LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » confused about " active lyme "............

 - UBBFriend: Email this page to someone!    
Author Topic: confused about " active lyme "............
Florence1
LymeNet Contributor
Member # 22960

Icon 1 posted      Profile for Florence1     Send New Private Message       Edit/Delete Post   Reply With Quote 
I hope someone can explain this to me. This is not a question about me its about lyme in general but i will use me as an example....I had a positive western blot in oct, been on doxy, rocephin, doxy, would my bloodwork now be neg or past infection, I still have symptoms but my pcp that has been looking after me says its post lyme syndrome as the lyme has been dealt with....I am currently trying to find an llmd, but just wondered does it stay active or once antibiotics started does it show treated (but its not)..????

--------------------
Oct 09 Positive CDC Western Blot
Jan 10 Positive Babesia Duncani
Jan 10 Cd57 28
Mar 10 EBV, IgM, IgG
HHV-6 IgG

Posts: 739 | From NC | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
????? hope I understand all the questions... not sure about the last question.

First, there is no such thing as Post Lyme Syndrome...so start running from that guy.

It stays active until you are well. Your test will show positive a long time.

Hope that helps! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95340 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Florence1
LymeNet Contributor
Member # 22960

Icon 1 posted      Profile for Florence1     Send New Private Message       Edit/Delete Post   Reply With Quote 
thanks....so if i had western blot run again, in theory it should still be active and if it was IGg...then i should be cured if thats ever possible??

--------------------
Oct 09 Positive CDC Western Blot
Jan 10 Positive Babesia Duncani
Jan 10 Cd57 28
Mar 10 EBV, IgM, IgG
HHV-6 IgG

Posts: 739 | From NC | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
Florence1
LymeNet Contributor
Member # 22960

Icon 1 posted      Profile for Florence1     Send New Private Message       Edit/Delete Post   Reply With Quote 
why do they say its all done in a months treatment?? couldnt they just keep running the test until it switches from IGm to IGg????

--------------------
Oct 09 Positive CDC Western Blot
Jan 10 Positive Babesia Duncani
Jan 10 Cd57 28
Mar 10 EBV, IgM, IgG
HHV-6 IgG

Posts: 739 | From NC | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
swedish lyme sufferer
LymeNet Contributor
Member # 14579

Icon 1 posted      Profile for swedish lyme sufferer     Send New Private Message       Edit/Delete Post   Reply With Quote 
Get an LLMD.....
Until all symptoms are resoved I would consider it ACTIVE

Posts: 347 | From sweden | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

Icon 1 posted      Profile for sutherngrl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lyme Disease is a clinical diagnosis. If you are symptomatic, then you still have LD.

Treat until at least 3 months after you are symptom free. Its just that simple!

Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Siciliano
Frequent Contributor (1K+ posts)
Member # 15920

Icon 1 posted      Profile for Siciliano     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi, Florence, usually if you no longer have ANY symptoms for at LEAST 5 consecutive months...consider yourself out of the woods! [Smile]

--------------------
I'm sorry but I am no longer accepting any private messages due to my own battle with lyme.

Posts: 3897 | From New Hampshire | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346

Icon 1 posted      Profile for disturbedme   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
No, don't look at the IgG or IgM to mean much of anything. It means your positive, no matter which side comes back positive or which side comes back negative. And also, if you did come back negative, that also doesn't mean the lyme is completely gone.

IgG means old exposure, but that doesn't mean it's an old, no-more, and "cured" infection. It could mean your body is just not making newer antibodies to it - IgM.

--------------------
One can never consent to creep when one feels an impulse to soar.
~ Helen Keller

My Lyme Story

Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by disturbedme:
[QB] No, don't look at the IgG or IgM to mean much of anything. It means your positive, no matter which side comes back positive or which side comes back negative. And also, if you did come back negative, that also doesn't mean the lyme is completely gone.

IgG means old exposure, but that doesn't mean it's an old, no-more, and "cured" infection. It could mean your body is just not making newer antibodies to it - IgM.

Correct.

Be sure to read the Western Blot Explanation, including the responses to the original post:

Western Blot Explanation

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/42077

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95340 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
David Miller
Member
Member # 21583

Icon 1 posted      Profile for David Miller     Send New Private Message       Edit/Delete Post   Reply With Quote 
The western blot measures antibodies to lyme. Those will persist for some time after the bacteria is gone.

That means you can't use a WB to determin that you no longer have an active infection.

What your PCP is saying is what the IDSA says. Everybody who has been treated yet still suffers has "post lyme syndrome". Or they're just crazy. If you feel better because you're still on abx it's because of the anti-inflammatory effects of the abx, not because they're killing any bacteria.

On the other side of the fence are many thousands of patients who have gotten well, beating "post lyme syndrome" with months or years of abx.

You need a good LLMD

Posts: 98 | From Maine | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
Florence1
LymeNet Contributor
Member # 22960

Icon 1 posted      Profile for Florence1     Send New Private Message       Edit/Delete Post   Reply With Quote 
thanks all...clears it up a little....on the hunt for a LLMD.....

--------------------
Oct 09 Positive CDC Western Blot
Jan 10 Positive Babesia Duncani
Jan 10 Cd57 28
Mar 10 EBV, IgM, IgG
HHV-6 IgG

Posts: 739 | From NC | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.