posted
My 16 YO daughter has done great with Rocephin, until yesterday (beginning of week 8) when we discovered her Gall Bladder is full of stones. It was clear before she started, so we can acurately say it was caused by the Rocephin, even though she was on Ursodiol the entire time.
Of course we stopped Rocephin, and actually the plan was to end it this week anyway, we just did it a week early.
Appointment with doctor on Tuesday, but just wondering if anyone has experienced the stones disolving on their own after Rocephin is discontinued? Just wonering if it ever happens, or if we shouldn't prolong things if it will eventually need to come out anyway.
posted
Am in the same boat but I won't have the gallbladder out unless it is life threatening to keep it in. I discontinued the drug and latest ultrasound shows sludge remaining so I am looking into doing a gallbladder cleanse to get rid of it.
This is the second time it has happened to me and feel I should have had more frequent unltasounds to prevent it from developing further.
Posts: 425 | From NY, United States | Registered: Mar 2005
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i'm with you. i had mine taken out and it's been the worst decision of my life.
i'm left with chronic ibs symptoms and periodic pancreas problems.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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WildCondor
Unregistered
posted
Was she not on Actigall? If not, why not! Anytime you take Rocephin you need to be on that to prevent this. Try a gallbladder flush...I'd see if they go away on their own before I'd have surgery. Good lord.
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posted
Was she infusing 7 days a week? What dosage was she on? I'm just curious. I infuse 5 days a week 2 gms a day.
Posts: 86 | From California | Registered: Oct 2009
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Actigall (brand name) is the same as Ursodiol (generic).
Posts: 398 | From By the Salish Sea | Registered: Dec 2008
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Do a search for a liver/gall bladder flush, ie, like the Hulda Clark one. Do that, and, you can do another one two weeks later. Keep doing them until all the stones are out. You don't need to have her gall bladder out! This works well and painlessly, and it costs pennies!
When I was on rocephin, even though I was taking Actigall, I got nausea from gall bladder sludging. But I did a flush before I started, and did more later, and then I was fine. It's an important tool to have and use.
Posts: 3748 | From around | Registered: Mar 2008
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gallstones. But remember you need to know sometimes
nothing can be done to prevent surgery. If the
ducts get blocked you could die.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Her PCP spoke to a specialist who does a procedure where they go in the bile duct to remove the sludge/stones and "suck' it out, while leaving the gall bladder. It is supposed to be for something like this where we know she had no stones prior to Rocephin, so the risk of them returning is low.
He also had her increase the Urso (double what she was taking) for 10 days and will do another Ultrasound at that time to see how it looks.
Definitely watching for signs of inflamation and he said it can happen quickly.
Posts: 93 | From Midwest | Registered: Apr 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Look up the Lemon Olive Oil drink that I posted about. You can do a search. That's resolved a lot of people's issues when it came to this.
Let us know how things go. Maybe if she's fortunate, it will resolve itself, but either way this tool is highly useful and could prevent even having to have a procedure.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
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