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» LymeNet Flash » Questions and Discussion » Medical Questions » Grand Mal Seizures

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Author Topic: Grand Mal Seizures
tory2457
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My brother in law just suffered his 2nd Grand Mal Seizure, and I'm wondering if I should suggest he get tested for lyme?

He was just given a spinal tap, and it came back without any results of anything. (I'm not surprised), so he'll leave the hospital (again)without any "reason" for the seizures. I don't yet have a list of his meds, but thought I'd throw this out for some answers.

Here are some of his ongoing symptoms:
flu like symptoms off/on
deja vu
forgetfulness
bouts of sweating

He lives in another state so I'm just learning about some of his health issues.

My question is what are the chances of seizures being caused by infection? I've done searches here and noticed that some "in" treatment get seizures....could it be in reverse for others?

thanks for any feedback, as we know this is never an easy topic of discussion when going against mainstream docs.

btw, I'm in treatment for lyme with Dr P in CT so I have all the info needed to send him. Thanks for thinking you need to welcome me with all the wonderful helpful things you do, but I already have them stashed away in my Favorites file. [Wink]

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kelmo
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Greatly. I was suffering them just as I was drifting to sleep. My husband said I was having them in my sleep in the middle of the night. Sometimes they would wake me up, sometimes not.

While waiting for the results of my Fry lab and western blot, I went to a neurologist. Actually, he was my second neurologist. The first one put me through all the tests, MRIs, etc. then told me everything was normal.

After getting a copy of my report, I noticed some markings. Didn't seem normal to me. Daughter's LLMD said to see him, and the neuro.

The neurologist and I looked at my MRI scans (something the first neurologist never did). There were white dots all over my brain.

He said, which shocked me, "It appears you have had some strokes. But, I don't believe they are. I believe it's due to infection".

Holy crud. Next week, band 41 was positive, as well as a few viruses. I am now on Biaxin, and haven't had any more seizures.

My daughter had white spots when she first got ill. Three years later, white spots are gone.

Some on this board get seizures all througout the day. Do a search. Print it off and send it to him.

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Keebler
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I've dealt with a few kinds of seizures, some grand mal. Yes, he should be evaluated for lyme, other tick-borne infections and other chronic stealth infections, too, such as mycoplasma p. or Cpn - even HHV-6.

FIrst, he should have been given IV magnesium mix in hospital but I doubt they did that.

Glad you have all the details of what to send your brother so I'll not "go there" but will add some links for supplements that have helped me lessen seizures.

You said that some "in" treatment have seizures and that's because this is just so complex and there is no magic bullet. Most seizure drugs are very toxic to the liver and I've done much worse with the. But I also have porphyria so that explains a lot with a stressed liver.

As for if some seizure meds might help in the time being, I suggest first trying Neurontin as that is the least toxic choice and works more through the kidneys than the liver.

But, actually, first I'd do IV magnesium and taurine with a good LL ND and back up with other ways to get the magnesium up there. But most people want to start with the drugs and - it is certainly best to use whatever each person needs to prevent accidents and injuries but being as safe as possible for the liver and kidneys.

Andrographis has been the most helpful along with Magnesium and Fish Oil. Schizandra Berry, too. sometimes spelled with an "s" where the "z" is.

I'll be back with support links for stuff that has saved my life.

Does he live is a state that has access to LLMD or LL ND?

He is lucky to have you to help figure out some keys here. I'll come back with links for stuff I've mentioned.
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[ 01-03-2010, 07:32 PM: Message edited by: Keebler ]

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Keebler
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-

Beyond the fact that seizures often go with lyme (infections &/or too many toxins can cause seizure in ANYONE, as can low magnesium, all as Marnie often points out.

Also, in my case, the inner ear is connected to the seizure startle. Not unheard of for inner ear disorders but most doctors don't realize that when the inner ear signals get overwhelmed, so can the brain - and the adrenals - and all bets are off.

Adrenal support is key to good seizure control.

===============

ingesting even a trace of aspartame or MSG? Even a trace? check even your cough drops, toothpaste, etc.


B-12 shots have helped me tremendously. A special kind is mentioned here:

http://www.lymepa.org/Nutritional_Supplements.pdf

Nutritional Supplements in Disseminated Lyme Disease


============


http://tinyurl.com/5aegv5


Altern Med Rev. 2007 Mar;12(1):9-24. Links

Natural approaches to epilepsy.

Gaby AR.

. . . This article reviews research on the use of diet, nutritional supplements, and hormones in the treatment of epilepsy. . . .


=================


http://www.vrp.com/ArticlesSearch.aspx?k=Seizures

Search results for Seizures: !4 articles


Among those, this one is where I would BEGIN. It has a fabulous list of many things that have helped me:


http://www.vrp.com/articles.aspx?ProdID=art1066&zTYPE=2

Seizures: A Nutritional Approach


Seizures can be attributed to a number of causes including metabolic abnormalities, infections, nutritional deficiencies, or trauma. . . .


-------

http://www.vrp.com/articles.aspx?ProdID=art1734&zTYPE=2

Vinpocetine: Cognitive Enhancer's Role Expands to Incontinence and Epilepsy

--------


http://www.vrp.com/articles.aspx?ProdID=art2168&zTYPE=2

The Liver: Detoxifying This Vital Organ Nourishes Overall Health and Vitality


=================

http://www.ncbi.nlm.nih.gov/sites/entrez

PubMed Search:


Hypomagnesemia, seizures - 90 abstracts

Magnesium, seizures - 723 abstracts


Calcium, seizures - 1782 abstracts

Fish oil, seizures - 14 abstracts


-===============


ARNICA - BOIRON homeopathic - I take this right after a seizure and it reduces brain swelling.

