posted
Don't know if what is happening is from this med or increasing malarone dosage.
anyone have reactions to lyrica? and if so what happened?
thanks
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I got very suicidal and had to stop.
went away after
Posts: 3905 | From USA | Registered: May 2007
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
I did, too. After first dose, I had a moderate allergic rxn. Also felt totally loopy.
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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posted
go to : askapatient.com type in Lyrica learn from other people's experience. Be careful - it doesn't actually treat your illness. Neurologists Rx it like it's candy. -p
Posts: 641 | From So. CA | Registered: May 2008
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I was on Lyrica....for sleeping ...helped tremendously with nerve pain and helping me to sleep......
but as I bumped up the dosage...I was getting really creepy dreams....
and felt very tired the next take.... then stopped it... mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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posted
It helped me with sleep and at first it helped with pain. The longer I was on it, though, the less it worked for pain. We kept bumping up the dose and it was not enough.
The higher doses made me very dizzy and increased brain fog dramatically.
Be careful if you try to stop it. You'll need to titrate down. I tried to stop at a high dose when my doc refused refills, and I had terrible withdrawal with vomiting, shaking and hallucinations. Within 1 hour of taking a smaller dose that my pharmacy loaned me, I started feeling ok again. Very powerful stuff.
Posts: 236 | From Washington | Registered: Jul 2008
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
What kind of problems are you having?
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
it was prescribed for sleep - not getting adequate "quality" sleep. it was supposed to make me more productive - help the fatigue - forget it!
i was getting, and when i stop lyrica i still get, what we think but can not capture on an eeg - seizures. i learned long ago - just b/c we can't prove it doesn't mean it is not REAL.
bear with me - having trouble typing
so i was putting up with the loopyness b/c i did not want the seizures
saw a new neuro 2 weeks ago - and he wants more $$$ tests $$$
lyrica (prescribed by other neuro) did nothing for pain - someone mentioned neurotin which i tried maybe 15 yrs ago with no positive outcome or help so i am not surprised tht lyrica did nothing too
i went off of it b/c i could not handle the smallest dosage w/out getting "loopy" the next day. was sleeping better - granted - but was not more productive at all - phone consult result -break the pill in half - which i did - and last night was frightful - heart racing and "wired" complete opposite of the usual reaction
very depressed and i am thinking that i am better off with the seizures -
i know i shouldn't be thinking this, but maybe a seizure would just end all this- sorry - just not in a girl scout mood
anyway - got feedback from 2 of my llmds - one is well versed in sleep disorders - sleep paralysis to be exact. he said that my mouth/tongue/throat being paralysed while sleeping (happened over a week ago)was NOT sleep paralysis but most likely due to damage to the cranial nerve. Which is what I thought, but usually keep my mouth closed to see what they say. I wonder if this is why alot of chronic lyme patients die in their sleep.
Sorry this is way too long. Just really at the end of my rope.
Thank you all - for your concerned replies...
i have made up my mind to stop it -
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Yes,
I was put on Lyrica and it made me very sick. It turned my stomach and it messed with my head.
I try to steer clear from any meds that deal with the Seretonin levels in the brain.
I found that all of the meds like Lyrica,Cymbalta, etc... did more harm than good in my case....
Hope all is well!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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not in a girlscout mood...??...huh...I wonder why???
so sorry you are going through all of this... just to get a good night sleep....
scary stuff for you....
PM me if you want....you know I'm all ears!!!!!!!!
mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
Lyrica has really helped me sleep, as long as I don't take to much of it at a time.
If I take anymore than 125 mg at a time though, I get this restless feeling in my legs where I have to move them almost constantly, but feel sleepy at the same time.
Its very unpleasant feeling.
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I found Trazodone to be very helpful for sleep. I had started at 1/2 25mg pill (I believe) & sometimes took a whole one.
My dad was taking Lyrica for nerve pain & I believe it took a couple of days to adjust to. When they tried to increase his dose, he was so messed up he couldn't even feed himself. It was very frightening.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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I didn't sleep all that well last night, but I feel awake this morning.
I have the heart racing and pain, but this started when i increase the malarone.
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
lyrica works at first at a small dosage, as I ramped up it made me sleep more deeply, but the next day I was emotionally flatlined and completelly depressed.
Everything was without meaning on lyrica.
It turns down the electricity of you brain.
Posts: 2905 | From New England | Registered: Sep 2004
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Sorry, I lost track of this thread. I hope you're feeling better.
He still takes it but couldn't increase the dose.
He was having break-through pain mid-day. That was why they tried to increase it.
Instead they switched from 150mg twice a day to 100mg three times a day. That seemed to do the trick.
Some people metabolize it differently, I think. Some also can't really tolerate it at all.
When they stopped the Ambien-CR & switched it to Trazodone, it made a world of difference for him with sleep. He only takes the Trazodone at night.
How much are you taking?
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
i was down to 25mg and still not doing well the next day
have stopped it - but the seizure like episodes have started again
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
wow
Posts: 2905 | From New England | Registered: Sep 2004
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