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» LymeNet Flash » Questions and Discussion » Medical Questions » No evidence of Chronic, Late-Stage Neuroborreliosis? Evidence here: See Video

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Author Topic: No evidence of Chronic, Late-Stage Neuroborreliosis? Evidence here: See Video
FuzzySlippers
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Member # 13658

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"I've never seen a child who has had late-stage neurologic Lyme Disease. We just don't see late neurologic disease in children."


Quote by Eugene D. Shapiro, MD, FAAP in the documentary, "Under Our Skin"

Dr. Shapiro is a Professor
Yale University School of Medicine
One of the authors of the IDSA Lyme Disease Treatment Guidelines


Ok, Dr. Shapiro, here is some evidence. This video shares evidence of chronic, late stage neurologic Lyme Disease.


Video Titled, "Lyme Disease: Victoria's Victory 2009," approximately 10 minutes in length. First 5 minutes of video are Victoria prior to illness. Second 5 minutes show illness and treatment.

http://www.youtube.com/watch?v=o_qpXlJCNQc


Fuzzy

p.s. Warning: Those of you who might be feeling especially delicate today, might choose to view this video at another time. It might be upsetting for some.

I hope folks that are able to view will rate and support the video. Anything we can do to increase awareness is a good thing.

Posts: 503 | From Maryland | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
liesandmorelies
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That was really hard to watch, but beautiful at the same time.

VIctoria is a fighter and I am for her.

Shapiro is an idiot in making a statement like that. He has no proof that Children can't have Late stage neurological Lyme Disease. All he can do is voice his opinion, but has no proof.

Make them prove it. They can't!!!!!

--------------------
aka: Lyme Warrior

In order to do "real" science, you have to have a "real" conversation with nature.

Well Behaved Women Rarely Make History!

"Just Demand your Rights"

Posts: 869 | From nor - cal | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
sutherngrl
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Very hard to watch. But important and I thank Victoria and her family for making this film.

How sad that Shapiro and others won't admit the truth, and thus precious children like this are forced to endure such torture.

I don't know how they live with themselves. Nothing more horrendous than being a so called scientist and not using that God given gift for good, to help people, rather than hurt them. I think their day will come!

Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Jasmin
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OK...this just caught me at a really bad time. It was soooo powerful.

I think I got emotional because my son has been zoning out...absence seizures I guess. It's scares me to think what is going on in his head. This is new on top of his already severe Tourette's syndrome. I think he has congenital lyme.

I'm tired. I'm too tired to have fun with him. I hate this disease.

--------------------
Never doubt in darkness what the daylight proves to you.

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nenet
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Thank you so much for sharing this. My heart broke for this young girl and her loving family. They are doing so much for her, it is very heartwarming.

I hope to be able to leave a comment on the video - I at least rated it 5 stars and favorited it. They really did a great job.

I also saw a lot of myself in her, with her symptoms. I have never been quite so bad, but I have had a 30-minute seizure that had my head and limbs and spine jerking, my face contorting, and was unable to speak/respond. It was terrifying and made me so scared, sorrowful, and frustrated.

I have had many other less intense seizures (loss of ability to think, times where I can't move or speak, times when I just stare and can't do anything, etc.), and many other neuro symptoms, since I was a very young girl - but I did not know that they were seizures at the time. I can really empathize with her.

I hope others will watch this, if they want to leave supportive comments for the girl and her family under the video, and also spread the word by sharing this link with others. I will be doing so as well.

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Posts: 1176 | From KY | Registered: Sep 2007  |  IP: Logged | Report this post to a Moderator
   

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