I posted this the other day and I appriciate the responses I got, but I still need a little more feedback. Anybody else want to chime in?
Specifically, if someone just has a little to say about why it's hard for us to read typed info, etc. That would be great.
Some of you folks have talked about vision and reading problems caused by neuro-issues.
What do you call that?
Reading has been next to impossible until very recently. My eyes just can't follow.
I can't read a tape measure, either. Or music or keep a beat, really.
There's a ton of crap in my field of vision that is so thick, I can sit and watch it float around for entertainment!!
Some days rooms look smoky to me, other times I gotta put my face right up next to something to see it.
For a while there, I couldn't see anything with out magnifiers. It was getting worse and worse, so I forced myself to stop wearing them. I felt like I needed to develop more eye strength. I don't know if I see any better at all, but at least I don't feel totally blind without them.
I have blue eyes, which doesn't help, but my eyes are very sensitive to the sun or any intense light. Light changes can make me dizzy. I have huge wrinkles at my brow- One person here called that her 'lyme scar'.
What's up with all of the visual probs? Do these things get better?
-------------------- Be Well Posts: 103 | From Out West | Registered: Jan 2009
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If you don't mind, I will also pm you regarding my vision problems. Not sure what to do. If anything, they are getting worse with treatment. -Paulie
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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i feel this sums up perfectly why we can't read and comprehend long text paragraphs; i used this info in my ssdi claim also.
Distinct Pattern of Cognitive Impairment Noted in Study of Lyme Patients .....MUST READ!! EXPLAINS EVERYTHING !!
written by Marian Rissenberg PhD & Susan Chambers MD, The Lyme Times, Vol. 20, Jan-Mar 1998, pp. 29-32
You will need 2% amber and 10% amber ... Style no. 901 and 910. 1-800-521-9746 TOLL- FREE, ONE YEAR GUARANTEE! ***************************************
mention you have lyme and marshall protocol, they will give you 10% off! I'm NOT on MProtocol, but mention it anyway. I was on their new board almost 12 months!
Also they have been kind enough to replace the SCRATCHED LENSES & BROKEN BOWS! How's that for service? I'VE NOT had to return broken/scratched lenses!!
In fact, I have a terrible time where they drop to the floor, and 1 of bows will break off the connecting PLASTIC piece connecting to the lense itself. They just take the info over the phone from YOUR STATE'S REP!
I don't drive often at night, but I can wear NOIR's 901 lenses at night while driving; it creates soft candle lights coming at me...tolerable. NOT to wear in town with all the action of people crossing where they shouldn't be.
Driving daylight hours, be sure to wear DRIVING GLOVES and a LONG SLEEVE SHIRT/JACKET so you will NOT SUNBURN ! I got burnt bad on my 1st out of state trip to new LLMD in Minn.
I wear my darkest tinted RX sunglasses always with my NOIR wraparounds over them, and my floppy straw hat too; shields my face/side views
NOTE: Wearing sunglasses that BLOCK ULTRA VIOLET LIGHT, help to prevent CATARACTS.
DRUGS ASSOCIATED WITH LIGHT SENSITIVITY by Minoucat
There is also something that is called "Scheerer's phenomenon" or "blue field entoptic phenomenon". This is basically the ability to see white blood cells traveling through in the squiggly capillaries of your retinas... especially when looking at a blue light. (like the sky) When a leukocyte travels through.. it makes a wiggling motion. The link below is v\ery interesting and even has an impression of this phenomenon. "Scheerer's phenomenon"