LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Neuro/eye Issues, Please.

 - UBBFriend: Email this page to someone!    
Author Topic: Neuro/eye Issues, Please.
Rambler
LymeNet Contributor
Member # 18794

Icon 1 posted      Profile for Rambler   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I posted this the other day and I appriciate the responses I got, but I still need a little more feedback. Anybody else want to chime in?

Specifically, if someone just has a little to say about why it's hard for us to read typed info, etc. That would be great.

Some of you folks have talked about vision and reading problems caused by neuro-issues.

What do you call that?

Reading has been next to impossible until very recently. My eyes just can't follow.

I can't read a tape measure, either. Or music or keep a beat, really.

There's a ton of crap in my field of vision that is so thick, I can sit and watch it float around for entertainment!!

Some days rooms look smoky to me, other times I gotta put my face right up next to something to see it.

For a while there, I couldn't see anything with out magnifiers. It was getting worse and worse, so I forced myself to stop wearing them. I felt like I needed to develop more eye strength. I don't know if I see any better at all, but at least I don't feel totally blind without them.

I have blue eyes, which doesn't help, but my eyes are very sensitive to the sun or any intense light. Light changes can make me dizzy. I have huge wrinkles at my brow- One person here called that her 'lyme scar'.

What's up with all of the visual probs? Do these things get better?

Thanks everyone.

--------------------
Be Well

Posts: 103 | From Out West | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
EyeBob
LymeNet Contributor
Member # 12572

Icon 1 posted      Profile for EyeBob     Send New Private Message       Edit/Delete Post   Reply With Quote 
PM me, I'll answer your questions.

I'm an optometrist that also has Lyme.

BT

Posts: 299 | From New Hampshire | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Rambler
LymeNet Contributor
Member # 18794

Icon 1 posted      Profile for Rambler   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Oh Cool. Thanks. Will do in a few hours.

--------------------
Be Well

Posts: 103 | From Out West | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 1 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
A doctor would be the best idea, not patient's responses in this case.

You don't want to mess with your vision. It is a precious thing.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
paulieinct
LymeNet Contributor
Member # 17514

Icon 1 posted      Profile for paulieinct     Send New Private Message       Edit/Delete Post   Reply With Quote 
EyeBob:

If you don't mind, I will also pm you regarding my vision problems. Not sure what to do. If anything, they are getting worse with treatment. -Paulie

--------------------
Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that.

Posts: 765 | From nw ct | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
rambler,

i feel this sums up perfectly why we can't read and comprehend long text paragraphs; i used this info in my ssdi claim also.


Distinct Pattern of Cognitive Impairment Noted in Study of Lyme Patients .....MUST READ!! EXPLAINS EVERYTHING !!

written by Marian Rissenberg PhD & Susan Chambers MD,
The Lyme Times, Vol. 20, Jan-Mar 1998, pp. 29-32

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/71550?#000000

****************

and eye sensitivity to sun, etc. what has personally helped me! [Smile] NOIR SUNGLASSES!!


SENSITIVITIES: EYES--LIGHTS, NOISE/SOUNDS, AND CHEMICAL SMELLS !!


Betty's ROLL CALL of MEMBERS WITH EXTREME SENSITIVITIVITIES TO LIGHTS, SOUNDS/NOISE, AND CHEMICAL SENSITIVITIES

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=046537#000000


EYE SENSITIVIES & NOIR, no infrared sunglasses info.,

2-28-06 updated YES, I have what you have! Are you on doxy too? That made my extreme eyes 200% MORE sensitive than they we were earlier.

I learned a lot about eye sensitivity/lighting on www.marshallprotocol.com board.
http://www.marshallprotocol.com/forum2/4.html detailed!


I ordered the NOIR sunglasses.
http://www.noir-medical.com/noir_amber.htm

You will need 2% amber and 10% amber ... Style no. 901 and 910.
1-800-521-9746 TOLL- FREE, ONE YEAR GUARANTEE! ***************************************

mention you have lyme and marshall protocol, they will give you 10% off! I'm NOT on MProtocol, but mention it anyway. I was on their new board almost 12 months!

Also they have been kind enough to replace the SCRATCHED LENSES & BROKEN BOWS! How's that for service? I'VE NOT had to return broken/scratched lenses!!


In fact, I have a terrible time where they drop to the floor, and 1 of bows will break off the connecting PLASTIC piece connecting to the lense itself. They just take the info over the phone from YOUR STATE'S REP!


I don't drive often at night, but I can wear NOIR's 901 lenses at night while driving; it creates soft candle lights coming at me...tolerable. NOT to wear in town with all the action of people crossing where they shouldn't be.


Driving daylight hours, be sure to wear DRIVING GLOVES and a LONG SLEEVE SHIRT/JACKET so you will NOT SUNBURN ! I got burnt bad on my 1st out of state trip to new LLMD in Minn.


I wear my darkest tinted RX sunglasses always with my NOIR wraparounds over them, and my floppy straw hat too; shields my face/side views


NOTE: Wearing sunglasses that BLOCK ULTRA VIOLET LIGHT, help to prevent CATARACTS.


DRUGS ASSOCIATED WITH LIGHT SENSITIVITY by Minoucat

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=048201


Eye Floaters and Spots 9-07

www.allaboutvision.com/conditions/spotsfloats.htm
http://www.eye-floaters.com/floaters-entopticphenomenon.php


There is also something that is called "Scheerer's phenomenon" or "blue field entoptic phenomenon".
This is basically the ability to see white blood cells traveling through in the squiggly capillaries of your retinas... especially when looking at a blue light. (like the sky)
When a leukocyte travels through.. it makes a wiggling motion. The link below is v\ery interesting and even has an impression of this phenomenon. "Scheerer's phenomenon"


http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/77825

How lyme impacts the eyes - legit sources from Marnie, 2-22-09

http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=504579

IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.