LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Does anyone have gallbladder sludge from Rocephin and still take it?

 - UBBFriend: Email this page to someone!    
Author Topic: Does anyone have gallbladder sludge from Rocephin and still take it?
amkdiaries
LymeNet Contributor
Member # 7035

Icon 1 posted      Profile for amkdiaries   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have sludge in my gallbladder from taking Rocephin and really don't want to give it up. Would I be crazy to continue it?

Any experiences would be appreciated!

Posts: 425 | From NY, United States | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Well, you'll likely lose your gallbladder if you continue. I still have bile duct issues from losing my GB 5 yrs ago. In other words, having the GB removed does not solve all problems!

Never took Rocephin.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95344 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
DeniseNM
LymeNet Contributor
Member # 11182

Icon 1 posted      Profile for DeniseNM     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lymetoo - I'm having issues (severe pain and nausea) after my gb came out this past July. They did an MRCP and found a "fluid buildup" near where the gb used to be. I should find out more tomorrow. I'm kind of scared, though.

What kind of bile duct issues do you have?

--------------------
dx: MS in 1998
2007 - Lyme suspected
2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS
gall bladder out 7/09
Ceftin, Zith, Septra
LDN
Acyclovir
Monolaurin, DHEA, Pregnonelon, Curcumin

Posts: 243 | From New Mexico | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
WildCondor
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
I got gallbladder sludge from Rocephin too and stopped Rocephin, and my gallbladder went back t normal over a few months so I did not have to get it removed. I would not keep going unless you want your GB out, which is unnecessary, there are other antibiotics to choose from that are not as heavily biliary excreted.
IP: Logged | Report this post to a Moderator
kim812
LymeNet Contributor
Member # 17644

Icon 1 posted      Profile for kim812     Send New Private Message       Edit/Delete Post   Reply With Quote 
I too had gallbladder issues and even though I quit the Rocephin I had to have it removed.

The stones had disappeared by my gallbladder looked like mush so it had to come out anyway.

Posts: 343 | From North Carolina | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
lightparfait
Frequent Contributor (1K+ posts)
Member # 22022

Icon 1 posted      Profile for lightparfait     Send New Private Message       Edit/Delete Post   Reply With Quote 
Would someone please describe "gall bladder sludge"?
What is it, how do your get rid of it, and what does it look like when excreted?

Posts: 1009 | From NJ | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
Melodymaker
LymeNet Contributor
Member # 16434

Icon 1 posted      Profile for Melodymaker     Send New Private Message       Edit/Delete Post   Reply With Quote 
If I were you, I would stop the rocephin. Many people who have their gallbladders out continue having digestive issues throughout their lives.

Also, unless an operation is absolutely necessary, the stress it would put on your body, along with the stress from the Lyme, would not be good for you, and the risk of additional infection is undesireable.

My husband got stones with the Rocephin (We both have Lyme). He did not start having the gall bladder problems until after the 4 months of IV though.

They scanned his gallbladder, and he went on a very strict low fat, natural diet.

Six months later they scanned again, and our Dr. said the radiologist found it quite remarkable how much the stones had reduced.

He will get scanned again next month and we are hoping it will all be gone.

It's just my opinion, but I would stop the rocephin and go with other meds, and natural treatments. If you start having serious attacks they'll have to take it out. It's not worth losing your gall bladder and having to go through an operation.

--------------------
Wishing You Showers Of Blessings!
Lyme since Fall 1983 = Diagnosed Summer 2008
IV Rocephin 7 weeks Stopped due to drug fever
Now doxycycline
"For I know the plans I have for you...plans to give you hope and a future." Jeremiah 29:11

Posts: 421 | From Sunny South | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
slcd
LymeNet Contributor
Member # 5708

Icon 1 posted      Profile for slcd     Send New Private Message       Edit/Delete Post   Reply With Quote 
I would suggest finding a new antibiotic. I had my gallbladder out and they STILL switched me to a new antibiotic!

