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» LymeNet Flash » Questions and Discussion » Medical Questions » please help..borderline rx from stonybrook..what does that mean?

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Author Topic: please help..borderline rx from stonybrook..what does that mean?
nomolyme
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i hope he is eating his words right now..he was SO SURE I DIDNT HAVE LYME AND THAT I WAS NUTS.... ok now i am going nuts..

..all other disease s they say u have it or u dont....is it just lyme that says u r borderline?

well i have heard of bordERLine diabetes ..but ure not in pain 24/7 with diabetes..

please feedback...he is going to rx 100mg doxy for 5 months 2x a day so i guess hes not THAT BAD.. BUT STILL I IF I TESTED NEG HE WOULD HAVE LAUGHeD IN MY FACE..

[ 04-14-2009, 03:49 PM: Message edited by: nomolyme ]

Posts: 92 | From bethel, ny | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
hurtingramma
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I don't believe there can be such as thing as borderline lyme. You either have it or you don't. If there's any question about it being borderline - then you most likely have it.

Can you post the results and others can help you interpret them?

100 mg of doxy is not sufficient!

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Posts: 938 | From Northeast Kingdom Vermont | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
nomolyme
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well i dint get the results they told me over the phone...ill call them back now and ask them to fax it..thanks
Posts: 92 | From bethel, ny | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
nomolyme
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please get back to me about this also does lyme bring on diabetes by glucose in 101 is that good or bad..dr dint say
Posts: 92 | From bethel, ny | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
whatayear
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101 could be borderline if it were a fasting glucose they like to see it between 80-90 but if this was after a meal your fine!
Posts: 229 | From front royal, VA | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
'Kete-tracker
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NO SEROLOGICAL TEST CAN CONFIRM LYME INFECTION OR RULE OUT LYME INFECTION. LYME IS A CLINICAL DIAGNOSIS, nomolyme. EVEN THE CDC SAYS SO!
A BORDERLINE RESULT *USUALLY* MEANS A "COUPLE" LYME-SPECIFIC BANDS ARE + OR "IND"[ICATED] ON A WESTERN BLOT TEST.
WELL... How do you suppose even ONE Lyme-specific band is + , unless you were exposed to Borrelia Burgdorferi?

100mg b.i.d. is NOT enough to get better from Lyme! I should know.(As do MANY here at Lymenet) That's what I was initailly put on. I herxed, I got somewhat better... then I just stayed the same- tired, achey, & never able to sleep well.
YOU NEED TO GO SEE AN LLMD. PERIOD .

I did. I was put on higher levels & then switched to a different family of abx. I got better...& so can you. Don't beat around the bush. If your doc is not keen on following ILADS guidelines, FIND ANOTHER DOC!

Posts: 1233 | From Dover, NH | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
METALLlC BLUE
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We would need to see the actual test itself, or at least the numbers to be able to help.

Kete-tracker is correct about everything:

  • Lyme Is A Clinical Diagnosis. Do not rely on testing for absolute proof for or against Lyme
    -
  • If you had a borderline result from Stonybrook, then further testing could be done to solidify the diagnosis through Igenex. Igenex test 188 and 189 are for their Western Blot. You can compare tests if you have a Stonybrook WB.
    -
  • 100mg x 2 is "not" enough even for 5 months.
    -
  • It's time to visit a Literate Lyme And Associated Disease Health Care Provider and or an LLMD"
    -
  • ILADS guidelines are a must. Ask if doctors follow them. If no, don't continue under their care.

Nothing new repeated here. Listen to Kete-tracker.

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I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.

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Hoosiers51
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I think there is a "borderline" option for the ELISA, which lots of labs will run. I would definitely be treating if I had that come up borderline and I had symptoms.

If he wants to follow up with more testing later, I would insist on doing it with Stony Brook again and not Lab Corp or whatever. Just tell him/her you want to keep things consistent. I generally trust Stony Brook, though Igenex is probably better for most people, but I have had positives from Stony Brook.

200mg total per day of Doxy might not be enough, I can't remember....check out Dr. B's guidelines when you have time.

Maybe it's enough, maybe it's not, honestly can't remember, so I don't want to mislead you...just check those guidelines!

Best of luck to you!

Posts: 4590 | From Midwest | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
   

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