LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Lyme Children and Urinary and bowel issues

 - UBBFriend: Email this page to someone!    
Author Topic: Lyme Children and Urinary and bowel issues
DJP
LymeNet Contributor
Member # 5893

Icon 1 posted      Profile for DJP     Send New Private Message       Edit/Delete Post   Reply With Quote 
My now 5 year old was treated with 3 mos of antibiotics when she was about 15 mos old for Lyme. She had a positive Urine PCR.

I breastfed her for 14mos before realizing I had Lyme disease and she "probably" got Lyme this way.

Anyhow, I'm wondering if anyone else or their children have the following issues. She has been on Miralax since she was a toddler because she would hold her bowel movements.

She also is having problems urinating. I have brought her to her regular ped and she never has a urinary tract infection. She goes into the bathroom frequently and crys because she says she has to pee and nothing comes out. This seems to come and go. She never has a fever with it or any pain.

I have noticed it maybe related to the Miralax and if we forget to give it to her. We think she gets constipated and can't tell whether she has to pee or poop.

Anyhow, I'm wonder if Lyme could be affecting some nerve that controls these functions. Has anybody read anything on this?

She also has sensory integration issues which may all be related with bowel movements and urinary issues.

I know...it's probably time to talk to Dr. J and I think I will bring her to a urinary specialist as well as have her evaluated on the sensory issues.

Posts: 441 | From USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
jkmom
LymeNet Contributor
Member # 14004

Icon 1 posted      Profile for jkmom     Send New Private Message       Edit/Delete Post   Reply With Quote 
My 11 year old daughter with Lyme has the problem with urinating sometimes. She has never had a UTI either. Her PCP thinks it is because she doesn't drink enough and she has microscopic crystals.

It's true that my daughter doesn't drink enough so this might be the case. It comes and goes for her and usually doesn't last for too many days. We will probably get a sonogram done if/when it happens again.

Have you tried the gluten free diet with your daughter? Based on my own experience, I tend to think that children who hold their bowel movements might actually be constipated from gluten intolerance.

Posts: 984 | From US | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
hshbmom
Frequent Contributor (1K+ posts)
Member # 9478

Icon 1 posted      Profile for hshbmom     Send New Private Message       Edit/Delete Post   Reply With Quote 
Here's my Mom-to-Mom experience...not medical advice:


Urinary hesitancy is the slowness of the body to release urine. Females, you feel the urge to urinate, then get on the pot, but have to wait and wait for the urine to flow. This can be a neurological problem associated with Lyme disease.


If your daughter had a urinary tract infection she would have an increased frequency of urination. It sounds like she feels the need to urinate more frequently than usual, but is unable to produce the urine stream. This could be due to nerve control of the bladder.


This sounds like it could lead to retention of urine, which in turn can lead to a urinary tract infection. Could she have a silent UTI?


Miralax/PEG solution/Go-Lytely is a good medication to help prevent constipation that frequently accompanies Lyme disease.


When you relax to have a bowel movement you also relax the muscles controlling urination, so they are related in that sense.


I wonder if she was holding her bowel movements as a child, or just couldn't get it moving? That happens frequently with Lyme.


You know you have to go; you try to initiate a BM, but it just won't come out.


It does sound as though it's time for a referral to a pediatric urologist. They can do some "pee tests" to see if the nerves are the cause of the problem.

Posts: 1672 | From AL/WV/OH | Registered: Jun 2006  |  IP: Logged | Report this post to a Moderator
DJP
LymeNet Contributor
Member # 5893

Icon 1 posted      Profile for DJP     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks jkmom - I'll look into a gluten free diet.

hshbmom -Thanks, I will contact a pediatric urologist to see if it is a nerve issue. She feels the urge to pee more frequently, but is unable to produce the urine stream. And...maybe that is causing a silent UTI...she has been complaining about her side hurting every now and then.
As far as the pooping, I'm not sure how that all started. She does have a problem getting it to move if she is not taking the miralax.
Thanks!

