LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » those of you with bladder problems...

 - UBBFriend: Email this page to someone!    
Author Topic: those of you with bladder problems...
mina222
Member
Member # 19825

Icon 5 posted      Profile for mina222     Send New Private Message       Edit/Delete Post   Reply With Quote 
i have been treated by a urologist for over a year for pain after urination/sometimes vulvodynia, and was always told my urinalysis came back negative.

Just found out at last visit however, that they always contain white blood cells and blood, but when they culture, they come back as "contaminated" .

So I have never been treated (well i was once anyway probably b/c i was in so much pain).

I've done enough Urine tests to know how to "not contaminate", so i dont get it.

just wondering if these facts could mean anything in relation to lyme disease, b/c i am pretty sure my bladder issues are caused by it. Thanks!

--------------------
IgM : 31 +++, 34 ++, 39 IND, 41 ++, 58 +

Posts: 36 | From Buffalo, NY | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
ugagal
LymeNet Contributor
Member # 18471

Icon 1 posted      Profile for ugagal     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Mina,

Have you ever heard of a bladder condition called Interstitial Cystitis? I suffered from IC prior to my Lyme diagnosis and I now know that it was probably related to the Lyme as it loves the bladder for some reason. I would have debilitating bladder pain and spasms accompanied by the inability to completely empty my bladder. It was confirmed by a bladder biopsy which revealed small bleeding ulcers and mast cells in the bladder lining.

With IC, most urinalysis come back normal. After being properly diagnosed, I had to irrigate my bladder daily with meds using a catheter and I was placed on a drug called Elmiron. I achieved relief from the painful symptoms after about 4 months of therapy.

I still have some residual bladder problems such as urinary frequency and some mild incontinence. However, the severe pain has thankfully not returned. Hope you feel better soon!

--------------------
My comments on this site are not intended to be taken as medical advice as I'm not a physician.

Posts: 206 | From Georgia | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
mina222
Member
Member # 19825

Icon 1 posted      Profile for mina222     Send New Private Message       Edit/Delete Post   Reply With Quote 
yes i have read up exensively on IC, but my urologist who is supposed to be very good says my cystoscopies show absolutely no evidence of it.

Also diet does not seem to have an effect my pain at all.

I"m kind of a mystery to them but at this point i think its related to lyme.

I guess i was just wondering if the WBZC and blood in the urine possibly signified anything?

--------------------
IgM : 31 +++, 34 ++, 39 IND, 41 ++, 58 +

Posts: 36 | From Buffalo, NY | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
mina222
Member
Member # 19825

Icon 1 posted      Profile for mina222     Send New Private Message       Edit/Delete Post   Reply With Quote 
yes i have read up exensively on IC, but my urologist who is supposed to be very good says my cystoscopies show absolutely no evidence of it.

Also diet does not seem to have an effect my pain at all.

I"m kind of a mystery to them but at this point i think its related to lyme.

I guess i was just wondering if the WBC and blood in the urine possibly signified anything?

--------------------
IgM : 31 +++, 34 ++, 39 IND, 41 ++, 58 +

Posts: 36 | From Buffalo, NY | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165

Icon 1 posted      Profile for cantgiveupyet     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have IC and often will have WBC show in my urine. I went to a walk in clinic and they put me on abx based on the WBC being in the urine. I also show contaminants.

Some theories are that there is a low level infection present....who knows.

I know i feel better on cipro and levaquin.

However, my urologist who specializes in IC will not treat unless something comes back on the culture. I see you are in NY do you see Dr M(well know urologist)?

Have you been evaluated for pelvic floor dysfunction- that can also cause bladder symptoms.

--------------------
"Say it straight simple and with a smile."

"Thus the task is, not so much to see what no one has seen yet,
But to think what nobody has thought yet, About what everybody sees."

-Schopenhauer

pos babs, bart, igenex WB igm/igg

Posts: 3156 | From Lyme limbo | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-

While all these chronic infections really do bother our bladders, (for women) there also may be more to it if you are over 35 years old.

I recently started bio-identical hormone replacement, after 10 years of menopause.

My bladder urgency - and vulva pain - eased up tremendously within a week. Unbelievable.

There is also a soothing gel, I'll come back with the label.

---

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/77129


Topic: Women over 35: Hormones (Oprah's recent programs; books)
-

[ 04-25-2009, 03:25 PM: Message edited by: Keebler ]

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-

That extremely soothing gel, recommended by my ND for the sensitive vulva tissue, is:

Boericke & Tafel

CALIFLORA Calendula Gel

NDC 53499-5190-4

-

You can get it at many health markets and on line. Here is just one link through www.vitacom.com

--

http://tinyurl.com/c3mv5a

CALIFLORA Calendula Gel

-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165

Icon 1 posted      Profile for cantgiveupyet     Send New Private Message       Edit/Delete Post   Reply With Quote 
Keebler- Do you feel it is lack of progesterone that could cause some of these symptoms? I suffer the most during Ovulation.

--------------------
"Say it straight simple and with a smile."

"Thus the task is, not so much to see what no one has seen yet,
But to think what nobody has thought yet, About what everybody sees."

-Schopenhauer

pos babs, bart, igenex WB igm/igg

Posts: 3156 | From Lyme limbo | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
A cystoscopy will not necessarily show IC.

It is odd that diet doesn't affect you though .. I wonder how many with IC aren't affected by diet?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95343 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165

Icon 1 posted      Profile for cantgiveupyet     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lymetoo- I know of a few that arent affected by diet. One lives with extreme bladder pain...but she can eat whatever she wants. She tried the diet and she didnt see a difference at all.

--------------------
"Say it straight simple and with a smile."

"Thus the task is, not so much to see what no one has seen yet,
But to think what nobody has thought yet, About what everybody sees."

-Schopenhauer

pos babs, bart, igenex WB igm/igg

Posts: 3156 | From Lyme limbo | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346

Icon 1 posted      Profile for disturbedme   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have bladder pain off and on. Today it has been bad. Other days it doesn't bother me at all. I've been told it's IC and that the lyme and/or co-infections cause it.

--------------------
One can never consent to creep when one feels an impulse to soar.
~ Helen Keller

My Lyme Story

Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007  |  IP: Logged | Report this post to a Moderator
sammy
Frequent Contributor (5K+ posts)
Member # 13952

Icon 1 posted      Profile for sammy     Send New Private Message       Edit/Delete Post   Reply With Quote 
Blood and WBC's on a urinalysis usually signal infection. When your culture came back positive for contaminants (usually normal skin flora) i'm surprised the office didn't call you to repeat the test. Or at least make sure you weren't still having symptoms.

Next time, ask for a couple extra wipes. Always wipe front to back, throw away, repeat with another wipe. This should prevent the contamination.

If you're still coming up with unusual results maybe you should request a cath sample. Not a pleasant procedure but not the most terrible either.

And, if your doctor really doesn't care and doesn't want to help you figure out what's wrong, try another doctor.

Take care:)

Posts: 5237 | From here | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.