Topic: Can someone tell me why my head is Killing me 24/7 now for 2 months straight ?
lymetwister
Frequent Contributor (1K+ posts)
Member # 19590
posted
First it was pressure, then switched to pain, then both, now back and forth, but it is constant and doesn't let up.
I am trying not to take the Percocets I was given as they really don't take the pain away, but rather distract me and allow me to tolerate it better, but this is not a long term answer.
I just took one and didn't take one for 2 days as I don't want an addiction problem next on my plate.
Does anyone else have this ? My MRI is clean. My LP is Clean. My guess is that it's the Ketes gone wild, but I don't know for sure. This is just one symptom that has flared of about 10 or so since that IVIG.
I'm taking 5-HTP and it is helping greatly with the depression and anxiety. When I cry now it is only because of the pain in my head. I can usually tolerate very high levels of pain, but this is getting ridiculous.
LT
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Gary, check out this post someone started. It reminded me of when you said you get tehe head twitching or quaking...http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/85423
Do you think a Brain Spect and PET Scan would be helpful? Apparently these tests are supposed to show more detail than an MRI.
Posts: 515 | From In His Loving Care | Registered: Apr 2009
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posted
My headaches went away after successful treatment of babesia.
Posts: 8430 | From Not available | Registered: Oct 2000
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btmb03
Unregistered
posted
Sorry you've been dealing with this for so long, it feels horrible. I'm in a flare right now so my headaches have come suddenly and decided to stay.
Might even be sinus related, do you do nasal flushes? I might try those again, might help and can't hurt! Feel better soon!
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
Oh, those headaches, I remember them- the WORST. I am so sorry you're dealing with them. I just wanted to post that for me personally it IV ABX to get rid of them.
Maybe they arise from cranial nerve inflammation ('chetes doing) or meningitis or...
One never knows when dealing with Lyme and company, but I would ask your LLMD about them and about addressing neuro Lyme full-on if you are not already.
MorningSong might be onto something about getting a SPECT done. I haven't had one so can't comment much, but perhaps another thing to consider.
Hope you feel a little better today.
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Does anyone know what kind of headache causes the one sided pain? I know there's different symptoms for migraines, tension,...which one causes the one sided pain?
posted
Only two months? Not sounding unsympathetic, but I have had a headache since last December. Nonstop. Mostly on one side. All tests are clean. I wouldn't bother with a neuro. It you read Cure Unknown Pam W. talks about it as part of Babesia, and it didn't go away until she treated the Babs.
I take fiorcet with codeine, 2-3 a day. Yes they can become addictive if you're not careful, but I only allow myself to have up to 3 no matter how bad
Posts: 43 | From Upstate NY | Registered: Jul 2009
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