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» LymeNet Flash » Questions and Discussion » Medical Questions » How much pain can one person take?

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Author Topic: How much pain can one person take?
mindylynn
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Member # 21401

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Hi All,

Just wondering, because right now my body is

screaming in pain. Burning, stabbing pain in the

neck, back, hands, hip, pretty much everywhere.

I have been in treatment for 3 1/2 years,

currently my LLMD is saying we are treating co-

infections. I am on Biaxin and now Omincef for

abx, and a whole bunch of other stuff. He

recently cut back on the Omnicef to every other

day because of the strong herx. but I honestly

can only take 300 mg every third day.I really

have been on alos a four week herx, ever since I

started the Omnicef.

To make things worse, his office is closed until Monday.

I have pain pills, but they do not touch the

pain. I have tried just about everything.I feel

like screaming, crying or just giving up.

LYME WINS!!!!!!!

I am worse this year and I am not sure why and

either is my LLMD. I just keeping hoping I'll get

to the four year mark and be so much better. But

right now I don't even know if I'll make it that

far.

I guess I need some suggestions on what to do,

you guys have all been there or are there now.

maybe time for a new LLMD, with a new perspective?

Thanks!

Posts: 10 | From New England | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
kitts
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Have you been tested for coinfections?

--------------------
Kitty
Lyme, Babesia, XMRV virus Diagnosed 2008
Mepron, Zithro, Cepaflexin, Fluconozol, Vitamin, Herb therapy

Posts: 65 | From Kansas | Registered: May 2009  |  IP: Logged | Report this post to a Moderator
mindylynn
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Hi Kitty,

No, I haven't. My LLMD,I guess, is just

assuming after all this time that maybe the

reason I am not better would be coinfections. I

don't know much about the testing, but heard that

it wasn't very accurate...what do you think?

Posts: 10 | From New England | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
massman
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If you have been on lots of drugs then your liver probably is not processing toxins.

Toxins from the drugs and neurotoxins from the bugs. Any naturopathic docs in your state ?

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mindylynn
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Not sure if there are any naturopathics here, we are kind of limited here, but thanks.
Posts: 10 | From New England | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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Coffee enemas and epsom salt baths always helped my pain. I think massman has a good point, if you're getting worse and killing bugs, it must be toxins.

--------------------
sixgoofykids.blogspot.com

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randibear
Honored Contributor (10K+ posts)
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i don't tolerate pain at all. anything above a 3 and i'm screaming.

the baths help. seems the moment i wake up, there it goes.

some days so-so and others are total screamers.

can't take pain killers so otc is all i can do.

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
glm1111
Frequent Contributor (5K+ posts)
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Look into treating with antiparasitics. Parasites and worms play a MAJOR part in Lyme disease. Check out

www.lymephotos.com

This is EXACTLY what came pouring out of me when I started antiparasitic herbs and salt/c. Previously I had done 4yrs of oral antibiotics including 6 mos of IV rocephin,

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
hurtingramma
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Nobody really answered the question of "how much pain can one person take"

I want to know the answer as well. I have also been in treatment for 4 years now and I have just as much pain now as I did 4 years ago. Changes locations, but just as bad.

What kind of toll does this take on our hearts, etc? All my blood tests for everything a regular Dr. would order are always OK, but I have to wonder.....

And we all know, if your test results are normal, you're not sick

--------------------
"Few of us can do great things, but all of us can do small things with great love". Mother Theresa

http://www.facebook.com/profile.php?id=1629665573&ref=name

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tmmort
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I can't take anymore....

No one seems to want to answer the "pain" question as I posed it a week ago or so.......

Magnesium and fish oil are great, I've been taking them for years, however I don't believe those recommending this really know what bone crushing, knife stabbing, debilitating pain is.

I've been in terrible pain lately. I have no idea why and at this point I don't care why. I just need less pain. When serious pain set in for me, that was all I could see or feel.

I've started taking Vicoprofen and am renewing my state marijuana license. I also take muscle relaxers. I think these three meds are helping the most with pain. I'm hoping this is just a flare up that will subside before too long. If not, I will continue to manage pain in whatever way works.

I hope you get some pain relief soon [Smile]

Posts: 69 | From fort collins, co | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
bettyg
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we all agree; PAIN IS THE WORST for most lyme patients.

but in my case, 3 things are WORSE!

sensitivities of lights, glare & reflection;

noise/sounds like full base volume;

and chemicals ... perfumes, colognes, aftershaves, hairspray, diesel fumes, cleaning/office products, some oriental foods, etc.

i can deal with my pain over these 3 sensitivities!

for my pain, i use a full length back heating pad and alternating with frozen 3M ice packs for my neck/upper shoulders, and lower back area.

pain pills don't cut it for me!

laughter is good; put on COMEDIES will take your mind off your pain.

[group hug] [kiss] follow the lyme green road to remission ...

it just can NOT come quick enough for any of us!

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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628

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You take as much as you can take before you break. Everything eventual breaks, even the strongest among us if enough pressure is applied.

In this case, you're not dead yet, so the question is, what is missing? You're missing something. What could be causing those types of symptoms. A co-infection, over-treatment rates.

If I were you, I would request that my treatment slow down -- even take a break for a week -- and then return to appropriate dosing.

You may be over-medicated for your individual circumstance. What else are you on, and how long has this excruciating pain been occurring?

--------------------
I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.

E-mail: sbauzys[email protected]

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richedie
Frequent Contributor (1K+ posts)
Member # 14689

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I feel the same. Some days I wish I could sleep forever. Now, the pain wakes me up. Hang in there. I know it is tough.

epsom salt baths do nothing for me, wish they did.

My pain is relentless, can barely take it.

--------------------
Mepron/Zith/Ceftin
Doxy/Biaxin/Flagyl pulse.
Artemisinin with Doxy/Biaxin.
Period of Levaquin and Ceftin.
Then Levaquin, Bactrim and Biaxin.
Bactrim/Augmentin/Rifampin.
Mepron/Biaxin/Artemisinin/Cat's Claw
Rifampin/Bactrim/Alinia
Plaquenil/Biaxin

Posts: 1949 | From Pennsylvania | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
   

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