LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » MS and Lyme and testing

 - UBBFriend: Email this page to someone!    
Author Topic: MS and Lyme and testing
sydli
Junior Member
Member # 23801

Icon 1 posted      Profile for sydli     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi,

Just a quick question that you all might be able to help with. I was diagnosed with MS about 5 years ago. Had an Elisa then, which was negative. My initial MRI showed diffuse white matter lesions, which may be due to MS or lyme, according to the report. Have never had a real flare of MS since diagnosis.

I've had some major chronic achiness/tenderness/ in my arms and shoulders, and headaches, but they've gone away since I started taking Cymbalta for depression.

My husband was diagnosed with chronic Lyme last summer, after years of pain which he thought was due to fibromyalgia. My 2 sons and I were tested with a Western Blot recently, and one son was positive and started antibiotics. My results today showed all the bands to be nonreactive, except for Band 41, which was "reactive".

Does this result indicate that I might possibly have Lyme? I made a doctor's appt, to discuss further but can't see them until March. Should I seek Igenex testing?

Thanks for any help!

Posts: 3 | From Loudoun County, VA | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
swedish lyme sufferer
LymeNet Contributor
Member # 14579

Icon 1 posted      Profile for swedish lyme sufferer     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes you might have Lyme depending on your symptoms.
Lyme is hard to diagnose, you will have to see an LLMD.

Posts: 347 | From sweden | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
Snailhead
LymeNet Contributor
Member # 18091

Icon 1 posted      Profile for Snailhead     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was initially diagnosed with MS, and later Lyme. BTW, I too only had the "41" band showing on my first WB, then on my Igenex panel I showed CDC positive.

Get an Igenex if you can, ASAP. I was treating for MS for a year, and continued to decline before I did my own research and found I indeed had Lyme. Oh, if you can, check for coinfections as well. They are a huge component in your level of illness. God bless you.

Posts: 374 | From United States | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
dmc
Frequent Contributor (1K+ posts)
Member # 5102

Icon 1 posted      Profile for dmc     Send New Private Message       Edit/Delete Post   Reply With Quote 
17 yrs told MS then found out Lyme, & co-infections. Suggest you get to a Lyme literate MD.

do a search here (that's above, under the "post a poll")

Scroll down this link to the educational DVDs You'll see the llmd who I finally went to & did proper test.

http://www.newhaven.edu/unh/lyme/

"Chronic Lyme Disease: Connection to MS- Facts behind the controversy" (DVD)

Good luck

Posts: 2675 | From ct, usa | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Being that VA is full of lyme and you have family members who have it... you're likely infected also.

Get a WB thru Igenex, ASAP!! and start looking for a good LLMD over in Seeking if you don't already have one.

You need test #188 and 189 from www.igenex.com

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95344 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.