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» LymeNet Flash » Questions and Discussion » Medical Questions » my husband died - please help (Page 1)

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Author Topic: my husband died - please help
smjkoj
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My husband died Thursday night in his sleep. I would like to set up a fund for people to make donations to. Can someone please tell me the best organization for this - Lyme Disease Assocation? And how I need to do this?

Thank you for your help. I'm sure I could find this, but I'm a mess right now.

Thank you.

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Dekrator48
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Hi smjkoj,

I am so very sorry for the loss of your husband. You must be so overwhelmed right now.

I think the lyme disease association is one of the best from what I can see.

It is very kind of you to think of this at such a difficult time.

God Bless, you will be in my thoughts and prayers.

Take care.

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

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scared08
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Oh bless your heart, I can't tell you how sorry I am. I know that doesn't make it any easier for you, but please know that we are all here for you. Please use us to lean on and talk too---oh honey I'm sorry.

God bless you for wanting to do this! My guess is this is exactly what he would want and is smiling with pride upon you. May God be with you and yours always, but especially in your time of need.

My response I guess would be the same as Dekrater. I have wanted to start something like this for years, but like you; I'm not sure how to start it also. Ya know, if I remember right and I could be totally mistaken--------but Dr. Jones in CT. started a fund for children with Lyme. The whole office is very sweet and maybe helpful with some suggestions???

I don't know and I'm sorry, but I think these 2 places would be a good place to start. If we can help in anyway, PLEASE let us know by posting of PMing us.

God bless you dear. You and yours will certainly be in my prayers.

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Tracy9
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How horrible for you, I am so very sorry.

I think Dr. Jones Legal Fund and Turn the Corner Foundation are excellent possibilities as well. I believe the Turn the Corner Foundation funds the Lyme Aid for Kids.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

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imagine2
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Oh, smijkog,
My family and I join together in sending you our deepest sympathies in the loss of your husband. Our hearts are with you and wish you comfort and support in every way possible.

God Bless.

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seekhelp
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I am so sorry about this and offer my deepest condolensces.
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randibear
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i will grieve with you. i am so very sorry for your loss.

if there's anything we can do here, i am sure all of us will be willing to help.

--------------------
do not look back when the only course is forward

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cactus
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I am so, so sorry for the loss of your husband. There are just no words to express the sympathy and concern we're all feeling for you.

Please do come here to talk, and lean on us.

My husband and I have discussed making donations to LDA and to ILADS. ILADS is the first choice.

Here is their page about donations: http://tinyurl.com/dnhjkx

If you need assistance with any of the specifics, many here will be honored to help you in any way we can.

--------------------
Did you ever stop to think, and forget to start again? - A.A. Milne

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Vermont_Lymie
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My deepest sympathy for your loss of your husband. It is very kind of you to think of helping others at this time.
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sunshinyday
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I'm so very sorry for your tremendous loss. It is so good of you to think of others today.

My sincere condolences and prayers are with you.

Gail

--------------------
Gail

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TerryK
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smj,
My deepest sympathies to you and your family. I'm so sorry that your husband has lost his life and that you are without him. [Frown]

Here are some links that should help you with your question about donations.

http://www.lymediseaseassociation.org/Donations.html
http://www.ilads.org/forms/donations.html
http://www.turnthecorner.org/donatenow.htm
http://www.columbia-lyme.org/donate.html

Please consider sending an e-mail to Melanie with information so that your husband can be put on the Lyme memorial pages.
Melanie's e-mail address
[email protected]

The memorial website
http://www.lymememorial.org/index.htm

You may want to contact your State lyme group to get some direction. Here are some links to Virginia groups.
http://www.lymenet.org/SupportGroups/UnitedStates/Virginia/

Please let us know if there is anything we can do for you.

Terry

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kelmo
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How hard. So sorry for your loss. May God protect and provide.

Kelmo

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feelfit
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I sit here with tears rolling down my face at your loss. My sincerest sympathies to you and your family.

When will it end?

