posted
turtle, there are posts on this in activism, medical, and support.
here's latest one i sent:
FOR IDSA DRS:
1. Why with all the patents/grant $$ you've gotten, have you NOT come up with a 100% accurate lyme test for patients? UNACCEPTABLE. 2. Also some of your clinical studies have gone on for 10-20 years; no results from what I remember awhile back when I studied them. UNACCEPTABLE. 3. Where did you come up with the screwy 3 wks. MAX antibiotics where some of the IDSA drs. have stated it was NOT ENOUGH to cure? 4. Now many of you are promoting the ONE PILL, YOU WILL BE CURED ANTIBIOTICS! Some of our lyme members have told us this on the lyme boards; disgusting!
TO ALL THE DRS:
1. Do you treat lyme disease or the CO-INFECTIONS 1st? 2. ALL CO-INFECTIONS or just 1 at a time? 3. I can not grasp why ALL DRS. can't work together on this and get lyme disease and co-infections under control. There are many brilliant minds out there, but they are working against each other in my humble opinion. 4. WHO IS IT HURTING THE MOST? US WITH LYME/CO-INFECTIONS!
What will it eventually take for the insurance companies to give us the SAME RESPECT and REIMBURSE US FOR REASONABLE EXPENSES as they do all cancer, aids, and HIV patients?
That's the thing we hate the most!! 100% out of pocket where majority of lyme patients have lost EVERYTHING due to the high costs of treating lyme because INFECTIOUS DRS. did not treat us LONG ENOUGH on antibiotics for months and up to years vs. their 3 wks. MAXIMUM!! UNACCEPTABLE.
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
I sent mine. Thanks. They don't limit the words.
Posts: 2903 | From AZ | Registered: Feb 2006
| IP: Logged |
bettyg
Unregistered
posted
only 19 posted so far.
i also just emailed andy wilson, UOS to ask when they will be taping the show and the channel it will be on since some folks are confused on how to find it.
IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
why don't we just refer them to the oprah link?
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13710 | From new england | Registered: Feb 2004
| IP: Logged |
kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
More people need to post...
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
| IP: Logged |
posted
Something doesn't make sense. Maybe it is just me, but if they are taping next week, it seems to me that they already know the parameters of what they will be featuring regarding stories.
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic