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» LymeNet Flash » Questions and Discussion » Medical Questions » Now I have Epstein Barr..........

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Author Topic: Now I have Epstein Barr..........
kitts
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Member # 20542

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Anyone else experiencing this? I am 14 mo. into treatment. I have lyme of course--and babecia. Dr. thinks I am not improving very much and tested me for Barts again which came out negative. Now Mono?? What is next?

--------------------
Kitty
Lyme, Babesia, XMRV virus Diagnosed 2008
Mepron, Zithro, Cepaflexin, Fluconozol, Vitamin, Herb therapy

Posts: 65 | From Kansas | Registered: May 2009  |  IP: Logged | Report this post to a Moderator
timaca
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Do you positive IgM for EBV or IgG?

Here's some info on chronic EBV infection:

http://www3.interscience.wiley.com/cgi-bin/fulltext/111088889/PDFSTART

These authors find EBV VCA IgG of >=1:640 and EA of >=1:160 in patients with chronic active EBV infection (CAEBV).

This link gives additional info:

http://www.vicd.info/testing.html

Dr. Montoya's criteria for participation in his recent research is at this link:

http://clinicaltrials.gov/ct/show/NCT00478465?order=1

The criteria he used is:
Patients with "high" antibody titers against HHV-6 IgG ≥ 640, EBV VCA IgG ≥ 640 and detectable EA Ab at 1:160 or HHV-6 IgG ≥ 320 if EBV VCA IgG ≥ 1280 and has detectable EA Ab at 1:160 (measured by the average of a minimum of two time points obtained during screening at least 3 weeks apart).

Best, Timaca

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DJP
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I tested neg for Bart, but doc still treated based on symptoms and it made a big difference. It really made an impact.
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Need Lots of Help
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My PCP ran EBV tests a long time ago and they came out negetive. However, my LLMD recently ran some special nuclear EBV tests and they were highly positive. I think EBV is very common in lyme patients who don't seem to be doing better on antiboitics, or at least that is what I seem to be reading.

I am a year into treatment, no better. I go see my LLMD next month, so I will see what he will do.

Timca, I know you are well versed on the viruses is there an antiviral that is better for EBV??

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timaca
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I was treated for HHV-6 and EBV at the same time with valcyte. It brought the antibody titers down and I improved healthwise. I am currently on acyclovir to keep those viruses in check.

A friend of mine also did a course of valcyte for HHV-6 and EBV. Her health improved as well. She is on valtrex, but has not had as much luck keeping her EBV titers in check. She may be upping her dose of valtrx.

We are both also dealing with other pathogens, including enterovirus.

Timaca

Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005  |  IP: Logged | Report this post to a Moderator
   

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