Please do consider adding your husbands name to the Lyme Memorial. And from all of us in the Lyme Community, sincerest thanks for the thought of donations at this difficult time.

God Bless,
Feelfit

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Peedie
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I'm so sorry for your loss. May God be with you now and always.
-peedie

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dmc
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My condolences for your loss. May you find strength through your faith, family & friends.
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Starfall1969
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I am so sorry for your loss.

As others have said, please come and lean on us as much as you need to.

May God bless you and comfort you now and always.

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tdtid
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smjkoj,

I am so very sorry to hear about your loss.

Others have given you links to the very best options.

My thoughts and prayers go out to you.

Cathy

--------------------
"To Dream The Impossible Dream" Man of La Mancha

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sixgoofykids
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I am so sorry for your loss. I'm beyond words .....

--------------------
sixgoofykids.blogspot.com

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johnnylight
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Me too! i am very sorry for your loss, i will keep fighting for all future and past Lymies, that this doesn't have to happen to others.
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glm1111
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May you find peace through this difficult time.

I am so sorry that you are having to endure the tragic loss of your husband,


Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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kreynolds
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I am so sorry for your loss.... My thoughts and prayers are with you and your family...

--------------------
Diagnosed CDC + 6/2007

Quest: + IGG Bands 18,23,39,41,58,66 and 93.

Quest: + IGM Bands
23,39

Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease

+ Biofilm blood test 12/2010

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hcconn22
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We are all very sorry to hear of your loss.

Just curious will there be any autopsy and if so will that look at infectious diseases such as Lyme, Babesia etc.

In the end this may be your greatest contribution-- is the truth of why your husband died.

It is well known that people have had strokes and heart failure from Lyme and Babesia.

God Bless you and your family.

--------------------
Positive 10 bands WB IGG & IGM
+ Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest

And still positive ELISA and WB two years after IV treatment
http://www.lymefriends.org/profile/blake

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bettyg
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her recent update on her husband:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/77396

smj.... [group hug] [kiss]

my heartfelt sympathies to you on the SUDDEN loss of your beloved husband!! wow, he went so soon after your update 10 days ago!

the above have given what i would have suggested too. if you decide to go with the LDA, you can also

email PRES. PAT SMITH, [email protected]


i'll enclose my sympathy poem collection to help you thru your deep loss, sorrow, and grieving period; may you find some that really touch your heart as they have me.

i think the I'M FREE AT LAST would be so appropriate for a chronic lyme death for all we've been thru over the years.


``SYMPATHY'' POEM COLLECTION by Betty G
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=014207


12.07 from COBWEB CAROL; LOSS OF A LOVED ONE! this website for any who may need comfort during this Holiday Season:

www.compassionatefriends.org


May God comfort you now and in the days, months, and years ahead.

When you are really missing your husband, play a tape, cd/dvd of him in to hear their voices, laughter, and watching their gestures and mannerisms. [group hug] [kiss]


BUT 1ST MAKE COPIES OF ORIGINAL when the other one gets worn out so you don't lose everything.

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Lymetoo
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My condolences in your terrible loss. Thank you for thinking of others at this time. The donations will be well received and much needed.

Prayers and love for you and your family.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Geneal
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Sending prayers and Angels to hold and comfort you.

So sorry.

Hugs,

Geneal

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Ocean
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I'm so sorry... I am also sending healing prayers for you.

God bless you,

Ocean

--------------------
http://www.healingfromlymedisease.blogspot.com/

Sick since 1996...Diagnosed 10/2008

IgM:23-25 IND, 31+++, 39 IND, 41 +++
IgG: 31 IND, 41++, 58+

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lymednva
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So sorry to hear of your loss. Another group to consider in the DC area is NatCapLyme. www.natcaplyme.org.

--------------------
Lymednva

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lymielauren28
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I'm so sorry for the loss of your husband...sending love and prayers for you and your family during this difficult time.

Lauren

--------------------
"The only way out is through"

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lakes592
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So sorry to hear this and so saddened for your loss. I will keep you and your family in my thoughts and prayers.

