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» LymeNet Flash » Questions and Discussion » Medical Questions » "benign fasciculation syndrome" and Wikipedia

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Author Topic: "benign fasciculation syndrome" and Wikipedia
Janice70
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First of all, any time a medical condition is called a "syndrome," I know it is BS. A syndrome simply describes a collection of symptoms, which a person already knows they have, without going to a doctor.

I can just imagine it--I go to a doctor, complain about my weird muscle twitching, and then he diagnoses me with "benign fasciculation syndrome." Gee, thanks, doctor. Now I know I have muscle twitching. I didn't know that before." (Sarcasm)

Someone who knows how to do Wikipedia should delete this ridiculous passage:

"Another common feature of the disorder, when seen by physicians, is an increase in the patient's level of anxiety, especially health-related anxiety. It's not uncommon for the patient to fixate on ALS, MS, ME, Parkinson's, vCJD, Wilson's Disease, or some other serious neurological disorder, refusing to believe the BFS diagnosis."

But read this--it sure sounds a lot like Lyme.

"In addition to twitching, patients with BFS often experience pain, paraesthesia, generalized fatigue, exercise intolerance, globus sensation and/or muscle cramping."

Oh, but that's all part of a "benign syndrome," so don't worry.

[ 06-15-2009, 01:19 AM: Message edited by: Janice70 ]

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Just Julie
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Hey ya Janice, I got slapped with the BFS label/diagnosis (yeah, lol on that one) by the first (and only) neurologist I was sent to before I got my lyme diagnosis. This was in May of 2000, when I first started having non-stop muscle twitching. Even back then in the dark ages (lol) after I searched online "muscle twitching" and got MS, ALS, Parkinson's, I wasn't sure if just muscle twitching would produce a diagnosis of any of these big disease's. Sure enough, after my *thorough* 15 minute neuro exam (which was supposed to be a 45 minute to one hour exam) I was pronounced as having BFS.

Oh, hell yeah, I had that alright. More like, "lady, we don't know why your muscles are twitching, just get out of my office" diagnosis.

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Julie

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Carol in PA
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Muscle twitching is a symptom of low magnesium in the muscle and nerve cells.

Low magnesium can cause anxiety too.

Carol

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pryorka
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There's not much sense in changing wikipedia writings. Anyone can write anything and the entire site is essentially useless information because it's almost always biased. If any of us change it a medical grad student working with "top notch" doctors changes it back to what they want it to say almost immediately. So financial interests control wikipedia.
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karenl
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BFS I never heard that. But I just do the tests for Wilson's. It does muscle twitching and vibrating and you have rings round the iris.
It is rare but it fits for me 100 %.

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Keebler
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-

http://cassia.org/checklist.htm

Symptom checklist for lyme.

-----------

http://cassia.org/essay.htm

When to Suspect Lyme - by John D. Bleiweiss, M.D.

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