SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Has anyone here been tested yet? If so, and you are comfortable sharing your results, I'd be interested in starting to get an idea of how common XMRV is in chronic Lyme. I think we're gonna see it is pretty common. Whether the puppet-master or another opportunist may be the bigger question....
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
runner21
Frequent Contributor (1K+ posts)
Member # 1974
posted
Hi Scott, i was in the clinic today and someone volunteered me to get tested. She said i owuldnt get the results for 2-3 months. i think its opportunisitic..but thats justmy thoughts..
Runner
Posts: 1118 | From jacksonville,fl usa/santa rosa ca | Registered: Dec 2001
| IP: Logged |
D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
No testing, but just a strange anecdotal result or coincidence. I do not know which.
I have run Rife type frequencies calculated to damage the genetic material in the XMRV virus on myself, my son and my wife.
My son and myself both have autoimmune diseases, and I thought the virus may be connected to these diseases, hence the experiment. My wife has Lyme and that made her a candidate also.
My son and myself had similar reactions to the treatment, such as itching and sensations and soreness in the intestinal regions.
My wife had no discernible reaction to the treatment at all. The interesting part was she developed Shingles shortly after my son's treatment. Since this is a plasma device all of us get treated if one of us is getting treatment.
I do not know if treating for one virus caused the other dormant Herpes Zoster virus to erupt or if they have the same resonant frequency. It could also be a complete coincidence.
I treated my wife's Shingles outbreak with the XMRV frequencies and more standard Herpes Zoster frequencies. The next day the symptoms were still painfully present. The day after they were resolving themselves, and now appear to be almost gone altogether.
Not sure what to make of it, but it was strange occurrence.
Dan
Posts: 2918 | From Minnesota | Registered: Aug 2006
| IP: Logged |
posted
I honestly don't see what the point is of wasting $400. Even IF we all have it, it is most likely another opportunistic infection. Retrovirus or not.
And, more importantly THERE IS NO CURE for a retrovirus like this. Not even in the pipeline.
I honestly don't know what the CFS folks have their panties up in a bunch for. The majority of them have never even been tested for Lyme or tried any Lyme treatment. I was diagnosed by a very well know CFIDS Dr. with CFS in 2003 and told to go home and rest and take my b-12 shots.
Later that year as I was going down hill quickly my friend (who had lyme) knew it was Lyme and sent me to an LLMD. Now in 2009 I only have 2-3 symptoms left and am fully active again.
My LLMD is already looking into this, so might as well wait and see before I waste more money.
Posts: 770 | From USA | Registered: Jul 2006
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Everyone can approach XMRV in their own manner certainly. I for one want to learn about it and make informed decisions about the potential health impacts. Closing our minds to the possibility that it may be a player seems unwise from my current POV though I understand not wanting to spend a fortune to get tested for it.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Hi Dan
What frequencies did you find out were specific for XMRV? And how often do you find you are treating for Viruses?
Thanks
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
| IP: Logged |
posted
I don't go back to my doctor until December. I'm going to see if I can get tested then. I'd like to know everything I'm dealing with.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 804 | From South Dakota | Registered: Jul 2005
| IP: Logged |
D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
I am still running them on myself on Occasion. I know so little right now. All I have are some random reactions to the frequencies, which do not mean a lot.
I do not know the amount of time that it will take to disable the virus. I do not even know for sure if I have it. It is all up in the air. I am looking for anecdotal evidence in the form of body function changes. I have noted a couple in myself, but not in my wife.
Other viruses such as Colds and Flu have been much easier to disable using frequencies than bacteria. I do not know why this is, but it seems to be the case.
I am using Char Boehm's frequencies calculated to damage the DNA and or RNA of a pathogen. I use these for Lyme also in my wife's treatment.
I cannot distribute these frequencies because they are proprietary. The set for XMRV cost me ten bucks.
Dan
Posts: 2918 | From Minnesota | Registered: Aug 2006
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Dan,
Did you use the frequencies as is or did you add a sweep/wobble? I have purchased them as well but have not run them yet.
