LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Flare-up - is it normal? I am so sad!

 - UBBFriend: Email this page to someone!    
Author Topic: Flare-up - is it normal? I am so sad!
aileenhome
LymeNet Contributor
Member # 3960

Icon 1 posted      Profile for aileenhome     Send New Private Message       Edit/Delete Post   Reply With Quote 
I know that this is probably normal but I am having trouble dealing with it. I was finally doing pretty well for the last couple of months with only the occasional bad day. What causes a flare-up like this?

Since last Thursday I have been feeling terrible again. Headaches, muscle twitching, nausea. jello-feeling in legs, tingling, neural tension. Even last Wednesday I was telling my physio on my weekly visit that I thought I was really improving and now I feel like I have been hit all over again out of nowhere.

Sitting at my son's HS graduation last night, I could see the muscle in my arm just twitching away. I haven't had this in months. I feel so discouraged.

I have appt with LLMD in 2 weeks - I feel that if I call him now what is he going to do? I have already been on abx for almost a year.

I see my physio again tomorrow. The only thing we did differently last week was to use the cold laser on my neck. She has used it on my face, back, etc before so I doubt that caused the flare-up unless there was a pocket of spirochetes in my neck that came out and are now being killed - in which case maybe feeling bad for a while is a good thing!

It is very difficult to go from feeling better to be right back in it again. And nobody understands - I just wish they could live in my body for an hour to see what it feel like. All I hear is "you look great" and I feel like people think it's in my head.

Sorry for the pity party - but I know you all understand!

Posts: 133 | From Far Hills, NJ 07931 | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353

Icon 1 posted      Profile for Starfall1969     Send New Private Message       Edit/Delete Post   Reply With Quote 
What is it about seeing a doctor or other medical professional that suddenly makes you feel worse after you leave their office, lol?

Seriously, that happens to me--I go to the doc and tell them I've been feeling better, then not an hour after Ileave their office, either my old symptoms return with a vengeance, or else new ones come up.

That said, yes, flare ups are common and I guess normal (whatever that is) with Lyme and co.

It is frustrating and discouraging, but just know that it comes with the territory.

I don't know if it's possible that your laser treatment relaesed some chetes, but I guess anything is possible with this disease.

Just don't let yourself get down about the relapse; it happens, and hopefully it will turn around again quickly.

Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742

Icon 1 posted      Profile for lymielauren28     Send New Private Message       Edit/Delete Post   Reply With Quote 
For me, I've noticed that it doesn't matter who I tell about how much better I've been feeling...I just know that as soon as I say, "I'm soing a lot better." the you-know-what hits the fan, lol.

I feel your pain though. It's beyond frustrating to be doing so well and then hit a wall. Just remember that it won't last and you'll get back to where you were before.

Lauren

--------------------
"The only way out is through"

Posts: 1434 | From mississippi | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
Pammy
Member
Member # 15695

Icon 1 posted      Profile for Pammy     Send New Private Message       Edit/Delete Post   Reply With Quote 
Same thing is happening to me right now. It's so frustrating....

I know though, that when I'm feeling good I tend to forget to take all of my supplements and get lazy about staying on top of it.

I wonder if I'm low on my B vitamins or Magnesium so I'm really trying to stay up on those.

Also, it's suddenly very hot here after pretty cool weather and I think that may contribute to a flare up.

Hang in there! It will get better again. Try extra B vits and Mag (I think Mag) for muscle twitches.

If you do a search for that you'll see what people have recommended. Watch your diet too. [Smile]

Posts: 92 | From home | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
aileenhome
LymeNet Contributor
Member # 3960

Icon 1 posted      Profile for aileenhome     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for all your positive support - helps when you talk with people who understands. Off to physical therapy today so hope that will help. Also have therapist visit today just to talk things out. His whole family has had lyme so talking with him is very helpful in gaining a perspective on the whole thing.
Posts: 133 | From Far Hills, NJ 07931 | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.