ posts)
Member # 11129

Icon 1 posted      Profile for bejoy     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for all your posts, Marnie. I appreciate the new info on Mag. Things here I wasn't aware of yet.

I wish your sister the best.

I want to note that I am working on biophoton protocols for autoimmune disorders, and so far have been successful with myself, so there is hope for those with this condition.

Using biophotons in placements related to allergy elimination including gates, and spine for accupuncture points, along with sarcode vials on the solar plexus for the affected organ,

I seem to have gotten rid of autoimmune reactions to both thyroid (hashimoto's) and adrenals (addison's.)

Blood tests now show normal hormone levels for both, and I am sucessfully weaning off Cytomel and Cortef medications.

Why this works for me, I can't tell you. If it would work for others, I can't tell you either.

All this came after getting bacterials and virals down to a manageable level, and feeling almost "well," or "normal."

Next, I test all available sarcodes to see what other autoimmune reactions I may be needing to treat.

This probably sounds like gibberish, but if anybody wants me to expound, send a PM, and I'll start a new thread rather than hijack this one.

--------------------
bejoy!

"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson

Posts: 1918 | From Alive and Well! | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
just don
Frequent Contributor (1K+ posts)
Member # 1129

Icon 1 posted      Profile for just don     Send New Private Message       Edit/Delete Post   Reply With Quote 
PAB,

You only get Marnie as a sister after I have had her for mine FIRST!!! I am a Marnie fan from way back.

Marnie- Just wondering--have you done any researching etc on bart also???

Can lyme possiblely be 'sorta controlled' and bart not?? In other words the MAJOR player!!!

Have read where ALL people have bart inside them. There immune system keeps it in check,,till stress lets it explode!!

PLUS , bart is highly transmissible from family member to family member.

SO question of the day,,,is BART the major player and lyme a co,,,maybe ,,,or EQUALLY as important??

Thanks Marnie,,for all you do here!! many times over!!! cuz IB--just don--

--------------------
just don

Posts: 4548 | From Middle of midwest | Registered: May 2001  |  IP: Logged | Report this post to a Moderator
Marnie
Frequent Contributor (5K+ posts)
Member # 773

Icon 1 posted      Profile for Marnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you for all of your comments...the good and the bad. Please realize YOU all have helped ME to learn a LOT and I am very grateful.

We are in this together. Sharing our combined knowledge and experiences will lead us to the answer we all so desperately desire.

I think the medical community is doing a great injustice to lyme patients.

In my next life ;-), I'm going to be a microbiologist. I loved it in college and should have pursued it.

We ALL are microbe "hotels"...and we all have amazing numbers of good and bad guys in us.

Example: we hang onto many viruses that can reactivate (and that can be passed on attached to our DNA).

When our immune system is overstressed - when the bad guys outnumber the good guys and when our defenses are down as a result of the bad guys gobbling up our nutrients, we're in trouble.

My focus is/has been on Bb which (by itself) is incredibly complex.

Since we do have medicines to treat many of the other pathogens this is also why I have limited my research primarily to Bb.

For sure...NaCl (good old salt) kills a number of bad guys, but Bb looks to need Na.

Which makes it really hard if co-infected with a pathogen where NaCl would help knock it off.

It saddens me when people simply "accept" the diagnosis "autoimmune" and give up.

But I have to accept that is his/her choice.

It wouldn't be mine as you probably already know, I'm more of a "fighter".

Example:
I broke my left elbow years ago (skateboarding in my 30's) and the doctor told me I would never be able to turn my left hand palm up as a result.

Know what I did? When the cast was removed, I sat on the couch with tears streaming down my eyes and slowly, slowly exercised that arm until I could turn my palm up once again.

I was determined to prove that doctor wrong.

May God Bless you all here from the bottom of my heart.

Believe.

Posts: 9402 | From Sunshine State | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707

Icon 1 posted      Profile for Melanie Reber   Author's Homepage         Edit/Delete Post   Reply With Quote 
Love you Miss Marnie! [Smile]
Posts: 7052 | From Colorado | Registered: Mar 2003  |  IP: Logged | Report this post to a Moderator
Marnie
Frequent Contributor (5K+ posts)
Member # 773

Icon 1 posted      Profile for Marnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Love you ALL too! I really do.
Posts: 9402 | From Sunshine State | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
R62
LymeNet Contributor
Member # 18531

Icon 1 posted      Profile for R62     Send New Private Message       Edit/Delete Post   Reply With Quote 
Transdermal Mag chloride to by pass stomach?

Marnie, What do you think of the homeopathic nosodes.. do you think they are part of the equation or just the photons?

Posts: 861 | From USA | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
Marnie
Frequent Contributor (5K+ posts)
Member # 773

Icon 1 posted      Profile for Marnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
You asked a loaded question.

But...I doubt that the many current gov. sponsored trials using far infrared in an attempt to cure many diseases incorporates nosodes in the treatments.

In other words, I don't think in those trials nosodes are being used.

That said, I think far infrared treatments pulsed at specific accupuncture points for brief periods

AND

MgCl (plus B6, I think)

Can work.

It is this combination.

I think healing is a 2 step thing:

1. Tame down the immune system

AND

2. Hit the pathogen with a Rx/treatment to destroy it.

I think it is important to bypass the stomach so we don't mess with our stomach acid and then are unable to digest our food.

Posts: 9402 | From Sunshine State | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
UnexpectedIlls
LymeNet Contributor
Member # 15144

Icon 1 posted      Profile for UnexpectedIlls     Send New Private Message       Edit/Delete Post   Reply With Quote 
Marnie...

Thank you so much... I have always had toruble understanding your posts, and that is NOT your fault. I thank you for working tirelessly to find the answers we all crave.

You just gave me a lot of hope...

THANK you!!! [Smile]

--------------------
"You'll be surprised to know how far you can go from the point you thought it was the end"

Posts: 946 | From Massachusetts | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
R62
LymeNet Contributor
Member # 18531

Icon 1 posted      Profile for R62     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you, Marnie. [Smile]

I do have a few questions. [Eek!]

(1) The photons protect the cell from toxins and or Bb by closing this sodium/calcium gate as does mgcl? If the gate is closed, does it open back up .. it has to right? (sorry so confused)

(2) The photons create an environment where the immune system can go after whatever it needs to go after?

(3) If the immune system is confused, do the photons help re-arrange them or do they know to kick out certain bad guys? Or thats where the magcl comes in if there is a problem.. brings down inflammatory response.. disables the Bb??

(4) The MgCl also helps with detox?

(5) The B6 helps with detox?

(6) The B6 somehow disables Bb?

(7) the Mgcl is a de-icer and so is the photon? What is de-icing?

I am so close but so far away from understanding!

I used the Lightworks on solar plexus running through the nogier frequencies and felt like I herxed... my daughter had a similar experience. It scared me, actually... We did for 32 minutes.. 4 minutes per each nogier frequency.. which adds up to 32 minutes.

Thank you.. Robin

I would love to be able to use this machine with or without nosodes.

Posts: 861 | From USA | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622

Icon 1 posted      Profile for lymeinhell     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just let me say 'Thank You Marnie".

The one thing I learned from all of her postings that can put it simply: 'We will not get well until we restore our Magnesium Levels'... and this CANNOT be done by taking just oral magnesium.

IV Magesium Chloride, for me, was a miracle worker. I've watched it transform me in 35 minutes. No amount of orals (taken in small doses 8 times a day) could EVER do what an IV could.

I've had my life back for quite some time now.

I can't say I'm 'cured' - I choose to call it 'Peaceful Coexistence'. I believe I went way too long untreated to be cured with the science we have now.

The one thing I will continue to do for as long as I need to is weekly IM Magnesium shots (mag sulfate). I'm in the normal ranges now, but realize that without the shots (skipping 3 weeks for example) will put me into a spiral to a place I want never to return.

My most heartfelt thank you Marnie!! So glad you decided to stick around. Lots of new faces around here not familiar with your postings of the past that should be reminded of your gifts to us.

--------------------
Julie
_ _ ___ _ _
lymeinhell

Blessed are those who expect nothing, for they shall not be disappointed.

Posts: 2257 | From a better place than I was 11 yrs ago | Registered: Sep 2003  |  IP: Logged | Report this post to a Moderator
maureen2174
LymeNet Contributor
Member # 11471

Icon 1 posted      Profile for maureen2174     Send New Private Message       Edit/Delete Post   Reply With Quote 
I love you too Marnie! You have really helped me a lot to understand light treatment and rife treatments.

I just want to add that I use transdermal Mg- Dr. Shealys lotion. I do this (and take sublingual B-6) about an 30-60 minutes before either rifing or using my PE-1 (light therapy).