I did run the set from Frequency Foundation via the F165 but want to run Char's via the Perl.
Thanks
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
You say you have to purchase frequencies?
Who is selling them? I am out of that loop?
Wow. Well.. hmmm Ok..
Can you tell me about what ones you use for just the flu and colds and herpes and such.
I have a list but its long and i wondered if you had success with a certain group more than others?
If thats not appropriate.. Asking that.> I apologize. I am new to the rife and trying to learn and still have a lot to learn. ..
Thanks
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
| IP: Logged |
springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Sorry about this as I asked on another thread too.
What is the difference in herxes you notice when trying to treat a Virus as opposed to a Bacteria (Lyme) as opposed to Parasite as opposed to Fungus?
I assume the Bacteria and Parasites would give bigger longer herxes and harder to treat??
I would assume in order of difficulty and severity it would go in order Bacteria, Parasite, Viral, Fungal
Or.. at least the first two go together and the last two?
I am just guessing and would love to hear from long time rifers..
I want to try to treat some viral issues but I am hurting right now and afraid to make it worse at this point..
?????
What would you suggest or can share with me about the treating of the Viruses..
I am assuming I am still working out the Flu I had as well as have been positive for the normal stuff we all are EBV HHV CMV and such...
Thanks for anything you can share.
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
dnafrequencies.com
Generally, you want to treat parasites first then bacteria and molds/fungi and then viruses. You want to go from larger to smaller as the larger also contain the smaller.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Thank you for that link. The explains a lot.
Also.. though. If I feel the viral issues are causing me some issues right now and I just want to work on them.. Is that backwards?
I should just keep on hitting the bacteria you say because they contain them anyway?
Hmmmm I did not realize or know that?
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I think that addressing viruses throughout treatment in some way makes sense, but not a focus on them that ignores the other factors in play.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
Colds and Flu frequencies that I use are the CAFL frequencies in the public domain. Unless you are treating a particular strain, and you knew you had that strain, it would not do much good to have specific frequencies since we rarely know what strain we have, or if it has mutated.
For instance, last year, I am fairly certain I had H1N1. I was never tested for it, but the Flu I had was so bad, I thought I might die from it. The Flu normally has minimal impact on me. I did not treat this with my GB-4000, because I did not have it available at the time. Even if I would have, I may have had a strain that had not even been talked about at that time. So I would have had no way of getting a specific frequency for it.
I usually only buy frequencies for bacteria or viruses for pathogens I know I am dealing with. These frequencies are mathematically calculated to damage the DNA or RNA of a pathogen. The pathogen has to have been genetically sequenced in order to calculate these frequencies.
The researcher that uses her patented method to come up with these frequencies, uses the small fee she charges to support further research in this field.
I almost always run these frequencies exactly as given with no wobble or sweep. Since they seem to work well as they are. I have noticed that they are much more effective when run at higher octaves than the Hz range. I run all of the DNA frequencies in the Mhz range. They just do not work that well at lower levels. I do not know why, but that has been the way they all have worked so far.
The vast majority of frequencies I use, are the free ones in the CAFL. Many work very well, but some pathogens are not listed. This is when the DNA frequencies are most helpful.
I have never experienced or witnessed a Herx from any treatment with frequencies for anything other than Lyme. There are a variety of other sensations and effects during or after treatment, but not usually negative ones.
Dan
Posts: 2918 | From Minnesota | Registered: Aug 2006
| IP: Logged |
posted
D Bergy-interesting that you said that your wife got shingles after rife treatment because one treatment suggested for XMRV is the AIDS drug AZT. I read that AZT, or Velcade (used for retroviruses) can cause shingles to activate. Don't know if there is any correlation?
quote:Originally posted by D Bergy: No testing, but just a strange anecdotal result or coincidence. I do not know which.
I have run Rife type frequencies calculated to damage the genetic material in the XMRV virus on myself, my son and my wife.
