posted
Is it worth it to go gluten free? Does it make a difference with brain fog? I would like to hear peoples expierences. Thanks
Posts: 34 | From Minnesota | Registered: Jul 2007
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posted
I went gluten free before I knew I had Lyme. It got rid of a brain fog that I didn't even know I had. It also eliminated my anxiety and depression. I think the gluten free diet is a wonderful thing!
Posts: 984 | From US | Registered: Dec 2007
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I went gluten free because I found out I was gluten intolerant, but truthfully I haven't noticed a difference in how I feel either way.
I never even had obvious symptoms of gluten intolerance either. So when I found out I was gluten intolerant, it was a big shock.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Most LLMDs suggest a gluten-free diet. Many lyme patients have celiac but it may not be just a coincidence. Celiac can be caused by some infections.
It may also be that, for some who may not have (true) celiac, when the lyme clears, a person may be able to have some gluten again.
For others, the symptoms of celiac can mimic and be confused with the many symptoms of lyme.
Journal of Neurology, Neurosurgery, and Psychiatry 2002;72:560-563; doi:10.1136/jnnp.72.5.560
GLUTEN SENSITIVITY AS A NEUROLOGICAL ILLNESS
M Hadjivassiliou, R A Gr�newald, G A B Davies-Jones Department of Neurology, The Royal Hallamshire Hospital, Glossop Road, Sheffield, S10 2JF, UK
Excerpt:
. . . It has taken nearly 2000 years to appreciate that a common dietary protein introduced to the human diet relatively late in evolutionary terms (some 10 000 years ago), can produce human disease not only of the gut but also the skin and the nervous system.
The protean neurological manifestations of gluten sensitivity can occur without gut involvement and neurologists must therefore become familiar with the common neurological presentations and means of diagnosis of this disease. . . .
If you are thinking of having tests done, it is necessary to consume quite a bit of gluten daily for a while before some of the tests. Not all doctors are aware of this. Consult several sources to be sure.
There are also some genetic tests that can be done even on someone who has been gluten free for a long time. However, if a genetic test ruled out Celiac, that might not rule out gluten sensitivity if from an acquired state such as an infection.
Since I had been gluten free for years (I figured that out on my own after a couple E.R. visits told me nothing), a stomach biopsy was negative for celiac but another doctor told me that the test was done wrong and that I'd have to eat bread for a few weeks, each day.
I knew that would be very dangerous for me so they did the genetic blood test. It was 99.something leaning toward celiac. Bingo.
Going gluten-free saved my life. I was so depressed and suicidal (not know that I had lyme). Without gluten, the lyme was still there but I was not suicidal.
Body pain also decreased a lot - oh, there's still plenty but I don't have to end my life from the horrible pain that was beyond words.
Mostly, being gluten-free decreases the frequency of seizures that can send me flying. I have lots more work to do in that department but it has become very clear in my experience that there is a connection.
And, it may not hurt everyone to go gluten-free. Most products with gluten are simple sugars, not good for anyone. There are many choices of complex carbs that are gluten free. Just watch out for all the sugar substitutions.
If you want to try a few days without gluten, or a week, you may be pleasantly pleased with some of the changes. I have read, though, that it can take 6 months after a slip up for the effects of gluten not to affect the brain. That sure keeps me from ordering a pizza when I'm too tired to cook.
GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
After many conversations with Allergie Immun, they confirm that wheat allergies/DNA dysregulations can be silent, cause the leaky gut, and involve dairy and eggs because these animals eat grain and any dairy allergy is basically originating with the wheat/gluten frequency. It is often inherited and usually passed on to children. Many children today are born with a wheat allergy/dysregulation.
Allergie Immun has 100% success in eliminating this wheat/gluten regulation at the DNA level. Most grains contain gluten (BROWS = barley, rye, oats, wheat, spelt). Any dysregulation of this magnitude has a wide ranging effect on the whole regulation mechanism of the body and is a major contributor to any chronic conditions.
Most people from here who are doing the AI test were allergic to wheat/gluten, corn, soy, all fungi, most toxic metals, and many chemicals and other toxic substances. These errors in the electromagnetic system cause multiple dysfunctions when it comes to metabolism and detoxification, because the body does not recognize these substances as toxic and is therefore not able to eliminate them until the dysregulation is corrected. www.allergie-immun.de/Englisch
I would encourage anyone to read up on this subject.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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