I have not used nosodes with my light therapy, not yet at least.

Posts: 871 | From NJ | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
scared08
LymeNet Contributor
Member # 14695

Icon 1 posted      Profile for scared08     Send New Private Message       Edit/Delete Post   Reply With Quote 
I really want you to know that I admire greatly!! For one, you never seem to let someone elses opinion of comment upset you!! You respond with kindness, God bless you!

Two, for the endless research you are dedicated to in order to help your sister. How many of us have said, " Oh I wish I could do something to help___________!!! !!! Well you're doing it and for 9 years now! You never know; you just may find a cure and then we can all say, "We knew her when she was.........!!"

I have to tell you and family members think I'm crazy for this, but this/these bacterias are the most intelligent and adaptable strains of any disease of virus that I have heard of!! Not to say there's not many that I obviously don't know about, but this disease/bacerial cells/spirochetes ??? are the most intelligent and the SCARIEST ones I've ever seen!!!

I keep tring to tell my self that to win this war with my diseases, it is one battle at a time only to be conquered with an arsonal of tools!!!

The bacteria keep growing, branching into new strains, adapting to what ever enviroment they must. What may have worked 5 yrs. ago, may not work now.

Sorry---just venting! When I feel better, I will put together a 'cheat sheet' with medical terminology and their definations.

When this terminology is a common languauge to you, it becomes second nature and you speak and write this way sometimes w/o realizing it.

Marnie------You just keep going girl--no doubt you will come across an anwerer!!!!!

Posts: 351 | From Georgia | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
R62
LymeNet Contributor
Member # 18531

Icon 1 posted      Profile for R62     Send New Private Message       Edit/Delete Post   Reply With Quote 
Maureen... thank you for sharing this. I dont think I'm going to understand it all anytime soon, but its good to know how to do this.. I just ordered the magnesium. I have the oil and it stings.. so hoping to use it in the bath instead.

Marnie... I'm new here and am not familiar with your history here.. ran into one recent post on rife and can see why you are so beloved here.. thank you for all you do.

Its difficult to get into my head that magnesium is good!! when I keep hearing it feeds Bb. Confusing!

I went a week without it and that really seemed to mess me up. What helped was when I started taking it slowly in liquid form throughout the day (peter gilliams mag citrate).

It seemed to help immediately. (tremors.. not exactly Bb related, but obviously some side effect from low mag)

btw.. what causes the low magnesium.. is it used up trying to fight the bugs and toxins.. and by the liver?

Thank you.

Robin

Posts: 861 | From USA | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
R62
LymeNet Contributor
Member # 18531

Icon 1 posted      Profile for R62     Send New Private Message       Edit/Delete Post   Reply With Quote 
Maureen.. are you using the constant mode or nogiers then on the points indicated by Dr. W?

If nogier are you using the biotensor or have you founds ones that work for you some other way?

I'm trying to figure if I can use the Lightworks without the nosodes.. since I have still so much to learn.

Thank you.

Robin

Posts: 861 | From USA | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
njlymemom
LymeNet Contributor
Member # 15088

Icon 1 posted      Profile for njlymemom     Send New Private Message       Edit/Delete Post   Reply With Quote 
I enjoy your posts, Marnie.

It takes me a while to get some of it, but

am a richer person for the part that does

sink in.

Just wanted to say thanks.

--------------------
This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.


The shortest way to do many things is to do only one thing at a time.

cb

Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
maureen2174
LymeNet Contributor
Member # 11471

Icon 1 posted      Profile for maureen2174     Send New Private Message       Edit/Delete Post   Reply With Quote 
Robin- I use nogier mode on the PE1. However, I am probably the only one using it on frequency J, which pulses all of the nogier frequencies, changes every 7 seconds.

I am doing the 10 points indicated by Dr. W. I do 5 minutes each point and then I use it for my sciatic pain as well, maybe an additional 20 minutes or so.

I have not used the light therapy with nosodes. I do have the nosodes, but have not used them with the light, just for testing with the biotensor.

