Can anyone offer low-cost (or insurance coverable) ways to treat that at least might keep things from progressing?
My original dx was lyme. I turned up w/ a positive babs just recently (after 7 years treatment), but it's negative again on my last test.
My symptoms are mostly pain (joint, soft tissue, and nerve; started in one arm and upper back but have progressed so that it's all over).
I guess I have some neuro problems as well, but not primarily or as bad as others describe here.
I've been through a lot of treatment over the past seven years, and at this point everything my LLMD is doing (except partial reimbursement for the actual visit) is out of pocket (25 supplements and naturopathic IVs).
It's possible I'm feeling *very* subtle progress from this treatment, but I also just took two months medical leave for the first time and started seeing a therapist, so who knows?
Without a guarantee that this course of treatment will be the thing that finally works, I just can't do it any more.
Before this I had the following treatments, and so far the only thing I can say with any certainty has made a difference is regular doses of pain meds:
-numerous oral abx (penicillin, cipro, doxy, augmentin...sorry, can't remember the rest right now) -two rounds of IV rocephin (2nd stopped b/c of hospitalization for c. diff.) -tonsillectomy and sinus surgery -removal of amalgam fillings and mercury detox - homeopathic "Dutch" protocol for lyme and other homeopathic remedies -various forms of body work (phys. therapy, cranial sacral, acupuncture, chiropractic)
That list is too short but I just can't remember everything else right now...I'm operating, as usual, on less than 5 hours sleep (have had sleep studies, tried numerous meds, including supplements to fix adrenals, etc.)
I think my LLMD is great. But I feel that I need to quit the LLMD route at this point. I just have to get my "life" back and stop the slide into financial ruin. I think the stress this is causing is outweighing the benefits.
(This crisis is somewhat being triggered, btw, by finding out I can't refinance, again, for more $ for treatment b/c of the loss in value of my home.)
Sorry, I know this sounds grim and complaining...and I hope I'm not scaring any newer members (remember, we're all different!).
Thanks for reading and for any help.
Posts: 343 | From Northern VA | Registered: Oct 2004
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Ill simply say that perhaps you need to sit down with a pc of paper and write down all of your concerns and thoughts. Write down all health concerns, all financial concerns, all family issues, drs issues, isurance stuff, etc, etc.. then go through your list and determine what things you can change, and what things you cant.
For the lyme, it may be best to start over, start fresh with a new approach, a new llmd, or at least reexamine what trx you're doing currently. I saw the different things you were taking, but how close does that follow Dr.Bs protocols?
I think if you look at too many things all at once it can get a litte overwhelming, and then you lose hope, and stress only makes your immune system worse. Focus on the positives of getting proper treatment if you can afford it. That means not only abx, but also supplements to boost the immune system.
As for the other areas, financial for example, again sit down and budget and figure out what you can and cant afford, and when it comes to the housing stuff, its a mess, and you're not alone, and again, try not to let the financial stuff creep into your health issues. Write down your thoughts, and if you cant change them, then either seek help or learn to let it go.
If you look at too many things all at the same time, its going to depress you. Focus on the little things you can do something about, and build up from there...
Posts: 514 | From . | Registered: Apr 2008
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Frequent Contributor (1K+ posts)
Member # 9984
You can buy a Rife machine once and use it to treat Lyme for a lifetime if that is needed.
It is still my wife's main treatment. It is the one treatment that does not seem to bother her with long term use. It also has brought her back to functional from pretty bad arthritis symptoms.