posted
I had bad dizziness, balance problems, disorientation, very weak, trouble reading, trouble talking, trouble writing, no short term memory, got lost driving, etc.
Now, aside from some minor short term memory problems that still seem to be improving (but I don't know whether it will ever come back completely), I'm fine. Feeling about 100% normal these days .... with a few minor symptoms that pop up here and there.
Bart treatment was important for my cognitive symptoms. I did long term abx, strong combos. After 20 months switched to Bionic 880 (there are threads on here and a lot of info on my blog, look at Oct.). Now I use the Bionic about once per month and take supps to keep my immune system strong and kill parasites.
It can get better. It takes perseverance and constantly evaluating what treatments to use. Go with your instincts.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
8 years ago I could not walk without serious difficulty, could not walk up or down stairs. I did not have the strength to pick up a pot off the stove and dropped more dishes and glasses then I care to remember. My muscles and my brain were not connected.
I remember sitting in tears because I could not figure out how to put my bank statements in monthly order to prepare them for tax preparation.
I would get lost going to a place that was familiar, I'd get lost in a mall that I should have been able to navigate blindfolded.
After long and aggressive treatment,along with exercise, the neuropathy improved and things improved. I still have issues, but am so thankful that I am not were I was and most importantly I did not continue to go downhill.
Cognitively, I can say that with the exception of periodic brainfog, I am near normal.
As I was going through it, I did not ever think that I was getting better though. I am glad I never gave up and never will. So, yes, I feel that there is always hope.
-------------------- I found my original identity! It has been a bit over 12 years...can't blame me for forgetting my password, right?!!
Member red (Member # 1886) Registered: 26 November, 2001 70 posts Posts: 164 | From NJ | Registered: Jan 2009
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posted
Pepper, I had forgotten about holding something in my hand and it just falling on the floor, it was like a brain disconnect .... like my hand forgot to keep holding the object.
The bank statement provided a huge challenge ... I remember when I told the PA that I balanced the checkbook for the first time in months and she considered that great progress.
You are also right about exercise. It played a huge part in my recovery. Also eating right and detoxing.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
I really appreciate all the encouraging responses! I'm not new to Lyme, but I am new to these aggressive neuro problems. Fog I've always had, and arthritis, and fatigue, minor cardiac issues and more. These all either improved or I learned to live with. But losing balance, feeling shaky and weak all the time, and now having blurred vision is somehow more disturbing than any of what I had before.
Thanks for the hope,
Neville
Posts: 37 | From Kentucky USA | Registered: Jul 2004
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
You can have blurred vision from mold.I have it when I enter a building which is not mold free. Read personalconsult.com and type mold in the seach field.I also have blurred vision when I detox too quick, then I see thing double. Watch if it happens in the same buildings, like stores with paper...
Posts: 1834 | From US | Registered: Oct 2008
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posted
I had bad neuro lyme...overall weakness, right sided weakness mostly, all sorts of weird neuro feelings...buzzing, loss of sensation, "ants living uder my skin", serious brain fog, crushing fatigue...etc.
I was on pairs of antibiotics for six years.
I recovered over 90%.
I'm back due to reinfection with different symptoms.
-------------------- Lyme is like the flu. You can get it and recover, but you can always get it again. Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000
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