--------------------
If you keep doing nothing...nothing changes!

www.underourskin.com

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Radha
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even though i dont know you, i am so sorry you are going thru such pain now and i hope you have support during this terrible time,
Radha

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Lyra
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I am so sorry for your loss. My thoughts are with you!
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1Bitten2XShy
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I too am deeply sorry for your loss. I pray for you to have the strength you need.
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KS
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I too am so sorry for your loss and the pain you are feeling. You are in my thoughts and prayers.
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karatelady
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Been thinking of you a lot! So sorry you are going through this.
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jlc
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I am so sorry for your loss... my prayers are with you and your family during this extremely difficult time.
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JKMMC09
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I am deeply sorry for the loss of your beloved husband. You are in my thoughts and prayers. God Bless!
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lymeinhell
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My deepest sympathy for your loss. Thank you for thinking of others at this time.

Keep him in your heart and he will be with you always.

We're all here for you.

--------------------
Julie
_ _ ___ _ _
lymeinhell

Blessed are those who expect nothing, for they shall not be disappointed.

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dontlikeliver
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I don't come to Lymenet much, but logged on and first post I saw was yours.......... I'm so very sorry for your loss. Tragic. [Frown]

Take care of yourself.

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SuZ-Q
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I am so sorry for your loss. Please accept my deepest sympathies and know that you will remain in my thoughts and prayers.

Suzy

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METALLlC BLUE
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This is for you.

http://www.youtube.com/watch?v=qRPawS_4wY4

Written by Jon Foreman Of Switchfoot:

The flowers cut and brought inside
Black cars in a single line
Your family in suits and ties
And you're free

The ache I feel inside
Is where the life has left your eyes
I'm alone for our last goodbye
But you're free

I remember you like yesterday
Yesterday
I still can't believe you're gone
Oh I remember you like yesterday
Yesterday
And until I'm with you, I carry on

Adrift on your ocean floor
I feel weightless numb and sore
A part of you and me is torn
You're free

I woke from a dream last night
I dreamt that you were by my side
Reminding me I still had life
In me

I remember you like yesterday
Yesterday
I still can't believe you're gone
Oh I remember you like yesterday
Yesterday
And until I'm with you, I carry on

I'll carry on, I'll carry on

Every lament is a love song
Yesterday, yesterday
I still can't believe you're gone

Every lament is a love song
Yesterday, yesterday
So long my friend, so long

--------------------
I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.

E-mail: [email protected]

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map1131
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I'm so sorry for your loss. May you find the strength needed to get you and yours through the next several days.

May this be a foot prints in the sand experience.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

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mtree
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..I am so sorry for your loss..

my thoughts and prayers to you and your family...

[group hug] mtree

--------------------
worrying about tomorrow takes its strength away from today

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kam
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Ouch
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lymephobic
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So very sorry for your loss...

Sending prayers your way...

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Melanie Reber
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My most sincere and heartfelt condolences on your loss SMJ. My God's love surround and blanket you during this most difficult time.

My very best,
Melanie

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Geet3721
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I am so sorry for your loss. Bless you and your family!

--------------------
When the going gets tough. . . I'll keep fighting!
Ms. Geet3721

New LLMD, New abx, New life coming right up!!!!

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adamm
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I am so sorry to hear this. You have my best wishes.
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Julie F.
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I am so sorry to hear about the loss of your husband. I will be keeping you and your family in my thoughts.
Posts: 67 | From SF Bay Area | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
steve1906
Frequent Contributor (1K+ posts)
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My condolences! Sorry for your loss.

Take care of yourself; and if you need to talk to someone don't forget, were always here for you!!!

You can PM me anytime if you'd like too.

Take Care,
Steve

--------------------
Everything I say is just my opinion!

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kbridal
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I'm so terribly sorry for your loss on your husband. We will keep you in our prayers and thoughts daily. God's Blessings!
Posts: 6 | From Ingleside, IL | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
tickssuck
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I just don't have any words to convey my deepest sympathies. I'm so terribly sorry. TS
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beths
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So sorry for your loss at this time. We'll keep you in our prayers
Posts: 1276 | From maryland | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
pab
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I'm so sorry to hear of the loss of your husband. I will keep you in my thoughts and prayers.

