posted
Does anyone have this issue? The cholestyramine makes me so nauseous I have to wait about 8 hours from the time I take it, to be able to eat a meal...
If you have had this issue, what did/do you do to help it?
I'm supposed to take the dose 3x/day, but if I take it once, like I said, I'm severely nauseous for at least 8 hours.
Posts: 215 | From Student | Registered: Oct 2007
| IP: Logged |
posted
I know cholestyramine can stir things up .... I had trouble with it my second time around, but it was more the Lyme symptoms. I'd ask your doctor.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Did you start with very low dose and only slowly add more? In the beginning I got dizzy with half tablet and then I had no problems with 18 a day.
You can also herx from it.
I cannot take the one with artificial sweetener but your Dr. can order ch. without sweetener at lionville.
posted
I take the powder . I put in it about 4 ounces of V8 juice and mix with a very small wisk.You can also put in a blender.
Drink it down. Then add about another ounce to get rid of the taste.
I've had no problem with it at all.
With the powder I wait 1 to 1-1/2 hours before and after food or pills.
Are you allowing enough time between meds and food before you take the Cholestyramine?
Posts: 671 | From Fort Myers, Florida | Registered: Jun 2009
| IP: Logged |
posted
I take it (powder) 2 hours after a meal which includes meds, then I wait a minimum of 2 hours to be able to eat and take meds again. The challenge is, I can't ever eat 2 hours after I take it. I can't drink water either.
It makes me so nauseous I've been having to do phenergan suppositories and can't sit up without gagging.
And, I can't do V8 juice because I have a stomach ulcer.
I get the one without artificial sweetener; it has sugar in it. I don't ever eat any sugar and yeast isn't a problem for me, so it's not an issue for me.
I have tried taking less of a dose which helps a little bit, but the full dose helps me to feel better (migraines) so I want to be able to take the full dose.
Posts: 215 | From Student | Registered: Oct 2007
| IP: Logged |
posted
I do cholestryamine with OJ which makes it quite tasty, but understand some cannot tolerate the natural fruit juice sugars.
On days when i dont take cholestyr. i take 30 or so tablets of Chlorella--cell wall broken kind. It's supposed to be great for detoxing, but I don't know what's working--except that Chlorella is a "smart" phytonutrient--plant based and doesnt extract vitamins/minerals/other meds out of the body.
Hope this helps--i have 3 bottles of chlorella in my house, 1 at work...cholest at both places. I just do what i can when i can.
Posts: 123 | From Minneapolis, MN | Registered: Jul 2009
| IP: Logged |
WildCondor
Unregistered
posted
You cannot herx from cholestyramine people. You can only herx from anti-spirochetal drugs. Educate yourselves to know what you are talking about so we don't all look even more ridiculous here. Questran can cause nausea. Just stop taking it, or reduce the dose.
IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Actually, Questran can cause a major flair in symptoms. This is why many doctors use Actos with it to limit the worsening of symptoms. If one has mold only, Questran generally does not cause this worsening, but with Lyme, it does. So I am not sure it is entirely true that one will not experience a worsening of symptoms (herx or whatever you call it) from Questran. It does happen.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Wild is saying you can't call it a herx because a herx is a "die-off."
A flare up is completely different.
Anything can cause a falreup.
Traveling for me causes a flare-up... not a herx.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
| IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
One of the side effects of cholestyramine is severe stomach pain with nausea or vomiting. As six mentioned, it's a good idea to discuss this with your doctor.
Scott is right on, actos is used with cholestyramine to mitigate the flare that lyme patients often experience when dealing with dead bug debri and other toxins.
My understanding is that cholestyramine pulls the dead bug debri out of tissues which causes increased cytokines/inflammation. Cytokines are thought to be a major factor in the Jarisch-Herxheimer reaction as well so it is similar if not the same reaction.
I don't know if the nausea is part of a herx type reaction or a side effect of the medication. If it is a side effect, it may go away after a time on the medication.
Terry I'm not a doctor
Posts: 6282 | From Oregon | Registered: Jan 2006
| IP: Logged |
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I took it once and don't know what I'd call it, but I got scary ill quickly. My head felt like it was going numb. I didn't take Actos. I'm not saying a herx, but it waS alarming!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
| IP: Logged |
posted
The way it was explained to me was that you drink your cholestyr. then 30 minutes later, you eat something with fat (even a scoop of peanut butter or nuts).
I dont have nausea from cholestry. but mainly mine is from antibiotics.
But many react differently. There are natural ways to rid of toxins too and i would write more on that, but i have a case of the brain fog. LOL
Posts: 123 | From Minneapolis, MN | Registered: Jul 2009
| IP: Logged |
quote:Originally posted by WildCondor: [QB] You cannot herx from cholestyramine people. You can only herx from anti-spirochetal drugs.
The terminology may not be correct, but CSM CAN cause an intensification of symptoms.
I stopped taking it after a few months. It was horrible stuff.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 95726 | From Texas | Registered: Feb 2001
| IP: Logged |
emla999/Lyme
Frequent Contributor (1K+ posts)
Member # 12606
posted
When I first started taking Cholestyramine I experienced very painful headaches......and I do mean painful. I cut the dosage in half and the headaches went a way.
I don't know how or why the cholestyramine gives me a headache when I take it at the full dosage but it does.
Although, other than a little constipation the Cholestyramine never caused me to have any stomach problems.
Posts: 1223 | From U.S.A | Registered: Jul 2007
| IP: Logged |
posted
Cholestyramine (CSM) can make the person who is taking it feel VERY ill! I believe Richie Shoemaker, the physician who developed the CSM protocol that is used for neurotoxin removal, called this reaction an "intensification reaction." (He talks about it in his book which I believe is called "Desperation Medicine").
Dr. Shoemaker found that patients who had Lyme Disease who used cholestyramine were the people who often become very ill while using CSM, whereas other people who also benefitted greatly from CSM's detox capabilities (people who were not afflicted with Lyme), did not similarly get so sick on it.
As I recall, he recommended using Actos, a medicine used by diabetics, along with the CSM for the first several days on the protocol to properly open up "the receptor sites" for the CSM. It works very well. My first attempt using CSM I became violently ill with horrific headaches and nasty episodes of vomiting.
Within a month after that awful first experience using the protocol, I tried using it again, along with "Actos" for the number of days Dr. Shoemaker recommends. That time I did very well on the CSM and had no problems with headaches, severe nausea or feeling deathly ill.
Posts: 45 | From Northeast | Registered: May 2001
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic