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» LymeNet Flash » Questions and Discussion » Medical Questions » Not getting better :(

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Author Topic: Not getting better :(
sonee123
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Member # 18632

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I feel worst and worst by the day since cold started.

I have been on Amoxy 1000mg and biaxin 500mg a day since last march 09.

I stopped abx in sept for 3 weeks per my doctor and since cold started i got so worst i went back on them again.

This week will be my 2nd week on Rifampin 150mg first week and 300mg this week and biaxin 500mg.

I feel so sick today! Like all of my symptoms returned. I am not sure if its the med or what but i do know cold is another disease for me. as soon as i step out i feel bugs crawling all over my brain and everything is worst.

I feel so sick and down. i dont know why i am going downhill.

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May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen.

Posts: 341 | From Columbia, MD | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
LisaS
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Sorry you are so sick Sonee! I don't have great advice or anything, just wanted to send you a huig and some healing thoughts! [group hug]

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https://www.facebook.com/profile.php?id=1660435643

Posts: 1078 | From Lake Geneva WI | Registered: Nov 2006  |  IP: Logged | Report this post to a Moderator
treepatrol
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My worst herxs also included Headcold symptoms.

[ 11-24-2009, 01:37 PM: Message edited by: treepatrol ]

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Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
ping
Frequent Contributor (1K+ posts)
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Hi sonee:

Can't tell the exact nature of the word "cold" as you're using it. If you're refering to cold weather, then, you're not alone. Many people with TBD find extremes of cold / hot intolerable. Usually associated with cold fronts and other barometric pressure changes as the seasons progress. I know of one fellow who reacted so violently to a cold front that he clenched his teeth and broke a tooth.

For me, it's the horrendous, humid, steam bath of a summertime here in Texas, esp. along the Gulf Coast. (That's why I work Alaska during the summers now!)

All you can do is keep your body covered and stay as warm as you can. Hang in there, I know you ache.

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ping
"We are more than containers for Lyme"

Posts: 1302 | From Back in TX again | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
TxLymie
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Sorry you are feeling so bad sonee. I am in the same boat. 5 months of treatment and only seem to be getting worse. I ache all over today too.

Wish I had some advice for you but I'm still trying to figure it out myself.

Ping, I live near the Gulf Coast too so I hear ya on the humidity. I have often wondered if I moved if I would feel better.

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TxLymie
IgG-Negative
IgM - Postive bands 23 and 41

Other dx: 2000: Endometriosis 2009: Chronic EBV, Mycoplasma infection, HHV6, H.pylori

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ping
Frequent Contributor (1K+ posts)
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TxLymie - Howdy friend! I see you're in Houston. I'm east of you in a refinery area and closer to the coast where the HOT breeze blows. (Not even a cool breeze off the Gulf, geez.)

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ping
"We are more than containers for Lyme"

Posts: 1302 | From Back in TX again | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
WildCondor
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It's quite easy to figure out why you are not getting better. Your doses are inadequate and completely ridiculous for treating Lyme. You clearly need a LLMD, and if you think you have one, you probably don't.
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Amanda
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Are you seeing an LLMD? If you are not, then there is a good chance you are not going to get the medicine you need, and you won't get better.

If you have lyme and a co-infection (and it sounds like you have bartonella??), then it can take several years to recover. It could be that you are having die off of the orgamisms, which makes you feel worse. If that is the case, it means treatment is working, but it does take time before you feel better

I agree with WildCondor though, your medicines doses seem sort of low. Some doctors treat slowly so that you do not herx to death, but if you are not getting better, then it could be that you need to increase your medicine doses.

I would call teh LLMD and tell them how you are feeling.

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"few things are harder to put up with than the annoyance of a good example" - Mark Twain

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sonee123
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Really? I thought that is the maximum amount my body can tolerate of abx.

What is the adequate dosage for my meds?

Is it bad if i miss my med one day and take it the next cause sometimes i do that.

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May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen.

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Amanda
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Adequate dosage is best determined by your LLMD, and depends on your symptoms, weight, whether you have co infections, which co-infections you have, and any other underlying health issues.

This is why it is important that you see someone knowlegable about tick diseases (a lyme literate MD, or LLMD for short).

You can go to teh ILADS website (ILADS.org), and download a copy of Dr. B's treatment guidelines. There you will find recommend dosages. But again, everyone is different, and you really need a lyme literate MD to decide what is best for you.

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"few things are harder to put up with than the annoyance of a good example" - Mark Twain

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tick battler
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Another reason why people don't get better is because they don't treat the coinfections.

Do you have night sweats? What are your top 20 symtpoms?

My husband is finally with a good LLMD - it is his 5th. The others were not aggressive enough, in my opinion, and didn't diagnose or adequately treat coinfections. He's finally on a regimin as aggressive as my 3 year old's.

tickbattler

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WildCondor
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Read the treatment guidelines (link below) yes your doses are tiny.
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