LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » rifampin experiences?

 - UBBFriend: Email this page to someone!    
Author Topic: rifampin experiences?
dan67
LymeNet Contributor
Member # 20344

Icon 1 posted      Profile for dan67     Send New Private Message       Edit/Delete Post   Reply With Quote 
Wondering what people have found with use of Rifampin?

Thanks.

Posts: 641 | From Nevada | Registered: May 2009  |  IP: Logged | Report this post to a Moderator
Stacyb
LymeNet Contributor
Member # 13084

Icon 1 posted      Profile for Stacyb     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am on it right now and this my 2nd time
on it. The first time I was on it for
8 months and relapsed. This time I have been
on it for 4-5 months so far. It def. helps
Bart. I take it with Zithro and a lot of
other abx and supplements too.

I did cause a herx for quite a long time but
nothing to terrible.

Hope that helps.
Stacy

Posts: 476 | From Columbus, Ohio | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
dj
Member
Member # 20969

Icon 1 posted      Profile for dj     Send New Private Message       Edit/Delete Post   Reply With Quote 
Dan67,

I started Rifampin about 3 years ago. I had a terrible reaction but guess it was a herx as my llmd wanted me to stay on it. However, I was also on other medication but that was the only new one. I was on Rifampin for about 10 months. Stopped for a couple and then started back up for another 6 months. (stopped due to new meds that don't mix with rifampin) Second time around I had no bad reactions.

At first threw up much of the first night. Had the runs, was nauseous, sinus problems, pain in joints, really sore throat. Only vomited the first night and then that went away thankfully. Had the runs for about 1 week and that went away too.

If you haven't heard it turns your urine an orange color so don't be too alarmed. At first I thought it was blood or something but llmd had warned me about the coloring.

I definitely do not want to scare you - you have to make your own decision with your llmd. I think it helped me but I am still on a lot of different meds. I am not on rifampin right now but llmd may put me back on later.

--------------------
I am not a doctor and am only expressing my opinions...please do not take this as medical advice.

Posts: 44 | From US | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
kellyb2411
LymeNet Contributor
Member # 15467

Icon 1 posted      Profile for kellyb2411     Send New Private Message       Edit/Delete Post   Reply With Quote 
Rifampin was pretty easy for me. I started it at 300mg dose for about 2 weeks then went up to a 600mg dose. I took it at night on an empty stomach.

I was really worried about having a huge herx, but in the end it wasn't any worse than other abx I've been on. It was a little different in that I had a sore left hip and lower back and skin sensitivity in those areas, but that lifted after about 1 week.

Other than that I didn't notice much from it after being on it for 6 months or so I stopped recently.

Within 2 weeks I had a whole stack of eye twitching, stinging, blurred vision, sore feet, etc come back. I am sure this was a bart relapse. funny that I didn't think it was doing anything, now I can't live without it. I'm back on the rifampin, but don't think for me its enough to kill off the bart completely.

Its funn

--------------------
Sx Start Jan 08 (test neg, but herxing)Susp Lyme, Bart + Babs??

ABX
Doxy 400mg + Amox 1g Jun - Sep 08
Rifampin 600mg + Biaxin 1000mg
Tinidazole 1000mg/day - Sep 08 to June 08

Currently taking Salt/C 15g (himalayan salt)

85-90% better

Posts: 231 | From Australia | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353

Icon 1 posted      Profile for Starfall1969     Send New Private Message       Edit/Delete Post   Reply With Quote 
When I first started it, I had a lot of dizziness and nausea, but that went away within a week or two.

Now I really don't have any problems with it.

Like kellyb2411 said, I didn't seem to notice that much of an abrupt difference on just the rifampin (I'm also on Doxy), but slowly some things are getting better.

Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
lymephobic
LymeNet Contributor
Member # 17556

Icon 1 posted      Profile for lymephobic     Send New Private Message       Edit/Delete Post   Reply With Quote 
Been on rifampin for almost 8 months. Started right up at 600mg. It has helped me tremendously.

Been taking 300mg for almost a month and I am still feeling pretty good. Also take cats claw now.

In the begining it increased my headaches, increased agitation, increased brain fog and increases the "heavy head" feeling I had. Also increased neck pain.

Once all that started to slowly fade I tolerated the drug very well.

Posts: 193 | From New Jersey | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
mojo
Frequent Contributor (1K+ posts)
Member # 9309

Icon 1 posted      Profile for mojo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I used it with Biaxin and it messed up my liver pretty bad.

Make sure you get your liver enzymes checked regularly.

I was only able to be on it for about 5 or 6 weeks but my CD-57 shot up (temporarily) and a symptom or two (that I had for years) completely disappeared! And it's been over six months.

I actually hope to go on this one again.

Posts: 1761 | From USA | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
richedie
Frequent Contributor (1K+ posts)
Member # 14689

Icon 1 posted      Profile for richedie     Send New Private Message       Edit/Delete Post   Reply With Quote 
What kind of herx did you all experience? My pain is through the roof!

--------------------
Mepron/Zith/Ceftin
Doxy/Biaxin/Flagyl pulse.
Artemisinin with Doxy/Biaxin.
Period of Levaquin and Ceftin.
Then Levaquin, Bactrim and Biaxin.
Bactrim/Augmentin/Rifampin.
Mepron/Biaxin/Artemisinin/Cat's Claw
Rifampin/Bactrim/Alinia
Plaquenil/Biaxin

Posts: 1949 | From Pennsylvania | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359

Icon 1 posted      Profile for Lymeorsomething     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've been on it a few months...noticed some worsening of fatigue....otherwise no probs...

It seems to help as well...

It will turn urine and perhaps some other bodily fluids a robust orange as you may have noticed [Smile]

--------------------
"Whatever can go wrong will go wrong."

Posts: 2062 | From CT | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
gemofnj
Frequent Contributor (1K+ posts)
Member # 15551

Icon 1 posted      Profile for gemofnj     Send New Private Message       Edit/Delete Post   Reply With Quote 
i was on 600 mg rifampin last year for approx. 2 months.

i did not have any adverse affects at all except for orange pee.

i think you are supposed to take on an empty stomach for maximum absorption.

my bart symptoms totally disappeared after rifampin.

Posts: 1127 | From atlantic city, nj | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
richedie
Frequent Contributor (1K+ posts)
Member # 14689

Icon 1 posted      Profile for richedie     Send New Private Message       Edit/Delete Post   Reply With Quote 
I don't even know what my bart symptoms are!?
Lyme, Bart, Babesia and other symptoms can all be the same and cross paths so how do you know???? My doc and I don't know.

--------------------
Mepron/Zith/Ceftin
Doxy/Biaxin/Flagyl pulse.
Artemisinin with Doxy/Biaxin.
Period of Levaquin and Ceftin.
Then Levaquin, Bactrim and Biaxin.
Bactrim/Augmentin/Rifampin.
Mepron/Biaxin/Artemisinin/Cat's Claw
Rifampin/Bactrim/Alinia
Plaquenil/Biaxin

Posts: 1949 | From Pennsylvania | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.