posted
Neuropathy was not one of my initial symptoms however, 4 weeks into abx (Doxy) my lower legs and especially my feet have horrible pins a needles, almost like they are going numb. My arms also will "fall asleep" if I lay in bed too long in any one position.
The legs and feet are constant.
Is this common with Lyme? Is it common for this to become pronounced once treatment is started? How did you resolve this one?
I am becoming increasingly convinced that I have Bartonella infection as well. Would this be consistent with either Bart or Lyme?
Thanks, Aimee
Posts: 239 | From Virginia | Registered: Jun 2009
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Yes, this is very common with Lyme. I can't tell you if it is Lyme or Bart. I know a sign of Bart is worse neuro issues, but neuropathy could be caused by either one.
B12 shots (methylcolbamin) can help with neuropathies.
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
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posted
I have bag neuropathy. One leg on fire, then the back of park of my leg (Whole left butt and left back thigh, are completely numb), Then I have myofasical syndrome or something. It is were the sheath gets eaten up by the antibodies to the bacteria. But my skin hurt above all else.
They did did i.v. Rochephin for Lyme for 28 days and called me "CURED"! I have a positive test from ingenex too. He treated that last, yeah....yeah...last right before he dumped me!. Whateverrrrrrrrr.
Good luck
I go to a pain mangement place and this is what I am taking and it's working well. I'm having surgery on my back next week and my neck in 3 weeks. I'm only 28. Sheesh. But They are going to give me tons of shots throughout my back and they a similar procedure on my neck. Hopefully, it will work as I feel it's all I have left. Tell me what you decide to do. I coudn't start the Bart treatment, Levaquin and Rifampin.....one made me phs. sick and the other just ripped my tendons to pieces. Most my my pain is LEFT sided and that scares me, as I it is not just things like pain, it's like losing an ability to walk overnight COMPLETELY, or use your life hand/wrist area AT ALL.
I Fell Like No One CaRes..... Good luck!
Posts: 63 | From Hell - Or at least it feels like it, Oh, I mean Tampa, FL. OOOps! :D | Registered: May 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
People care Nessa. How'd your psychiatrist appt go? I asked on another thread. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Nessa, I am really sorry to hear you are having such a rough time with your lyme and pain and meds.
What are the issues with your back and neck that require surgery? I have had x-rays done because of all my neuropathy but other than some mild stenosis and degeneration they found nothing.
I am hopeful that this is lyme related in my case and that I can successfully wipe out the lyme and the other possible co-infections.
I wouldn't call what I have as pain, more a pins and needles feeling that is constant and annoying.
Hope your surgery goes well and you find some relief.
Aimee
Posts: 239 | From Virginia | Registered: Jun 2009
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Try sub-lingual B12 for the pins and needles. You let the little pill dissolve under your tongue.
If you swallow it, the stomach acid ruins it.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Yes this is common. I often felt if I broke
something or fell and injured I would not feel it
over the numbness and tingling. But it has got a
lot better in treatment for me.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
I've been dealing with neuropathy ever since my lyme diagnosis in 2005. I did several years of pretty aggressive lyme treatment and the neuropathy waxed and waned at times but never got better.
The neurologist I see has been running tests and they have continued to show a deterioration in my nerves...but..i started IVIG this year and for the first time since diagnosis the neurological test results have started to improve and I am also feeling a bit better.
I have no idea what the future holds but the IVIG seems to be helping with the neuropathy at least for now. I am not on any antibiotics for lyme but rather just herbs (already done IV abx, oral, etc)
For some ppl lyme treatment has helped their neuropathy symptoms but for me it never really did. Maybe because there was already so much damage?
Hope you feel better!
-------------------- Same nightmare, different day! Posts: 401 | From East Coast | Registered: Nov 2005
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Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
DavidX-What were your neuropathy symptoms and which have improved with IVIG? Thanks
Posts: 1155 | From Southeast | Registered: Oct 2005
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posted
Okay - this is getting worse - almost like it is creeping up my limbs and my facial parasthesias are much worse today. Is this common? Should I be worried - okay, lets face it - I'm already worried.
Someone tell me I'm not going to die - I swear sometimes these conglomeration of weird symptoms that come and go make me think I'm surely done for. Not a one is just a mild fleeting pain or issue - they all seem to be full blown and last long enough for me to worry.
First it was the headaches, next the facial tingling, then the joint pain, then the muscle pain, then the pelvic pain, now the all over tingling.
I'm having a really bad day - feeling like I am never going to know what it feels like to feel good again.
Two more weeks till the LLMD appt. - today I don't feel like I'm going to make it.
Aimee
Posts: 239 | From Virginia | Registered: Jun 2009
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posted
Yes, all that you've described is quite common.
It is the classic Lyme experience, to me anyway as I get everything you described.
I get the tingling feet/hands then the feeling spreads up my legs and arms sometimes, usually when I haven't slept as well the night before or if I stay up too late and I'm pushing my body.
Like right now I didn't sleep well last night so I have it in my forearms, face, tongue, and calves (as well as the feet/hands).
It can get worse and feel like an "internal vibration" feeling, (all over tingling, as you described).
Amy Tan describes this as "Dolby Digital Syndome" because it's like standing between two huge speakers.
Posts: 366 | From MA | Registered: Apr 2006
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posted
Alliebridge - thank you so much for this post - it came at just the right time - I needed to hear that someone else had the same experience. Sometimes it's just comforting to know that you aren't alone.
Thank you. Aimee
Posts: 239 | From Virginia | Registered: Jun 2009
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