Posts: 871 | From NJ | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
Fordace
LymeNet Contributor
Member # 14874

Icon 1 posted      Profile for Fordace     Send New Private Message       Edit/Delete Post   Reply With Quote 
BRAVO Marnie.......thanks for all your help
Posts: 208 | From Hudson Valley, New York | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396

Icon 1 posted      Profile for lymemomtooo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Keep up the life saving work Marnie. I have been a cheerleader for you for a long time. I know someday that you and others will find the cure. lmt
Posts: 2360 | From SE PA | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
R62
LymeNet Contributor
Member # 18531

Icon 1 posted      Profile for R62     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you, Maureen. The Lightworks has a setting for nogiers that change every 4 minutes.. every 7 seconds would mean you can hit each point and get all nogiers in... wow.. that makes a difference.

Thanks so much... Robin

Posts: 861 | From USA | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067

Icon 1 posted      Profile for seekhelp     Send New Private Message       Edit/Delete Post   Reply With Quote 
Marnie, I realized I forgot to comment, but I just wanted to thank you for all the explanations and clarifications you provided since I started this thread! What you are doing to try to help a family member is so commendable.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
SuZ-Q
LymeNet Contributor
Member # 5903

Icon 1 posted      Profile for SuZ-Q     Send New Private Message       Edit/Delete Post   Reply With Quote 
Marnie,

I am thankful that you continue to post and to try to educate us. I admit that I don't always understand all the technicalities of your posts, but overall, I have learned a lot from you.

I was wondering what your thoughts are on heavy metal toxicity for those who have been treatment resistant (not improving on abx and supplements, Cowden, X-Cell Mag, etc.)? Do you think chelation plays any role in improving sypmtoms?
Just curious about your thoughts as we are about to go down this avenue for our child after 5+ years of treatment.

Thanks again for all you do to keep us informed. You're one of my heroes!

Suzy

Posts: 260 | From Virginia | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
maureen2174
LymeNet Contributor
Member # 11471

Icon 1 posted      Profile for maureen2174     Send New Private Message       Edit/Delete Post   Reply With Quote 
Robin,

That is exactly how I felt. I have the lightworks too, but really haven't used it much at all (so I cannot give you a comparison of the two machines).

I like keeping things simple and even though I have the biotensor, I prefer just using it on auto mode going through all of the frequencies. I am pretty lazy with this (have to admit- LOL) and don't feel like testing every point for a frequency, time, etc.

I have asked the question is frequency J okay to use and always get a yes, so I go with that!

Are you using lightworks? On nogier? with nosodes or without?

Posts: 871 | From NJ | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
R62
LymeNet Contributor
Member # 18531

Icon 1 posted      Profile for R62     Send New Private Message       Edit/Delete Post   Reply With Quote 
My daughter and I both used it on auto (running through the nogiers 4 minutes per cycle for 32 minutes I think) at navel area.. and I think we both herxed or at least had herx like symptoms post use.

She immediately.. same as her herx symptoms. But she said it made her feel good too.. although her legs were wobbly for most of the rest of the day.

She was on abx and lyme nosodes (complete co-infection concoction) at the time..

She later muscle tested with doctor that the LW was a 10 of 10 beneficial and 10 of 10 detrimental.. we assumed that meant a herx, but are not sure.

She tested to use it as we had.. (off abx and to wait 14 days after we stopped abx).. it was interesting because the doctor had no clue about LW, she just muscle tested.. which could also mean she didnt ask the right questions .. I have no clue.

Me.. I felt lousy for the day after.. possibly for a few days.. cant remember.. symptoms were worse after I used it.

I have not used it since nor has my daughter. I am afraid of it. I think 34 minutes on navel is too much.

She is still ingesting nosodes daily and I am just not sure about that with the light.. even though we are using the pulsed nogiers.. I also dont understand the diff between the pulsed nogiers and Dr. W's pulsed frequencies. They seem very similar to me.


I would like to be able to use it, and it really makes more sense to be able to pulse quickly through the nogiers to be able to hit the points with them all..

It would be great to be able to be lazy.:-)

Also, I've been thinking, if the nogiers did stir up more than the immune system can kill.. then when you rife, maybe you take care of that?

I'm also wondering about using it while on herbs when not using nosodes.. wouldn't the herbs help the immune system?

I have just used it on my lower back to relieve inflammation on inflammation setting and I think it helped..

Friends husband used it on a cut finger and it healed the next day.

Its a nice little machine for things like that..

Posts: 861 | From USA | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
SuZ-Q
LymeNet Contributor
Member # 5903

Icon 1 posted      Profile for SuZ-Q     Send New Private Message       Edit/Delete Post   Reply With Quote 
up
Posts: 260 | From Virginia | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.