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» LymeNet Flash » Questions and Discussion » Medical Questions » Would like more input on Plaquenil

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Author Topic: Would like more input on Plaquenil
Fran_40
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Hi again,
My Dr. also prescribed me plaquenil, and stated this is a good inflammatory for me to start off with, and cyst buster.

How did any of you do on this med? Thanks. Fran

[ 08-05-2009, 12:50 AM: Message edited by: Fran_40 ]

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Abxnomore
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I've never been a fan of plaquenil as it suppresses your immune response and you need to keep a careful check on your eyes. You should have a base line eye examine before stating it or shortly after.

However there are many here who do use it. I hope they chime in. Many doctors use it, I believe, because it changes the PH of the blood similar to amantadine. It also has mild anti malarial benefits as well.

I'm not sure it's the best cyst buster but I'm sure there are many opinions of this.

Also there has been much discussed about plaquenil if you use the search tool.

You may to change your subject line to get more responses to something like need feed back on plaquenil or something like that that will pop out more.

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Fran_40
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Thanks Abxnomore.
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Fran_40
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Thanks Abxnomore.
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cleo
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I don;t like plaquinel either. For me it seemed to make me feel better after 3 months for a while but then while I was still on it I slowly slid back. Almost like the bugs became immune to it.
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keltyl
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I've been on Plaquenil for a year now. It's the only thing he has kept me on since Day 1. As far as it doing anything for me...????
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sutherngrl
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I had a horrible reaction to plaquenil. Of course I had come off of a 3 week course of steroids, so maybe it was the after effects of those; but my LLMD took me off of the plaquenil immediately.

(long story). I was trying something. It didn't work. So went back on antibiotics.

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Abxnomore
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Up from page two. I know there are many of you who are are Plaquenil or have been in the past.

Can we give our relatively new member any more advice relating to your experience with this medication??

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Fran_40
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Thanks for all responses. Sorry to hear your experience Sutherngrl.

Will give this a try, since everyone reacts differently, and its what my Dr. thinks I would do best on.

Just curious to know if it did indeed help or not. Thanks all.

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MY3BOYS
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for me is a plus. this was a med i was on during my yrs of "autoimmune/lupus" tx. Rhummy was so suprised at what an "amazing response" i had to it


fast forward 8+yrs and put lyme and co in play and maybe that was why helped then? dont know for sure. but, been on it last 3-4 mo. or so, and would say is a + rx in my tx.

finished the 4mo of babs tx with mepron then last mo. was malarone, then been on plaq. while now tx bart with cipro and lyme with rocephin

the IV rocephin is the HARDEST hitter on me for sure !!! every monday i just groan....but as long as it is killing it off, even if little at a time

--------------------
i am not a Dr. any info is only for education, suggestion or to think/research. please do not mis-intuprest as diagnostic or prescriptive, only trying to help. **

dx in 08:lyme, rmsf, bart, babs, and m.pneumonia.

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kreynolds
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Fran,

I was on Plaquenil for about 3 months and it didn't do much at all except bother my eyes.

I don't know if you were told, but with Plaquenil you are supposed to go to routine "base" eye exams.

Plaquenil as a " Cyst Buster" is not one of the better ones in my opinion.

I have been on Flagyl,Plaquenil and now Tindamax and find that Tindamax is the most effective and easiest to tolerate than the others.

In my opinion I would steer clear from Plaquenil. It is not a great med in my opinion.

With Lyme, eye problems are an everyday thing.....You don't need a medication making it worse, right?

Just my opinion.... Good Luck and let us know what you decide!

-Roy & Katie

--------------------
Diagnosed CDC + 6/2007

Quest: + IGG Bands 18,23,39,41,58,66 and 93.

Quest: + IGM Bands
23,39

Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease

+ Biofilm blood test 12/2010

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Aniek
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I miss Plaquenil. I was on plaquenil for over 2 years and it really reduced my pain. I haven't been able to control my pain since I stopped taking it.

I stopped taking the Plaquenil because I had a genetic test that showed I metabolize certain medications in a way that they can become more toxic. Plaquenil was one of the drugs I was supposed to stay away from, so I stopped.

I had a visual fields test soon after starting and once every 6 months to make sure it wasn't impacting my peripheral vision. My eye dr. had seen one patient with plaquenil toxicity but that patient had been on plaquenil about 20 years and had never had a test for the toxicity. In that case, the patient lost lots of vision. But the doctor said as long as I was getting tested every 6 months, I'd catch any damage before it noticeably impacted my vision.

My health insurance paid for the eye doctor visits because I saw a medical doctor.

--------------------
"When there is pain, there are no words." - Toni Morrison

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Abxnomore
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Aniek, are you referring to problems with methalation, where phase two of liver detox does not clear out toxins from the body properly?
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Fran_40
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Thanks to all for replies.

Katie & Roy, I appreciate the reply also. I will get a baseline check at the eye Dr., anyways I need to go because I have never had my eyes checked, and being that I am 40 now, it's time to check.

Good to do even before I start the plaquenil. When I mentioned Tindamax, Dr. D was not at all happy about it, said this would be a much better one for me.

I do know that all meds work differently on everyone, and I am so sensitive to different meds. Again, Thanks for replies.

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Abxnomore
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You don't have to wait to start it before your eye exam. That could take weeks. Best to get going with your meds, and just schedule an appointment as soon as you can. A few weeks won't make a difference.
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