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» LymeNet Flash » Questions and Discussion » Medical Questions » Who has found Rifampin not helpful

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Author Topic: Who has found Rifampin not helpful
tosho
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and for how long did you try it?
Please answer,
Thank you [Smile]

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[Bb WB igm+] [B.henselae PCR+] [Chlamydia pneum.igm+igg+] [EBV igm-igg+]

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nefferdun
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I took my last dose the day before yesterday and I am not sure if it actually helped or not. Many of the side effects of Rifampin are similar to bartonella symptoms such as inability to concentrate, pain in bones etc, so it seemed like I was getting no where. When/if my mind begins to clear I will know better. I was on it for almost three months at 600mg a day with 500mg zithro.
I had headaches, hot flashes, shin pain and eye dryness as well as depression, anxiety and lack of motivation when I started. Now the shin pain is greatly diminished, the headaches are pretty much gone, I have fewer hot flashes but my eyes are worse (which can be another side effect of Rifampin - uveitis and conjuctivitis). I am not as depressed but I still feel like I have not gotten out of the hole. My memory is very bad and I have a lot of trouble concentrating.

Five weeks of Levaquin was much more effective but I got tendonitis from it. I have switched meds now to Bactrim and Zithro to see what happens and am considering pulsing Factive five days out of the month.

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old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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seibertneurolyme
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Not sure if it helping hubby or not. We were surprised at his LLMD appointment Monday that the doc wanted to increase the Rifampin -- instead of 600 mg one time per day he wants hubby to take 300 mg 3 times per day. He also added in very low dose Zithromax to the very low dose Clindamycin and the Minocycline he was already on.

Has been on the rifampin for 3 months now at 600 mg.

The tincture of Stephania that we added seems to be helping more than the meds in my opinion.

Something is still killing off too many red blood cells so we are still looking for the majic combo. Hubby had to stop levaquin and factive as all his tendons were hurting too much. The pain hasn't gone away since stopping the meds unfortunately.

Bea Seibert

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Hoosiers51
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Didn't seem to help me, at all. And I tested positive through Quest for IgG Bartonella Henselae.

I only took it about 8 weeks, because it was making me SOOO tired, but not many other herx symptoms, and by 8 weeks, most people will see improvement for Bart. I had no signs it was doing anything useful.

So it just didn't seem to hit any of my infections.

Bactrim DS with Zithromax went much better. Big huge herxes followed by improvement. So far that's Bart treatment #1 for me.

Cipro didn't help anything, but did give me increased irritability (perhaps a herx). Trying Levaquin soon, to try to put Bart away for good, though since being on Bactrim it is MUCH improved.

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venus
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I have been on rifampin for 15 months. I am still struggling, but I have made slow progress in that time. I am such a mess that I have no idea which drugs helps or hurts. I am going to ask my doctor about another drug for bart when I see him in two weeks.

[ 01-21-2010, 12:40 PM: Message edited by: venus ]

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Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly.

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landerss
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Tosho, I don't think it helped me. I was only on it for 12 weeks, but I feel much better off it than I did on it - and not much different than I did before starting it!

But I've been on Bactrim for a year.

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Increasingly ill over past 10 yrs; treating since October '08.

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Lymetoo
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5 days was all I could take...nearly died from a headache that lasted 3 wks.

Not literally died! But felt like it. It caused swelling of the brain.

[ 01-22-2010, 11:43 AM: Message edited by: Lymetoo ]

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--Lymetutu--
Opinions, not medical advice!

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Lymeorsomething
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Levaquin worked better for me but is rough on the tendons.

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"Whatever can go wrong will go wrong."

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kday
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I'm with Lymetoo.

I thought Rifampin tried to kill me. Maybe it was the combo with Doxy and Plaquenil. I only lasted 5 days or so.

Anyways, not fun!

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Haley
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Yes, I felt like Rifampin almost killed me after 2 weeks. I don't know if it was the drug or it was hitting lots of stuff.

My doctor thinks it's a very good medicine. He would not say that about Levaquin. In fact he doesn't say that about many medicines.

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Karen Mc
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Not sure if helping either??? I just started Rifampin 300ms twice a day last Saturday. Didn't see major difference yet but increased (sometime monster) headaches...now I'm reading others did as well.

Fatique and muscle aches and "weird head feelings" are much worse as well

Im with venus (my heart goes out to you) I am on such a combo of meds I can't really tell whats helping and whats not--enough to drive you crazy):

I am taking

artem 2 twice a day

half plaquenil 200mg twice a day

zitro half of 600mg twice day alternating

minocin 100 mg twice day m-w-f

and now rifampin---i dropped bactrim ds

I think i liked the bactrim/zitro combo better but will continue to give this combo a try until i see my LLMD next month...

I just hope I can endure the headaches. I will let you know how it goes.

Good luck and God Bless,
Karen (:

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Myco
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It got me over the hump and over bart in 5 months. Combined it with Zithromax.
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tosho
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Thanks everyone!
I was asking because I don't know if there is any sense for me to continue Rifampin. This time I take it since October with Doxy and Roxythromicyn + pulsing tinidazole and I am still exhausted as on day one (I don't tolerate any stress, 2hrs shopping makes me exhausted as hell).

Rifampin only got rid of twitching of my eyelid.
I herx from doxy for sure (Rifampin interacts with doxy making it less potent, so not a good thing).
Seriously I feel at loss, I gave many months trials for each combination of drugs and nothing helps.
I don't know, maybe I should stop Rifampin in exchange of Mepron (again).

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[Bb WB igm+] [B.henselae PCR+] [Chlamydia pneum.igm+igg+] [EBV igm-igg+]

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