turtle, there are posts on this in activism, medical, and support.
here's latest one i sent:
FOR IDSA DRS:
1. Why with all the patents/grant $$ you've gotten, have you NOT come up with a 100% accurate lyme test for patients? UNACCEPTABLE. 2. Also some of your clinical studies have gone on for 10-20 years; no results from what I remember awhile back when I studied them. UNACCEPTABLE. 3. Where did you come up with the screwy 3 wks. MAX antibiotics where some of the IDSA drs. have stated it was NOT ENOUGH to cure? 4. Now many of you are promoting the ONE PILL, YOU WILL BE CURED ANTIBIOTICS! Some of our lyme members have told us this on the lyme boards; disgusting!
TO ALL THE DRS:
1. Do you treat lyme disease or the CO-INFECTIONS 1st? 2. ALL CO-INFECTIONS or just 1 at a time? 3. I can not grasp why ALL DRS. can't work together on this and get lyme disease and co-infections under control. There are many brilliant minds out there, but they are working against each other in my humble opinion. 4. WHO IS IT HURTING THE MOST? US WITH LYME/CO-INFECTIONS!
What will it eventually take for the insurance companies to give us the SAME RESPECT and REIMBURSE US FOR REASONABLE EXPENSES as they do all cancer, aids, and HIV patients?
That's the thing we hate the most!! 100% out of pocket where majority of lyme patients have lost EVERYTHING due to the high costs of treating lyme because INFECTIOUS DRS. did not treat us LONG ENOUGH on antibiotics for months and up to years vs. their 3 wks. MAXIMUM!! UNACCEPTABLE.
Something doesn't make sense. Maybe it is just me, but if they are taping next week, it seems to me that they already know the parameters of what they will be featuring regarding stories.
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
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