Posts: 441 | From USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
Amy C
LymeNet Contributor
Member # 19297

Icon 1 posted      Profile for Amy C     Send New Private Message       Edit/Delete Post   Reply With Quote 
My 10 yr old has Lyme and has problem with both of these things. He is always constipated. He takes fiber pills every day. Then a few weeks ago he couldn't go at all for a few days. I had to buy 2 different laxative type things to help him.

Also the same urinary problem you describe he started getting a few months ago. It comes and goes. For awhile it was so bad I had to put him on a medical leave from school!

--------------------
My lyme disease blog:
http://lymetimes3.blogspot.com/
One BIG Lyme family!
I tested CDC + 10/08
My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too)

Posts: 470 | From Painesville, Ohio | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
4Seasons
LymeNet Contributor
Member # 14601

Icon 1 posted      Profile for 4Seasons     Send New Private Message       Edit/Delete Post   Reply With Quote 
My daughter's first lyme symptom (in retrospect) was urinary and bowel incontinence from age 4-8.

We took her everywhere and they couldn't find anything wrong.

It finally cleared up when we put her on Milk of Magnesia, first, then switched to CALM magnesium powder and a gluten free diet.

Now at age 14, she is very ill and always feels like she needs to pee. I have Lyme as well and have urinary hesitancy.

--------------------
"Life isn't about waiting for the storm to pass, it's about learning to dance in the rain."
Anonymous

Posts: 450 | From California | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
tickbattler
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Hi DJP,

Sorry your daughter is going through this. I can tell you what I think based on observing my husband's and childrens' lyme symptoms and based on reading things on this message board.

From what I have read bartonalla loves the bladder and GI area. This has proven true with my husband and with one of my 4 year old boys who are being treated for lyme, bart and babs. He started wetting his bed after already being potty trained.

With treatment on azith, Mepron and bactrim it got better. Then, I noticed anger and behavior issues slowing gettting worse, and also he started saying his whole body hurt several times/week. Then his penis started hurting while urinating and even afterwards. He was tested for a UTI and it was negative. After two days of this penis pain, and also because of the anger issues, I requested a med change from bactrim to rifampin, which is great for bartonella.

The next morning his penis pain was gone and has not returned. He did wet his bed twice in the first week of the rifampin (probably a herx-like reaction). Now, almost 6 weeks into the rifampin, his anger issues are slowly starting to resolve. He has not complained of his body hurting since starting the rifampin.

With my husband, he started noticing an increased frequency of having to urinate. There was a point when he could wait no longer than 1 hour without having to go. This has improved with treatment. We suspect bart, but are not sure.

With my other 4 year old twin boy, he has had problems with bm accidents in his pants. It's as if he can't feel when it is coming out. Dr. J didn't think this is lyme related, but I am almost sure it is. I feel that he has lost sensation in that area b/c he is not sure if he has gone in his pants many times.

I have talked to another woman on this site (Lymemommy) who had this issue with her son during lyme treatment and it went away after treatment. She had taken him to a pediatric lyme GI specialist who said that he sees this a lot in lyme patients. I would recommend going to this doc (Dr. F in NJ) as I have read studies by him about bartonella and lyme in children's GI area.

Hope this helps!

tickbattler

IP: Logged | Report this post to a Moderator
pab
Frequent Contributor (1K+ posts)
Member # 904

Icon 1 posted      Profile for pab     Send New Private Message       Edit/Delete Post   Reply With Quote 
Are your kids on any meds that cause dry mouth? Any of those meds can cause urinary hesitancy & constipation.

My son had/has urinary hesitancy. He went to a urologist and had a lot of testing done at the hospital. All tests were normal.

--------------------
Peggy

~ ~ Hope is a powerful medicine. ~ ~

Posts: 2775 | From MN | Registered: Apr 2001  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.