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» LymeNet Flash » Questions and Discussion » Medical Questions » Informal Poll: How much time elapsed between your first symptom and antibiotic tx?

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Author Topic: Informal Poll: How much time elapsed between your first symptom and antibiotic tx?
CLR
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How much time elapsed between your first Lyme symptom and the start of your antibiotic treatment?


Or, how many of you saw the tick, removed it, developed symptoms, and then got antibiotic treatment within a month of the tick bite? If so, are you having trouble getting back to 100%?

Is it still true that the earlier you get diagnosed and treated, the better off you'll be?

Thanks.

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keltyl
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Many many years. Probably the majority of you are not even that old!
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Lymetoo
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About 42 years.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Dekrator48
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21.5 years

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

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kzuber
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I was only about 1-2 weeks ... but after 21 days of abx i was feeling great, now, after several months I think it's coming back .. not sure what to do.
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IckyTicky
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22 years.
The last 5 years of that I was rebitten and developed severe neuro symptoms.

Im 32 years old.

--------------------
IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND
IGG: 31+, 39IND, 41+
Also positive for Mycoplasma Pneumoniae and RMSF.
Whole family of 5 dx with Lyme.

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bettyg
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34.5 yrs. misdiagnosed by 40-50 drs.
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DeniseNM
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At least 23 years, probably longer.

--------------------
dx: MS in 1998
2007 - Lyme suspected
2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS
gall bladder out 7/09
Ceftin, Zith, Septra
LDN
Acyclovir
Monolaurin, DHEA, Pregnonelon, Curcumin

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JamesNYC
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Which time?

First time, had rash, 25 years later treated. (well not treated at all until:)

Last time, found tick, got treatment 7 months later.

Yes it's true, the earlier it's treated the less time the lyme has to invade all your tissues and the easier it is to get rid of.

James

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LittleLymie19
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Well, if my gut issues are due to lyme, then 12 years.

If not, then 4 years.

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KaitlinB
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At least 27 years, but more likely it's 34 years.

--------------------
Kaitlin

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Jane S
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I found 2 ticks on me in August 08, developed small pencil eraser size bulls eye, (I was too busy for DR and decided that if I got sick then I would go see DR) "Big Mistake" I began to see Doctors in November 08 due to fatigue, etc. Didn't put together symptoms with tick bite until June 2009

Many test and DR visits with scans, xrays, blood work, no real problems. Asked for lyme test in June remembering tick bite when friends at my barn mentioned and asked if I had been tested for lyme. (MY barn is heavily wooded, where we horse back ride with lots of ticks.) Lyme test was positive by Quest lab IGM WB but not CDC so I came here to find my LLMD.

Began ABX in June 2009 so 10 months before treatment for me. Going slowly, went downhill further after abx treatment but crawling back out slowly.

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sixgoofykids
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Over 30 years. Then when the symptoms came back and started worsening, 3 years.

Now three years later, I'm darn close to 100%. Pathogens are no longer a problem, just rebuilding health now.

--------------------
sixgoofykids.blogspot.com

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txgirl09
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About 2 months....
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alliebridge
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Ten years.
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riverpatrol
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8 weeks from tick exposure to first tx. But it didn't work: I've been on tx for 2 1/2 years and still fighting. I am better than I was at first, but still only a fraction of the person I once was. I am still legally disabled. Just identified and started treating co-infections recently so hopefully it will all end soon.
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lou
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two and a half years
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sutherngrl
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2 years
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nenet
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31 years, roughly. Maybe a few more. I was also likely reinfected several times over those 31+ years.

--------------------
Dr. C's Western Blot Explanation

Lymenet Success Stories

ILADS Treatment Guidelines

Medical & Scientific Literature on Lyme

"Long-Term Antibiotic Therapy Improves Persistent Symptoms Associated with Lyme Disease"

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joalo
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20 years [rant]

--------------------
Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

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Cockapoo1996
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16 years for Lyme
26 years for Babesia

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Robin123
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25 years. Medical professionals won't tell people here. Have to get the info about Lyme from the internet or some other way, like currently, UOS showings.

Have you been recently exposed? Yes, you do stand a better chance if you get treated early.

But also with a high enough abx dose. If folks go to a doctor and get too small a dose of abx, ie, the dose recommended by the weak IDSA guidelines, then we end up going chronic.

This happened to a friend here - went to the doc with a known tick bite, put on low amount of abx, and got sick.

That's why people have to go to LLMDs or study up to know what they need to be doing.

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Liz D
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25 years.
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feelfit
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at least 18 years.
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Lymetoo
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quote:
I was only about 1-2 weeks ... but after 21 days of abx i was feeling great, now, after several months I think it's coming back .. not sure what to do. [/QB]
TREAT!!! Go to Seeking a Doctor and find a good one!

--------------------
--Lymetutu--
Opinions, not medical advice!

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WildCondor
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10 years
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JamesNYC
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Cockapoo,

you've had babs for 26 years? Before you had lyme? Wow.

When did you figure out you had Babs? How did you trace it back that far?

I never even heard of babs until 2 years ago.

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jkmom
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3 1/2 years for my daughter.

Either 4 years for me or possibly up to 11 years or more.

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kam
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I really am not sure. Guessing that some of those weird symptoms that came and went could have been lyme related but I was still able to go to college, work, take care of a home and yard,etc.

Then in Oct 2001, got too sick to work or do routine chores around the house.

It took 18 months to finally get a dx as to why and start treatment.

When the docs were at a lost, I started doing research myself and learned I had all the symptoms of lyme disease but one.

Brought in the list to docs and was told that there is no lyme here...I wondered where here was.

I was even tested twice but both times the doctor's lost the test results when I asked for a copy.

I was told I was fine. Wrong.

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lorima
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17 years for me, 7 years for my husband.
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dmc
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17 yrs
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sapphire101
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15 years but probably longer
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lightparfait
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Since I was 10 years old....I"m over 50 now!
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springshowers
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One Month after I was bedridden but that treatment was for 3 months.

Then it took 4 years after that for me to get more ongoing ABX treatment.

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Linda09
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Rash developed about 1 month after tick bite along with severe fatigue and migrating joint pain.
On antibiotics the next day.
Did 2 months of antibiotics (Doxy).
Now symptom free.

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backintherain
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I saw the tick and removed it, developed symptoms, and started doxy less than 3 weeks later.

So far I have been treating for 2 years. I'm quite functional, but still fatigued and achy.

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Sick Tick
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Lots of tick exposure, got ill end of May this year, started on Doxy within 48 hours. Went on to develop neurological symptoms-by August was on 28 days IV Rocephin. Felt great, but 2 days after treatment ended, symptoms returned, along with some new ones (achey joints and muscles)

Most symptoms resolved and I was feeling close to normal, but then I got H1N1 and the Lyme neuro stuff flared up again terribly! Took about a month to stop. Currently, symptoms are mild, and I am still hoping that my early treatment will mean that I will stop at the early disseminated stage.

BTW-I have spoken with 3 folks who either had Lyme, or had a friend/family member with Lyme that was treated early, and all 3 were symptom free within 6 months to a year post treatment...so have hope! I still do!

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