LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Sleep meds - getting off

 - UBBFriend: Email this page to someone!    
Author Topic: Sleep meds - getting off
Faith6
LymeNet Contributor
Member # 14072

Icon 1 posted      Profile for Faith6     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm wondering if any of you who have treated for awhile have been able to get off sleep meds.

I was on Amitriptyline for over 15 years. My LLMD has switched me to Clonazepam, Ambien, Trazodone, and Tran-Q.

On the Amitriptyline I slept 10 or more hours a night and felt dozy much of the day.

Now I sleep a solid 8 hours and even dream again. I can only sleep 8 hours and still feel tired but not dozy and can't sleep more.

Have any of you recovered enough so that you don't need sleep meds anymore?

How long of treatment did it take?

Thanks,

Faith

--------------------
"His faithful love endures forever." Psalm 136

Posts: 189 | From MN | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
sixgoofykids
Moderator
Member # 11141

Icon 1 posted      Profile for sixgoofykids   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am weaning off them now. I used to take two Lyrica and either an Ambien or Lunesta with that. I took a couple months to wean off the Lyrica .... first I went down to one pill but took two pills if I didn't sleep well the night before. It took a week or two to get used to the lowered dose.

Once I was comfortably on one Lyrica per night (still with Ambien or Lunesta), I started taking one every other night. Eventually I went to every third night, then off completely.

When I adjusted to that, I started breaking the Ambien in half every other night. Now I only take half an Ambien to sleep.

I am having to adjust thyroid meds right now, so my thyroid is slightly hyper, which causes insomnia. Once I get my thyroid balanced again, I'll wean off that last half a pill, but for now, I'm just gonna stick with taking it because sleep is important.

I did have to get better before I could wean off sleep meds at all. No sense in trying too soon.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
randibear
Honored Contributor (10K+ posts)
Member # 11290

Icon 1 posted      Profile for randibear     Send New Private Message       Edit/Delete Post   Reply With Quote 
i had to stop the ambien. i was getting horrible horrible headaches, 24/7. i even talked of shooting myself, the pain was that bad. well i wouldn't but you get the point.

i was only taking 10 mg a night. i just went cold turkey. the first two nights were bad, jitters and some shaking...then it straightened out.

i'd rather be up all nigh than have that pain....

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-

I tried everything you listed - about 12 years ago - but my system just can't do most meds. Ultimately, magnesium and scullcap tincture turned out to work the best for me.

-

The pills you mentioned made me so sleepy during the day that I could barely stand up.

And, your having said that you sleep 8 hours but since you are still tired, need more. Well, it will not be until the lyme is further treated that energy will come back.

It's sad that after 8 hours, we do feel tired still. Some of that can be the "hangover" from sleep meds and some just from the way lyme works. Besides the toxins from infections, any added stress to the liver will add to fatigue.


Adrenal support (ashwaganda, cordyceps) should help with this. And, an after noon nap or frequent rests (even if not sleeping). Gentle exercise, too, will help.


Some do okay with ambien, but there have been many reports of severe effects.

This may help you avoid those:

www.nytimes.com/2006/03/14/business/14ambienbox.html?_r=1&scp=5&sq=ambien&st=cse&oref=slogin

Safeguards When Using Ambien

Doctors who have researched the drug Ambien and other sleeping pills make the following recommendations: . . . .

==


www.nytimes.com/2006/03/08/business/08ambien.html?scp=1&sq=ambien&st=cse

Some Sleeping Pill Users Range Far Beyond Bed


============

Be sure to avoid aspartame/Nutrasweet/Equal. Even a trace in a cough drop can "wire" your brain. MSG, too. Both are neuro- excito-toxins and create anxiety.

---

You might find some good suggestions at this thread:


http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/77321

Topic: NATURAL SLEEP - Links to articles & supplements

------

The best news for my sleep will be when Jay Leno moves an hour earlier. Yippee!


-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Faith6
LymeNet Contributor
Member # 14072

Icon 1 posted      Profile for Faith6     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks all,

I realize the risks with Ambien, but also my need for deep sleep.

If you were able to get off sleep meds how many years of treatment and healing did you go through before you you were able to start reducing and/or be totally off them?

--------------------
"His faithful love endures forever." Psalm 136

Posts: 189 | From MN | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
randibear
Honored Contributor (10K+ posts)
Member # 11290

Icon 1 posted      Profile for randibear     Send New Private Message       Edit/Delete Post   Reply With Quote 
i just thought of something. my friend uses nutramedix samento toa and swears that it helps her to sleep.

she's only taking about 3 drops a day right now but she swears it helps.

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
ElaineC
LymeNet Contributor
Member # 9857

Icon 1 posted      Profile for ElaineC     Send New Private Message       Edit/Delete Post   Reply With Quote 
Six - what dose of Lyrica were you taking? You said two tabs...but not the dose.

Did you find it helped FMS type pain as well??

Any side effects?

Posts: 261 | From Herx-ville!! | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
AnnaInga
Member
Member # 19162

Icon 1 posted      Profile for AnnaInga     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was on Ambien for 10 years and did not think I could ever sleep without it.

I am.

I noticed my generic was not the same quality as the brand....I was waking every 2 hours (in pain, as well).

I went off the Ambien, by halving the dose for a few nights, and I did not sleep at all. Then going off totally.

I am 3 months out now. I sleep the night most nights unless in a lot of pain.

Going off any drug is never easy. Just make sure you know if a wean is necessary or a cold turkey possible. It is best to ask the doctor.

I don't think I metabolize drugs normally, so it is hard to compare my experience to others.

Posts: 11 | From Great Lakes | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
sixgoofykids
Moderator
Member # 11141

Icon 1 posted      Profile for sixgoofykids   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I don't remember .... 100mg maybe?

Yes it did help, but I didn't take it during the day. I never asked for the daytime dosage.

I didn't have any side effects, except it helped me sleep GREAT!

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
ElaineC
LymeNet Contributor
Member # 9857

Icon 1 posted      Profile for ElaineC     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks Six! [Smile]
Posts: 261 | From Herx-ville!! | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
Faith6
LymeNet Contributor
Member # 14072

Icon 1 posted      Profile for Faith6     Send New Private Message       Edit/Delete Post   Reply With Quote 
AnnaInga-

When did you start Lyme treatment? Did you improve enough so you could sleep on your own?

My Ambien is the generic so maybe it's not working as well.

I wonder if the sleep walking with Anmien is as much a problem with the generic. Anyone know?

--------------------
"His faithful love endures forever." Psalm 136

Posts: 189 | From MN | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Faith6
LymeNet Contributor
Member # 14072

Icon 1 posted      Profile for Faith6     Send New Private Message       Edit/Delete Post   Reply With Quote 
Six-

How long have you been treating Lyme?

--------------------
"His faithful love endures forever." Psalm 136

Posts: 189 | From MN | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
sunshinyday
LymeNet Contributor
Member # 14337

Icon 1 posted      Profile for sunshinyday     Send New Private Message       Edit/Delete Post   Reply With Quote 
I take dual release melatonin and Holy Basil.

The Holy Basil helps stop the cortisol reaction which is one of the things that can keep us awake.

Wixhing you well.

Gail

--------------------
Gail

Posts: 234 | From Sterling, Ma | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215

Icon 1 posted      Profile for lymeHerx001     Send New Private Message       Edit/Delete Post   Reply With Quote 
always had a problem with sleep. Always will.

Mattress, noise, pills.
Yes, lots of revolving pills to sleep.

Always ambien to lull me to sleep. XANAX too!!!!!

Better sleep is worth anything else!

Posts: 2905 | From New England | Registered: Sep 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.