--------------------
Peggy

~ ~ Hope is a powerful medicine. ~ ~

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Tincup
Honored Contributor (10K+ posts)
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My most sincere and heartfelt condolences dear one.

May God be with you during this most difficult time.

Prayers going your way!


[group hug]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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sparkle7
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I hope in time your heart will heal. I'm so sorry for your loss. My condolences...
Posts: 7772 | From Northeast, again... | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
bettyg
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mike, those were beautiful words in the song above you posted. [Smile] xox
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2roads
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So sorry to hear this.

We prey for your peace and strength at this trying time.

Thank-you for thinking of our Lyme community in honor and remembrance of your husband.


God Bless You-


Greta

[group hug]

Posts: 2214 | From West Chester, PA | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
rmruss
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Sorry to hear of your loss.

You may want to consider donating to:

John Drulle, M.D. Memorial Lyme Fund, Inc.
702 Brewers Bridge Road, Suite 2
Jackson, New Jersey 08527-2343

The John Drulle, M.D. Memorial Lyme Fund, Inc. (JDMLF) is:

A non-profit 501(c)3 organization, established in late 2005.

An organization consisting entirely of volunteers who have experienced first-hand the suffering and life-altering effects of Lyme disease.

An organization whose mission is to reduce the incidence of tick-borne disease through grassroots outreach in New Jersey and the surrounding area.

Dedicated solely to education, prevention and research of tick-borne illnesses.

Committed to raising funds, with all proceeds going towards our purpose.

Always grateful for your support of time, talent and donations.


www.johndrullelymefund.org

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DakotasMom01
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So sorry to hear of your loss.

--------------------
Take Care,
DakotasMom01

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peacemama
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So, so sorry. My thoughts are with you, and will continue to be.
Posts: 564 | From Tick Hell | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
lymeladyinNY
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I'm so, so sorry to learn of your loss. My heart grieves for you. God bless you and your family as you deal with this.

- Lymelady

--------------------
I want to be free

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njgirl14
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I am so sorry for your loss of your husband. This disease is terrible. You are courageous to want to do something positive so soon to honor him. You are in my thoughts and prayers.
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disturbedme
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I'm so, so sorry. :-( This breaks my heart. You and your family will be in my prayers.

I would like to post this. It's beautiful and reading it made me tear up:


You can shed tears that he is gone,
or you can smile because he has lived.
You can close your eyes and pray that he'll come back,
or you can open your eyes and see all he's left.
Your heart can be empty because you can't see him,
or you can be full of the love you shared.
You can turn your back on tomorrow and live yesterday,
or you can be happy for tomorrow because of yesterday.
You can remember him, only that he is gone,
or you can cherish his memory and let it live on.
You can cry and close your mind,
be empty and turn your back
Or you can do what he'd want:
smile, open your eyes, love, and go on.
~ David Harkins

--------------------
One can never consent to creep when one feels an impulse to soar.
~ Helen Keller

My Lyme Story

Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007  |  IP: Logged | Report this post to a Moderator
Boomerang
Frequent Contributor (1K+ posts)
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So sorry to hear of your loss. May God Bless you and your family.
Posts: 1366 | From Southeast | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
scared08
LymeNet Contributor
Member # 14695

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Has anyone heard from SMJ???? I have come back to this tread at least 10 times since last night. It is really worring me and I don't know why (other than the obvious)???!!!!

Mettalic Blue----beautiful!!!!!

Disturbedme---very nice.


If anyone has had contact with her, please PM me or post it??? If anyone hears about a fund, or if the is a memorial site posted for him; would you mind PMing me please????

I just remembered that this is my last night on my week break from tx and have to start all abx. back tomorrow. So I'm afraid of not be able to look at the comp. for a while, but I can see PM's from my phone as it is not as bright.

