LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Need Bicillin help

 - UBBFriend: Email this page to someone!    
Author Topic: Need Bicillin help
wendihk
LymeNet Contributor
Member # 20554

Icon 1 posted      Profile for wendihk     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was diagnosed last year with chronic Lyme/Babesia by a LLMD and had Igenix bloodwork to prove it.

Had picc line inserted and started with Rocephrin. Ended up in hospital a week later with sepsis.

I went to a homeopath since then and was given a multitude of ever changing potions.

I just got rebitten and went to an Infectious Disease doctor referred by my Gastro. (Have had serious Gastro problems all through this).

After testing me a couple of times through Lab Corp I finally came back with positive elisa and equivocal western blot.

Now my insurance will have to step up. Infectious disease doctor wants me to do Bicillin. Has anyone seen good results with this?

I don't want to do the picc again for obvious reasons.

She is ordering 6 weeks of shots doing them once a week. I know people who did it twice a week and didn't see any results.

Then again, everyone's different.

Any thought would be appreciated.

Posts: 114 | From New York | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780

Icon 1 posted      Profile for Vermont_Lymie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bicillin is a great treatment, but in my experience took longer than 6 weeks to see the best effect. I was on them almost a year, and really got better after 8 months at 2x/week.

Late stage lyme treatment can take a long time; hopefully you can continue bicillin longer if you are symptomatic or switch to a good oral abx for treatment.

You will have best results if you see a lyme literate doctor; your infectious disease doctor has not tested you for co-infections and probably does not realize that longer treatment is necessary. Go to the Seeking a Doctor section and ask for referrals there. Good luck.

Posts: 2557 | From home | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
savebabe
Frequent Contributor (1K+ posts)
Member # 9847

Icon 1 posted      Profile for savebabe     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had great results with bicillin especially after using them 3x week.

VL is correct when she says it takes a while to see results, but it better than the pic.

Posts: 1603 | From ny | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
lymebytes
Frequent Contributor (1K+ posts)
Member # 11830

Icon 1 posted      Profile for lymebytes   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bicillin is a commitment of 6 months to one year. I had some success in 6 months, my son has had great success so far in about 8 months of treatment. Also both of us did oral Biaxin as well.

--------------------
www.truthaboutlymedisease.com

Posts: 2003 | From endemic area | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
coltman
LymeNet Contributor
Member # 21272

Icon 1 posted      Profile for coltman     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by lymebytes:
Bicillin is a commitment of 6 months to one year. I had some success in 6 months, my son has had great success so far in about 8 months of treatment. Also both of us did oral Biaxin as well.

Why so long? You don't notice anything positive before that? I was kinda thinking anything which kills the most active form (spirochette) should have most noticeable relief of symptoms in shortest time. Am I wrong?
Posts: 856 | From MA | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
WildCondor
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Usually you start with 1.2 MU Bicillin LA once per week, and gradually increase to 3x per week. Its usually at least 6-12 months, and combined with other meds like Biaxin, Flagyl, Ceftin etc.
IP: Logged | Report this post to a Moderator
lymebytes
Frequent Contributor (1K+ posts)
Member # 11830

Icon 1 posted      Profile for lymebytes   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
My LLMd told me it would be a long commitment, killing Lyme is anyway. You won't notice the effects unless you take Bicillin long term, it is just the way it works. Lyme dies when it grows - most strains grown every 4-6 weeks. So 6 months covers 6 growth cycles.

Like Wildconor and I said - Biaxin is a good choice, she knows her stuff and Flagyl or Ceftin or other orals have to be considered to hit all forms of LD.

I noticed immediate good effects within days but it didn't last long and then entered into a herx that lasted months. For me it was a mental annihilator, making me very emotional, depressed etc. and really became overwhelming to continue along with total body pain.

So I returned to orals and have made some progress in the 3.5 years I have been at this, but have a long way to go.

I have heard from some people that Bicillin works best after coming off IV. I don't know personally, I haven't done IV.

During my 5th month I experienced 28 "good", not perfect days, but good. Then the herx began again at which point it wasn't long after I stopped due to pure discouragement of 28 days of thinking I was seeing the light at the end of the tunnel only to have a heavy herx hit yet again.

Truthfully, watching the succes of my son after so many months I now wish I had remained on it longer and increased my dose more. I have considered giving it another 6+ months.

My son noticed most improvement after the 6th month. He is doing pretty well, but still has a few lingering symptoms.

Lyme treatment is a marathon unfortunately - not a sprint. Oral, IV or IM..it all takes time.

Wishing you the best.

--------------------
www.truthaboutlymedisease.com

Posts: 2003 | From endemic area | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.