posted
Anyone else experiencing this? I am 14 mo. into treatment. I have lyme of course--and babecia. Dr. thinks I am not improving very much and tested me for Barts again which came out negative. Now Mono?? What is next?
-------------------- Kitty Lyme, Babesia, XMRV virus Diagnosed 2008 Mepron, Zithro, Cepaflexin, Fluconozol, Vitamin, Herb therapy Posts: 65 | From Kansas | Registered: May 2009
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
The criteria he used is: Patients with "high" antibody titers against HHV-6 IgG ≥ 640, EBV VCA IgG ≥ 640 and detectable EA Ab at 1:160 or HHV-6 IgG ≥ 320 if EBV VCA IgG ≥ 1280 and has detectable EA Ab at 1:160 (measured by the average of a minimum of two time points obtained during screening at least 3 weeks apart).
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
I tested neg for Bart, but doc still treated based on symptoms and it made a big difference. It really made an impact.
Posts: 441 | From USA | Registered: Jul 2004
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My PCP ran EBV tests a long time ago and they came out negetive. However, my LLMD recently ran some special nuclear EBV tests and they were highly positive. I think EBV is very common in lyme patients who don't seem to be doing better on antiboitics, or at least that is what I seem to be reading.
I am a year into treatment, no better. I go see my LLMD next month, so I will see what he will do.
Timca, I know you are well versed on the viruses is there an antiviral that is better for EBV??
Posts: 893 | From Florida | Registered: Dec 2008
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
I was treated for HHV-6 and EBV at the same time with valcyte. It brought the antibody titers down and I improved healthwise. I am currently on acyclovir to keep those viruses in check.
A friend of mine also did a course of valcyte for HHV-6 and EBV. Her health improved as well. She is on valtrex, but has not had as much luck keeping her EBV titers in check. She may be upping her dose of valtrx.
We are both also dealing with other pathogens, including enterovirus.
Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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