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» LymeNet Flash » Questions and Discussion » Medical Questions » who supplements with vitamin D?

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Author Topic: who supplements with vitamin D?
VB
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And what are your experiences with this? Do you feel better? How much do you take?

I know some don't believe in it, but I'm looking to hear from those who have had personal experience with it.

Thank you!

Posts: 453 | From TX | Registered: Aug 2008  |  IP: Logged | Report this post to a Moderator
ugagal
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I take 50,000 IU per week due to a low level when tested. (my initial level was 8) I honestly haven't noticed any difference in the way I feel since beginning supplementation.

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My comments on this site are not intended to be taken as medical advice as I'm not a physician.

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sixgoofykids
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I use a Dr. Mercola tanning bed twice weekly for 6 min. per side ..... I try to use it three times per week, but usually end up with only two. In the warmer weather I get outside to get natural sunlight.

I don't build a tan this way, it just seems to help a bit, and yes, I feel better from it.

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sixgoofykids.blogspot.com

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kreynolds
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It is actually a proven fact that almost all Americans are deficient in Vit D.

Myself I take Sublingual Vit D. 10,000 IU daily.

I am too sick to notice much of a change, but would recommend taking it along with other supplements.

Like mentioned above, natural sunlight is the best you can get besides the pills.

Myself I'm on IV Doxy and cannot be in the sun.

Hope that helps.....

--------------------
Diagnosed CDC + 6/2007

Quest: + IGG Bands 18,23,39,41,58,66 and 93.

Quest: + IGM Bands
23,39

Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease

+ Biofilm blood test 12/2010

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Richard1062
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Vitamin D helps to regulate the immune system, so it is essential that we have plenty of it. It may also inhibit the autoimmune response.

Vit. D is necessary for calcium uptake, and calcium is necessary for functioning of the nervous system.

Vit D helps to regulate blood pressure, and also insulin secretion.

It helps with detox, helps protect the liver, helps strengthen against colds & flu.

Vit. D deficiency can cause muscle pain and weakness, depression, reduced cognitive function, and many diseases.

Make sure your supplement contains vitamin D3. You might not feel any better for taking it, but then again you might be much worse if you didn't.

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Janice70
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The Marshall Protocol for Lyme says to avoid vitamin D as much as possible, from foods,

supplements, the sun, and bright lights.

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Richard1062
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but...you would only avoid vitamin D if you are doing the entire Marshall Protocol, right?
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kelmo
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My daughter was SERIOUSLY low in D levels. She hated to go out in the sun and said it was painful, and made her feel more ill.

When she started supplementing, she took three 400IU tablets because she thought they were just vitamins. Two hours later, she was very ill.

She stopped, talked to the doc, and started at 400IU every other day. She herxed big. She worked up to 6000IU daily. She brought her D level up from a 2 to a 76.

She now only takes 1000IU daily, and the sun doesn't make her ill any more.

Now, get this. I grew up in AZ, I am a crossing guard, out in the sun over an hour daily. My D level was only 30. Just below the low level of 32.

I have started supplementing as well. Evidently, some people have a hard time converting or storing D.

My daughter started the D supplementation before it made the big news. I'm wondering if it is responsible for her ANA level to become normal.

It really did bring her along. So, though you may not FEEL like it's working, it may be working anyway.

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Buster
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I was low on my tests, after a year of treatment, they are still low but only a slight hair out of range.

I do feel better when I am outside and in the sun though [Smile]

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Lymeorsomething
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I take D. Many of us who are sick are also not outside a lot and not getting the benefit of the sun. It is reasonable to supp with upwards of 1000-2000 IUs of D3 per day. It may not help your lyme but it may stave off flus and common colds....

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"Whatever can go wrong will go wrong."

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Janice70
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Richard, my current thinking (and this can change at any time) is that if Vitamin D can be

so bad for Lyme as to avoid it almost completely on the Marshall Protocol, I'll at least not

supplement with it on purpose. I'm not willing right now to go to the lengths of trying the

Marshall Protocol, but at least I'm not going to take vitamin D pills. I know Lyme patients are

often low on vitamin D, but I'm thinking it's possible that may be the body's way of trying to

fight the infection--by lowering the levels. Just as newborns are routinely injected with

Vitamin K at birth because their levels are low, and a lot of people think that there may be an

unknown reason nature wants newborns to have low vitamin K levels. The vitamin K shots have been

shown to increase the risk of leukemia, but all babies born in hospitals are still given the

injection. So there may be an unknown or not universally accepted reason why Lyme patients

are low in vitamin D, and that it is actually beneficial.

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Leelee
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I was taking 50,000 IU twice per week. It was a prescription. My Vitamin D level was 17.

It rose after supplementing, but I never noticed feeling any differently.

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The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr

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luvs2ride
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I am on 5000IU and it did wonders for me initially. I am doing very well today and feel Vit D3 is a big part of that.

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When the Power of Love overcomes the Love of Power, there will be Peace.

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VB
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thanks to all of you for the input.

Even prior to lyme I would get very sick very easily, so I'm trying to figure out ways to boost my immune system and thought D might help.

I bought some D3 today... I believe 1000IU tablets.

If it helps me, I will be sure to let everyone know!

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seekhelp
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My LLMD bumped me to 10,000 IU of D3 daily. I've felt nothing but worse when increasing D3 from 5,000 IU to 10,000 IU. My number was 38. He wanted 60+.
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Cass A
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Personally, I think the push for more Vit D supplementing is bad news!!!

For myself, I found that I have had a serious negative reaction to being in the sun. After being out, I would need to nap for an hour or more! This was well before probable Lyme. It definitely got worse when I got mononucleosis.

My D 25 was OK, but my D 1,25 was out the roof!

Cutting BACK on Vit D and light, even though not doing the Marshall Protocol in full, truly helped me. I wear the NoIR glasses when out, and keep the lights lowered in my house, also.

It seems to me that Vit D problems are caused by disease, and that Vit D does not truly protect you.

That said, my LLMD had very poor experiences with his patients who he put on the Marshall Protocol.

As with just about anything relating to Lyme, you need to find your own way.

Best,

Cass A

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Leelee
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How does Lyme affect Vitamin D levels? I know it is not unusual for us to have low levels, but I don't know why. [confused]

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The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr

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keltyl
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My LLMD recently tested and vit D was low. I am currently taking 2000IU a day of D3 to see how it goes.
Posts: 847 | From upstateNY | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
   

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