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Keebler
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Some of his symptoms (Deja Vu, etc.) could be from inner/middle ear involvement, which can be separate from infection or go with it.

Be sure to see the vestibular symptom list:

--------------

www.vestibular.org

VESTIBULAR DISORDERS ASSOCIATION

-----

http://www.vestibular.org/vestibular-disorders/symptoms.php

VESTIBULAR SYMPTOMS

===================

In any of those, some information here:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=065801

Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links.

=========================

From a dysfunction of the liver, secondary porphyria could also be involved, with or without lyme or other infections. Details here:

http://www.cpnhelp.org/secondaryporphyria


SECONDARY PORPHYRIA: what you should know before starting a CAP (combined antibiotic protocol)

===================

Then, you can find more links here for other kinds of porphyria, especially KPU and Klinghardt's protocol designed for lyme patients:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/87840?

Topic: Porphyria

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Keebler
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I mentioned above that andrographis had helped to calm the initial hitting of the switch from a startle so that seizures don't shoot me to the moon like a rocket.

When I did allicin, that also was of help but I had to stop that protocol due to funds.

Andrographis is much more within my reach, though it does make one more tired whereas allicin does not have that property. Andrographis is okay for use regarding porphyria. It can actually help the liver in this regard.

Still, I've studied andrographis research and it has many good qualities so I'll stick with it (in absence of a LLMD in my world).

Just as with allicin, many LLMD also incorporate andrographis into patient plans.

For an intro about andrographis, many good pages of research in this book.


http://tinyurl.com/5vnsjg


Book: Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections - by Stephen Harrod Buhner


website: http://planetthrive.com/2009/08/buhner-healing-lyme-program/

-----

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/86857

Topic: Buhner Healing Lyme Q & A links have changed

==================

http://healthlibrary.epnet.com/GetContent.aspx?token=e0498803-7f62-4563-8d47-5fe33da65dd4&chunkiid=21485


excerpt:

Andrographis combined with eleutherococcus, licorice, and schisandra has shown promise for a genetic disease called familial Mediterranean fever.24, 25 . . . .

=================

www.publichealthalert.org/Articles/scottforsgren/ amy%20derksen%20interview.html

. . . Andrographis can be important if Borrelia is present and is helpful for Ehrlichia and Bartonella. For Babesia, Artemisinin is often effective. ...

====================

http://www.altcancer.com/andcan.htm

ANDROGRAPHIS - In-Depth Review


====================


http://www.ncbi.nlm.nih.gov/sites/entrez

PubMed Search:

Andrographis: 232 abstracts


=======================

Just one place to get the brand recommended by Buhner.

http://www.vitacost.com/Planetary-Herbals-Full-Spectrum-Andrographis

Planetary Herbals Full Spectrum Andrographis -- 400 mg - 120 Tablets

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tory2457
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thank you -thank you -thank you -for all the quick responses so far. [kiss]

kelmo, his MRI's were clean, no stroke, etc. but this is a small hospital, and I too wonder if another doc would see things differently.

Please Keebler send whatever you have, I just wanted to save time thinking I was new to this.

I posted for docs in Iowa where he lives, and already spoke with a gal who heads a Lyme Group. She was so HELPFUL regarding a good LLMD. how lucky was that?? all in one day, a Sunday.

As for IV Magnesium, that's doubtful because he's in a small town hospital, but your info is invaluable.

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Keebler
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I mentioned the importance of adrenal support for all patients who experience seizures. Curcumin may be a good place to start:


http://tinyurl.com/y8bd9k2

Curcumin Prevents Some Stress-Related Changes


======================


http://www.ncbi.nlm.nih.gov/sites/entrez

PubMed Search:

Curcumin - 3011 abstracts

Curcumin, seizures - 8 abstracts

Curcumin, inflammation - 282 abstracts

Curcumin, depression - 18 abstracts

Curcumin, adrenals - 6 abstracts

Curcumin, anxiety - 5 abstracts

Curcumin, cardiac - 60 abstracts

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kelmo
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If they just looked at his report and not his films, you'll never know for sure.
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tory2457
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how true kelmo, I have some work to do to get this poor guy to a LLMD....and all the old and new tests can go with him.

Keebler: really interesting links on natural supplements, thanks for your input.

I will be going to UPS with a box full of printed materials for him. [Big Grin]

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Keebler
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Good luck. I hope this works out well for him.

One note of caution and protection:

Just in case - If your brother drinks alcochol or uses sleep meds or other medicines, I hesitate to suggest herbal formulas.

He may well be very clear about safety and all but when suggesting new things, I do hope that anyone new to these things will have common sense. Not at all meaning to put anyone down, but some of the herbs and supplements are my lifeline as they are to many others.

It just takes one case of one herb swallowed with a beer to cause reactions. In nearly all cases like this, the supplement is held to blame, banned, and the specifics around life-style choices that may be connected to side effects are often not even considered by the reporting parties.

So, please understand my afterthought about safety. No amount of alcohol should be consumed - at all - when using herbs. Other Rx that stress the liver, too, should not be mixed with herbs.

For prescription drug and herb safety notes:


A few ITM links regarding SAFETY and INTERACTIONS:

www.itmonline.org/safety.htm - over 35 separate articles.

www.itmonline.org/arts/herbdrug.htm - 2000

www.itmonline.org/arts/herbdrug2.htm - 2003

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