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» LymeNet Flash » Questions and Discussion » Medical Questions » My New Year's Gift to Lyme Awareness and the Lyme Community...

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Author Topic: My New Year's Gift to Lyme Awareness and the Lyme Community...
LymeLearned
LymeNet Contributor
Member # 20565

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Honestly, WITHOUT all of you, and the other Lyme Organaizations, I'd have gone into a coma and died of kidney failure, as NONE of my regular docs were willing to do anything but crisis care and then palliative care (what is done in a hospice-symptom relief only for cases where there is no known cure for an ailment.

When I left the hospital, ONLY my LLMD was willing to give me abx beyond the crisis, and in an attempt to "take a break" due to yeast (BIG MISTAKE), I got dangerously ill with *another* kidney infection. Again, ONLY my LLMD was willing to give abx to pull me out of the infection.

Thank God for ILADS, CALDA and LYME NET.

You all LED me to HIM and HE's SAVING me!
THANK YOU * THANK YOU * THANK YOU!!!

I made this video to show the SEVEN FACTS that could have saved me...

http://www.youtube.com/watch?v=4ALgOikmjCw

--------------------
"SEVEN LYME FACTS THAT COULD HAVE SAVED ME" VISIT ME AT:

http://www.youtube.com/TickedOffLiterally

Posts: 183 | From USA | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
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That was AWESOME!!!!!

I will send it out immediately!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95350 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
LymeLearned
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Thank you! SO MANY don't have/take the time to read, so I'm trying to give them a quick peek into what it took me so long to learn from so many sources.

Thank you so much for your help. Let's stop the spread if we can, and lead others to treatment when it's too late for prevention. We all know that only our knowledge has saved us, and the others who led us to it, have collectively saved our lives.

--------------------
"SEVEN LYME FACTS THAT COULD HAVE SAVED ME" VISIT ME AT:

http://www.youtube.com/TickedOffLiterally

Posts: 183 | From USA | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
TerryK
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Well done!!
Posts: 6282 | From Oregon | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
joalo
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Well done! This is going out to everyone on my contact list. Thank you so much!! [kiss]

--------------------
Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

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asummers
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Well done, you should be very proud!
Posts: 379 | From Sydney, Australia | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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Excellent!! It's on my facebook page. [Smile]

--------------------
sixgoofykids.blogspot.com

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joahsark
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Wonderful! thanks so much, already gone out to my list.
Posts: 219 | From pacific nw | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
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up

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95350 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Paula 007
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Wow! Thank you so much. You have no idea just how many this may reach. And it is hard to reach people. Video is well-done, though. Scary, but Lyme is scary. After 15 years, I'm damn scared of it. We knew I had been bit. I had the bull's-eye rash. Doctors misdiagnosed for 8 long years. Someone may avoid this because of your work on this video. Thank you again.
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Lymetoo
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up

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95350 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Rumigirl
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OMG, this is FABULOUS!!! Thank you, thank you, thank you. I'm sure that it will help a lot of people over time.
Posts: 3747 | From around | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
just jan
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Thank you so much for this wonderful work!
Blessings,
Just Jan

--------------------
I used to be marblenose but my lymebrain could not remember what email account I used to sign in so now I am just jan...
bit in 1994 diagnosed in 2004 I have tried every anbx and alternative known to personkind.

NICENESS COUNTS!!

Posts: 61 | From orange county new york | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Stacyb
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Awesome!
Sent it to everyone I know!
You did a great job!

Posts: 476 | From Columbus, Ohio | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
farraday
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Me too. Thanks a million!

--------------------
DOCTOR: "I don't think you are sick."
PATIENT: "We are all entitled to our opinions. I don't think you are a doctor."

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LymeLearned
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I can't tell you all how GREAT it feels to know this has made the mark. I'm so glad you like it.


I just kept thinking over the months since becoming SO ill after being bitten, how unfair that mainstream media doesn't tell us what we need to know.

You guys are awesome! I can't believe it hit over 500 views today! WoW!!!

--------------------
"SEVEN LYME FACTS THAT COULD HAVE SAVED ME" VISIT ME AT:

http://www.youtube.com/TickedOffLiterally

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liesandmorelies
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BRAVO....BRAVO!!!!!!!! =)

I am posting this on my Facebook!!!!!!

--------------------
aka: Lyme Warrior

In order to do "real" science, you have to have a "real" conversation with nature.

Well Behaved Women Rarely Make History!

"Just Demand your Rights"

Posts: 869 | From nor - cal | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
Tincup
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Up for others... and thanks for your hard work LL.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
sutherngrl
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Good job!
Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Lymetoo
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up again!

--------------------
--Lymetutu--
Opinions, not medical advice!

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seekhelp
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Excellent work. I'm very impressed.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
Healing in Santa Cruz
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Wonderful video. I also have it on my facebook page and am also sending it to many friends and family. Thanks for taking the time and energy to create it. In Gratefulness Joyce
Posts: 905 | From Santa Cruz,Calif | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
Tincup
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FYI-

You got a big thumbs up from some influential folks in the Lyme community for your work on this. Heard it through the grapevine.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Amanda
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This is so well done!

Have you thought about sending it to your local news station?

--------------------
"few things are harder to put up with than the annoyance of a good example" - Mark Twain

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Elaine G
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Excellent and easy to understand. It really gets the message out.

Sending it out to my contact list.

Thank you for doing this.

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springshowers
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Hi .. Thanks for that great video. well done!!

looking at all those who are posting it on your facebook.

is there a facebook lyme group?

I am curious?

Thanks

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LymeLearned
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Sort of....WE're a bit fragmented, but add me as Ticked Literally, and it'll link you into a lot of wonderful and helpful Lymies, some with pages.

I SO WISH we could conglomerate! God help them if we moved as ONE!

--------------------
"SEVEN LYME FACTS THAT COULD HAVE SAVED ME" VISIT ME AT:

http://www.youtube.com/TickedOffLiterally

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LymeLearned
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Tincup....that is SO cool! You MADE MY DAY by telling me this!!!

It's been a long, hard road, and I'm terrified of not pulling through. An uplift like this goes a long way!

You and this entire group are amazing and wonderful. Never doubt my appreciation!

[group hug] [group hug] [group hug] [woohoo] [group hug] [group hug] [group hug]

--------------------
"SEVEN LYME FACTS THAT COULD HAVE SAVED ME" VISIT ME AT:

http://www.youtube.com/TickedOffLiterally

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Robin123
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Hey, congrats, LymeLearned - I recently saw it -

Wanted to let you know that some folks at CALDA are impressed too and put a link for it on our CaliforniaLyme discussion!

Keep fighting - it's a marathon, not a sprint -

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Cass A
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Very Well Done!

Best,

Cass A

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Pinelady
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OMGoodness. I love Enya. She was our fall asleep lullaby when my daughter was a baby. We listened to her every nite after our stories. Thanks.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

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