My son and myself both have autoimmune diseases, and I thought the virus may be connected to these diseases, hence the experiment. My wife has Lyme and that made her a candidate also.
My son and myself had similar reactions to the treatment, such as itching and sensations and soreness in the intestinal regions.
My wife had no discernible reaction to the treatment at all. The interesting part was she developed Shingles shortly after my son's treatment. Since this is a plasma device all of us get treated if one of us is getting treatment.
I do not know if treating for one virus caused the other dormant Herpes Zoster virus to erupt or if they have the same resonant frequency. It could also be a complete coincidence.
I treated my wife's Shingles outbreak with the XMRV frequencies and more standard Herpes Zoster frequencies. The next day the symptoms were still painfully present. The day after they were resolving themselves, and now appear to be almost gone altogether.
Not sure what to make of it, but it was strange occurrence.
Dan
What kind of Rife machine do you use?
-------------------- Lingering chronic symptoms: Fatigue, Derealization, Brain fog. Monthly fever with flu-like symptoms that last for weeks. Lyme WB Bands Positive: 31, 41, 58, 66 HHV6, EBV, CMV, & Mycoplasma IGG positive. Chronically Low CD4 count. Posts: 106 | From Texas | Registered: Apr 2008
| IP: Logged |
D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
I use both a Rifelabs EMX and a GB-4000. I have been using the EMX more lately, and that is the one I was using for XMRV.
That is an interesting bit of information about AZT. Thanks for bringing it to my attention.
Dan
Posts: 2918 | From Minnesota | Registered: Aug 2006
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I think jumping to AZT for XMRV is a bit of a knee-jerk reaction. It would be the last thing I'd consider.
I'm hoping that herbal and/or homeopathic and/or additional frequency-based therapies emerge vs. more poisons...
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
AZT is not a drug to use lightly. I do not think I would do that, unless my life depended on it.
Dan
Posts: 2918 | From Minnesota | Registered: Aug 2006
| IP: Logged |
quote:Originally posted by sunnymalibu: D Bergy-interesting that you said that your wife got shingles after rife treatment because one treatment suggested for XMRV is the AIDS drug AZT. I read that AZT, or Velcade (used for retroviruses) can cause shingles to activate. Don't know if there is any correlation?
I know someone, who knows someone who uses AZT for other reasons, and don't have much problems with it.
Very interesting sunnymaliby. Do you know anything about who/where the suggestion comes from (AZT)? (link would be great)
Posts: 275 | From Home | Registered: May 2007
| IP: Logged |
djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
I can concur that the aids drug used for some viruses "can possibly" cause shingles ourbreak.
My mom recently had a bad virus, was put on that drug, and then developed shingles.
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
posted
Someone with treatment resistant lyme was positive for xmrv over at the phoenix rising forum.
Posts: 366 | From Europe | Registered: Nov 2008
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
That will become more than rule than the exception I suspect. We'll see.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
quote:I am using Char Boehm's frequencies calculated to damage the DNA and or RNA of a pathogen. I use these for Lyme also in my wife's treatment.
So what are you using GB 4000 (with amplifier or not? ) or EMX?
Posts: 856 | From MA | Registered: Jul 2009
| IP: Logged |
D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
I used the EMX, but I am thinking of using the GB also. Just to see if it produces any different reaction. I always use the amp with the GB.
Actually, I am going to run them on my son again right now, as he had a similar reaction as me, the first time. He also has an autoimmune disease, as I do.
Dan
Posts: 2918 | From Minnesota | Registered: Aug 2006
| IP: Logged |
posted
Dan, how do you avoid a wobble with an analog machine? I am thinking with DNA frequencies you would not want to wobble or sweep.. a little concerned of hitting something good DNA and damaging myself.. that makes sense?
I cant remember if the EMX or EMEM3d from rife labs is analog or digital. I think (could be wrong) DTs machine is.