God Bless

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bettyg
Unregistered


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i figure tonight was perhaps visitation and tomorrow funeral, etc.

i'm sure she will post as soon as she feels up to it unloading all the grief/stress she has been going thru since this happened suddenly.


come back when YOU FEEL UP TO IT; we're always here for you. [Smile] [group hug] [kiss]

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scared08
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Thank you Bettyg!!!!

It's been about two hours since I posted and I can't sleep. I keep getting angry, then crying. I then go to all of the sites posted to reads about yhe IDSA guidelines and all suggestions on how and what to address in a letter.

Them I try to compswe a letter and I CAN'T!!!!!!!!! I can't seem to put my thoghts, my words,-----can't even strat it!!!!!!!!!!! WHY???!!!

I'm sorry its just that I;m so upset right now, but i know complaining doesn't help any. It's just that there was a time that I cuold write a porfessional letter, abfter staying up all night doing research to back the letter. Now----I'ts hard to post right now.

I hate waht is happening to people. And most want to uren their heads to it all untill they have a faimly member orf them themselves are infected. Why!!!!??????? I honestly don't understa nd!

Some say money-----------sorry, cant' except that one. There is no amount of mon ey can replace a lost life ofr quility of life.

Polotics-----Nope, I can't except that either!!! Bavere has there been a time when all agree on any one issuse.

Oh I'm sorry, i can see all of the mistakes im making but i can't correct them right now.

Betty----Please pray that the Lord will opens the eves of so many woh are responsa ble or have a pert in patients not being diagnosed right, having correct treatment,---yhou know.

God bless you all

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Robin123
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Sorry for your great loss. Wishing you lots of support in the days to come.
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njlymemom
LymeNet Contributor
Member # 15088

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I am so very sorry, what a tragic loss. Please accept my heartfelt condolences.

How kind of you to think of others at this time. You are in our prayers.

--------------------
This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.


The shortest way to do many things is to do only one thing at a time.

cb

Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
Cockapoo1996
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So sorry for you and your family.
Posts: 472 | From New Jersey | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
nenet
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I'm so sorry smjkoj.

I wish you and your loved ones warmth, comfort, and peace.

--------------------
Dr. C's Western Blot Explanation

Lymenet Success Stories

ILADS Treatment Guidelines

Medical & Scientific Literature on Lyme

"Long-Term Antibiotic Therapy Improves Persistent Symptoms Associated with Lyme Disease"

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nomoremuscles
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I'm very for your loss. This illness steals everything piece by piece till there there's nothing left. Then it takes the rest.

My best to you and your family in this awful time.

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liesandmorelies
LymeNet Contributor
Member # 15323

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I am thinking of you and your family. This is just so very sad and we are all thinking of you and lifting you up in prayer.

I pray your pain will ease with time and you will forever be filled with only the good memories of you and your husbands life together.

--------------------
aka: Lyme Warrior

In order to do "real" science, you have to have a "real" conversation with nature.

Well Behaved Women Rarely Make History!

"Just Demand your Rights"

Posts: 869 | From nor - cal | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
sutherngrl
Frequent Contributor (1K+ posts)
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So sorry for your lose. I am praying for you and your family during this very hard time.
Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
smjkoj
Member
Member # 15241

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To my friends,

You all are such a blessing. Thank you for these words. I will read them again later on because everything is just a haze for me. I'm still in disbelief and the heartache is unimaginable. You know what Karl was going through, though. I know he is free of his messed up body and is healthy and whole again.

Karl was only 34. Way to young to die. He started with this in January 2008. Never did we think he would be dead a year later.

I'm going to keep fighting this fight for him because no one deserves this. They did an autopsy and found no cause. They are now doing toxicology. It's such a nightmare because I want to scream at them what the cause is, but they will never listen.

I will post the obituary notice. His funeral is scheduled for this Saturday. His parents were on vacation and I had to wait until they could get flights back to plan anything.

Peace be with you.

In Memory of Karl Joedicke
July 30, 1974 - February 20, 2009

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