As for what it looks like . . . my primary care doc told me that the surgeon told her that my gallbladder "looked liked it was about to blow"

Posts: 415 | From Canton, GA United States | Registered: May 2004  |  IP: Logged | Report this post to a Moderator
Connieaag
Member
Member # 15199

Icon 1 posted      Profile for Connieaag     Send New Private Message       Edit/Delete Post   Reply With Quote 
Did anyone take Ursodiol while they were on Rocephin and still have GB issues?
Posts: 93 | From Midwest | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091

Icon 1 posted      Profile for Rumigirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes! But I took care of it with a Liver/Gall Bladder Flush. But my LLMD wants to make sure with an ultra sound before I continue (if he lets me continue!).
Posts: 3747 | From around | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Connieaag:
Did anyone take Ursodiol while they were on Rocephin and still have GB issues? [/QB]

I've been here a long time and have heard plenty of people who took the Actigall the whole time while on Rocephin and still lost the GB. (same as ursodiol)

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95344 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by lightparfait:
Would someone please describe "gall bladder sludge"?
What is it, how do your get rid of it, and what does it look like when excreted? [/QB]

You can't see it.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95344 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by DeniseNM:
Lymetoo - I'm having issues (severe pain and nausea) after my gb came out this past July. They did an MRCP and found a "fluid buildup" near where the gb used to be. I should find out more tomorrow. I'm kind of scared, though.

What kind of bile duct issues do you have?

I had severe pain and diarrhea last year after having to take a lot of abx for a sinus infection. It created a stone in the duct.

So I had that removed and the duct was clipped.

Everything was MUCH better. However, I still get pain when I eat fats (not every single time, but often). Sometimes I get severe pain early in the morning before I've even eaten anything.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95344 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
kim812
LymeNet Contributor
Member # 17644

Icon 1 posted      Profile for kim812     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had the scan before I started the Rocephin and my gallbladder was perfect.
I had my first attack after 6 months and they did another scan and I had multiple stones.

I stopped the Rocephin and the stones did disappear but the doc said it had to come out.

The surgery went great and I had no problems afterwards. I healed really well...2 years later I have no digestive problems at all.

Posts: 343 | From North Carolina | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
amkdiaries
LymeNet Contributor
Member # 7035

Icon 1 posted      Profile for amkdiaries   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I don't want to lose my gallbladder so I decided to stop the Rocephin for a few weeks and then re-evaluate my condition. I am still on Zithromax but Rocephin hits the CNS better.

I was on Actigall but did not take enough. That stuff is horrible. Thanks for your responses!

Posts: 425 | From NY, United States | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
Maryland Mom
LymeNet Contributor
Member # 2043

Icon 1 posted      Profile for Maryland Mom     Send New Private Message       Edit/Delete Post   Reply With Quote 
When I was first put on Rocephin years ago, it helped my neuro Lyme and Lyme carditis tremendously, but my doctor at that time did not bother with actigall or even ultrasounds when I began having GB attacks a few months into treatment.

I tried going off Rocephin for a few weeks, did all kinds of home remedies in attempts to clear my GB, then restarting Rocephin, then stopping again after another attack--till finally, I ended up with a GB so infected I required immediate emergency surgery to remove it, and a case of pancreatitis as a parting gift.

Now that it's gone (the GB, I mean) i do not miss it, and have no digestive problems. I was put back on Rocephin 2 weeks after my surgery and never again had problems.

If you ask me, I did it the hard way. Unless you don't mind losing your GB, I'd think about trying another abx. Once the sludging starts, it can be hard to clear, and those GB attacks are PAINFUL. I'd rather go through labor again!

Posts: 962 | From Charleston | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
amkdiaries
LymeNet Contributor
Member # 7035

Icon 1 posted      Profile for amkdiaries   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Took Claforan several years ago-Dosing is hard-three times daily and in my experience Rocephin is more effective.
Posts: 425 | From NY, United States | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
amk.. What does the Actigall do to you?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95344 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Melodymaker
LymeNet Contributor
Member # 16434

Icon 1 posted      Profile for Melodymaker     Send New Private Message       Edit/Delete Post   Reply With Quote 
Kim, if your gallstones went away, why did your doc want you to have the gallbladder out??

--------------------
Wishing You Showers Of Blessings!
Lyme since Fall 1983 = Diagnosed Summer 2008
IV Rocephin 7 weeks Stopped due to drug fever
Now doxycycline
"For I know the plans I have for you...plans to give you hope and a future." Jeremiah 29:11

Posts: 421 | From Sunny South | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.