Posts: 861 | From USA | Registered: Dec 2008
| IP: Logged |
posted
My LLMD has recently prescribed me Artesunate for lyme and coinfections. The pharmacy tech said they are also using this to treat XMRV and CFS and having good responses.
posted
There is a group of kids in the autism community that have been testing positive. Have heard that they are using SAMe to help. They are not sure if this is do to a methylation problem (interferes with the MAT enzyme) or something else.
I would love to have my son tested. I am going to try to contact the company where my friend's son was part of a study.
My son seems to get very angry with natural antivirals. I wonder if we are killing something like XMRV. He is autistic and is positive for the "mystery bug" on his cells.
Posts: 236 | From Illinois | Registered: Feb 2009
| IP: Logged |
D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
I don't think a wobble is going to hurt any. Human DNA has a stronger bond than lower life forms, or so the theory goes. It may even work better, no one knows at this point.
Dan
Posts: 2918 | From Minnesota | Registered: Aug 2006
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I'd like to understand the mechanism of action of SAMe on XMRV as well - the methylation theory makes sense to me. Maybe with improved methylation, XMRV becomes a lesser issue?
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
posted
I will post once the autism community gives an "official" reason.
Posts: 236 | From Illinois | Registered: Feb 2009
| IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Scott wrote: I'd be interested in starting to get an idea of how common XMRV is in chronic Lyme.
My LLMD's office said about 50% are testing positive. I think they have tested a small number of people so far so this may not be very accurate once they have a larger sampling.
As far as methylation, there are some mutations that cause difficulty deactivating viruses. According to Yasko, low BH4 causes this and more severe parasitic infections too. Some of the mutations that I know of are the CBS upregulation, MTHFR A1298C and I think SUOX. There are probably more.
Terry
Posts: 6282 | From Oregon | Registered: Jan 2006
| IP: Logged |
quote:Originally posted by kareamber: My LLMD has recently prescribed me Artesunate for lyme and coinfections. The pharmacy tech said they are also using this to treat XMRV and CFS and having good responses.
Just thought I'd share
kareamber, where do you buy your Artesunate and what dosage are you trying? Thank you.
posted
Thanks, Dan.
Posts: 861 | From USA | Registered: Dec 2008
| IP: Logged |
springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
I am waiting on my test results..
I see there has not been any responses of people who have been tested and their results?
That is odd? Are there people who has been tested yet that are on this forum or other you know of? ??
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
| IP: Logged |
posted
I'm currently living in the UK and my LLMD prescribed the Artesunate. He has it made at a specialty lab I guess. I am taking 20mg tablets 4x daily. I've been taking it for about 3 days now and feel horrible. I've heard it's pretty potent stuff and also read it works as an antiviral as well.
posted
My son took the Zhang herbs (I think it is artesunate...correct me if I am wrong). He did not seem to have a response to that. I do not know if he has XMRV, but I am trying to get him tested.
He does seem to react to LDM-100, though. It is a natural antiviral.
Posts: 236 | From Illinois | Registered: Feb 2009
| IP: Logged |
posted
My son took the Zhang herbs (I think it is artesunate...correct me if I am wrong). He did not seem to have a response to that. I do not know if he has XMRV, but I am trying to get him tested.
He does seem to react to LDM-100, though. It is a natural antiviral.
Posts: 236 | From Illinois | Registered: Feb 2009
| IP: Logged |
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Dan,
Are you sure that you and your son don't have Lyme or some other pathogen?? I know you have an "autoimmune" disease, which to me means an undiagnosed or incompletely treated pathogen(s). I am not a doctor, but I've been studying and practicing in natural health care for over 40 years, and have come to believe this strongly.
I know you are treating for various pathogens with your rife machines. I'm just thinking that there is likely some pathogen(s) that you either haven't had diagnosed yet or haven't finished treating that is causing this.
Autoimmune just seems like another waste-basket diagnosis to me, if you know what I mean (putting it in that category because they don't know what causes it). Two possible causes that come to mind are parasites (they can be macro or micro), or Bartonella. Of course there are lots of other possibilities, including Lyme.
Posts: 3748 | From around | Registered: Mar 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/