LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Babesiosis & anemia poll

 - UBBFriend: Email this page to someone!    
Author Topic: Babesiosis & anemia poll
5dana8
Frequent Contributor (1K+ posts)
Member # 7935

Icon 1 posted      Profile for 5dana8   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
been extra tired & now am so pale

was wondering how many of you guys became anemic from babs?

thanks aheah of time [group hug]

Posts: 4432 | From some where over the rainbow | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067

Icon 1 posted      Profile for seekhelp     Send New Private Message       Edit/Delete Post   Reply With Quote 
All my blood tests are perfectly normal with regards to anemia. My ID doc says I have Babesia though.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
tickssuck
LymeNet Contributor
Member # 15388

Icon 1 posted      Profile for tickssuck     Send New Private Message       Edit/Delete Post   Reply With Quote 
I tested + for Babesia. My initial labs indicated extremely low ferritin levels. TS
Posts: 566 | From West Coast | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
cactus
Frequent Contributor (1K+ posts)
Member # 7347

Icon 1 posted      Profile for cactus     Send New Private Message       Edit/Delete Post   Reply With Quote 
I never became anemic, but had babs microti and duncani.

Was very pale and fatigued though.

Am I wrong here, I'm thinking we started babs treatment around the same time, way back when?

Have you relapsed?

Sorry to hear you are not feeling so well,
cactus

--------------------
Did you ever stop to think, and forget to start again? - A.A. Milne

Posts: 1987 | From No. VA | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
canefan17
Frequent Contributor (5K+ posts)
Member # 22149

Icon 1 posted      Profile for canefan17     Send New Private Message       Edit/Delete Post   Reply With Quote 
ticksuck,

What's the protocol if you have very low ferritin levels?

Posts: 5394 | From Houston, Tx | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
5dana8
Frequent Contributor (1K+ posts)
Member # 7935

Icon 1 posted      Profile for 5dana8   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
thanks canefan17,seekhalp,

tickssuc - i googled anemia.think its iron supps?

thanks cactus

yes am in relaspe now, its like a slow slide downhill. problem is after 13 years of continuous treatment i cant stomach any orals anymore to retreat my babs which i tested pos for . had 2 babs treatments but still its a hard co to beat.

unfortunately herbs make me puke too.i tried rife and didnt get much headway.
[Frown]

--------------------
5dana8

Posts: 4432 | From some where over the rainbow | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
kitty9309
LymeNet Contributor
Member # 19945

Icon 1 posted      Profile for kitty9309     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by tickssuck:
I tested + for Babesia. My initial labs indicated extremely low ferritin levels. TS

I am retesting for Babesia in a few weeks.

My ferritin is very low as well, at a 5.

Have your ferritin levels come up since treating or is it too soon to tell.

Posts: 819 | From East Coast | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
tickssuck
LymeNet Contributor
Member # 15388

Icon 1 posted      Profile for tickssuck     Send New Private Message       Edit/Delete Post   Reply With Quote 
I treated with iron supps for 6 months. If I recall, I was at a 3 intitially, very low. After about 6 months it was significantly raised, at a normal level (don't remember exactly the number).

I have not been on iron supps in over a year. However, my iron levels have not been checked since ceasing the supps. I guess it's time to re-check to see where I'm at....TS

Posts: 566 | From West Coast | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165

Icon 1 posted      Profile for cantgiveupyet     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have babs.

Ferritin is a six Iron is 22 RBC- recently are low too.

not sure if it is from Babs. The Dr said I am mildly anemic.

--------------------
"Say it straight simple and with a smile."

"Thus the task is, not so much to see what no one has seen yet,
But to think what nobody has thought yet, About what everybody sees."

-Schopenhauer

pos babs, bart, igenex WB igm/igg

Posts: 3156 | From Lyme limbo | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
kitty9309
LymeNet Contributor
Member # 19945

Icon 1 posted      Profile for kitty9309     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks. Did you notice an improvement on iron supps?

Definately get it checked and you may need a maintenence dose, esp if female and pre-menopausal.

Posts: 819 | From East Coast | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
tickssuck
LymeNet Contributor
Member # 15388

Icon 1 posted      Profile for tickssuck     Send New Private Message       Edit/Delete Post   Reply With Quote 
Kitty,

Don't really know about improvement on iron supps as I was so, so sick with so many Lyme and co-infection symptoms. I was (still am) so sick with so many neurological symptoms, fatigue was the least of my worries. Though maybe there were other symptoms attributed to the low ferritin as well, not sure about that.

I'm better than I was back then (2 years ago), but nowhere near well. Still fighting....TS

Posts: 566 | From West Coast | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846

Icon 1 posted      Profile for pamoisondelune     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've had a constant tendency toward anemia all the years i've had lyme and (Babesia?); if i fail to take iron pills, it gets into real anemia and low ferritin;--- yes, anemia makes you weak and tired!!
I make sure to take 110 mg iron pills every day.

I never tested positive for babesia, but had mild
babesia symptoms off and on and responded extremely well to two months Mepron/Zithromax, twice, and am now on a maintenance regime of Babesia herbals, which keep the symptoms down very well.

---Polly Polygonum

Posts: 1226 | From USA | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
TerryK
Frequent Contributor (5K+ posts)
Member # 8552

Icon 1 posted      Profile for TerryK     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've had low iron for a long time (decades) and I've been severly iron anemic once. I'm usually borderline low. Last year, one doctor told me to take iron but my lyme treating doctor said babesia uses it so to hold off until we get it under control.

Sorry you are in a relapse. [Frown]

If you tried rife and it didn't help, you might consider getting someone to muscle test the correct frequencies for you.

One thing I've found is that sometimes what I think is causing the problem is not the problem. For example, I've had an inflamed colon for a few weeks. So inflamed that it hurt to sit. I thought it was parasites again. I muscle tested for rife frequencies and found I needed staph frequencies. Rifed for them yesterday. Today, my colon feels sooo much better.


Terry

Posts: 6282 | From Oregon | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
jmb
LymeNet Contributor
Member # 18338

Icon 1 posted      Profile for jmb     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was fine with iron. But I was super low on red blood cells, hemoglobin and hematocrit. The retic count was normal too. I was Babs positive, as well as Bart/HemoBart/WhateverFryLabsIsCallinIt positive.

--------------------
enjoy the day.

-jmb

Posts: 208 | From Maryland | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
cactus
Frequent Contributor (1K+ posts)
Member # 7347

Icon 1 posted      Profile for cactus     Send New Private Message       Edit/Delete Post   Reply With Quote 
Oh, I'm so sorry to hear you are relapsing.

I relapsed (babs) over and over - but seem to have the babs under control at last.

What are you considering next, treatment-wise? It would be tough to be unable to take orals.

Hoping you find something soon, and feel better.

--------------------
Did you ever stop to think, and forget to start again? - A.A. Milne

Posts: 1987 | From No. VA | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.