posted
So I am now on my fifth round of different abx since being diagnosed in July of 2009.
I was doing pretty well on Ceftin, Biaxin and Planequil, but my LLMD switched me to Bactrim DS and Planequil.
With in a week of taking the Bactrim, my tongue started to hurt like I burned it. It still has not gone away and appears to have cracks in the middle, the tip and the left/right sides are sore and sometimes tingling if I rub them against my teeth, and it seems as if my tastebuds are all inflamed.
Anything I eat or drinks, besides water, annoys my tongue too. Even if I breathe in air.
All the little bumpys on my tounge are redish and popped up and my tongue feels rough, almost like when a cat licks you.
My LLMD said it could be yeast or another symptom of Lyme, but I was wondering if anyone on here has had the same thing. It's so annoying.
The other symptoms that popped up with the Bactrim is light sensitivity and more of that anxiety/can;t breath feeling at night, lasting from 30 min to an hour.
Anyone else get these or am I going coo coo?
[ 01-28-2010, 01:30 PM: Message edited by: ladeedah ]
Posts: 134 | From NY | Registered: Aug 2009
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Keebler
Honored Contributor (25K+ posts)
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posted
- You might want to add - "+ Bactrim effects?" - to the headline you have now so you get more readers with experience with that. You can edit by clicking on the little icon of the pencil and paper.
I can only address the mouth part, independent of the abx. other than ask: What is your current LIVER SUPPORT? That should help with decreasing sound sensitivity. I'll be back with a link for EAR stuff.
Are you opening up some of your probiotics to soak in your mouth? That should help some. But it was not enough for me.
ANDROGRAPHIS has been a miracle for me. I had a burning mouth, full of aphthous ulcers for four solid years before I stumbled upon this.
NOTHING else worked for me and (while I have no LLMD) not one other doctor or dentist offered anything that helped even a bit.
You can just chew up a tablet in your mouth a couple times a day and before bed so that it sticks around, so to speak. It is very bitter but it sure beats the constant burning and open sores. It also decreases the swelling.
I'll be back later with details and links.
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I found this EAR thread before my andrographis notes. This also discusses sound sensitivity (hyperacusis) as that is a frequent symptoms with lyme - and with some abx.
Aphthous ulcer - details - and photos (but they can take many shapes - not all just like this photo - you can search Google for more photos)
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For four straight years I had a mouth on fire - and with many Aphthous ulcer. Allicin helped at one point but I had to stop due to how it raised tinnitus for me (most patients do not get this effect, though).
Several months ago, after starting on andrographis, within one week, my mouth markedly improved. Within two, nearly all better. And it's stayed that way.
I've taken a week off here or there and the mouth is still good. Amazing stuff. But, as the allicin was a bit too speedy for my system, andrographis is very sedating for most. So, be aware.
After the first week or two that gets a bit better - and it is very calming to the central nervous system so that helps me in many ways.
Andrographis can also cause some stomach upset, so it's best to take it with food at first. But, if you use it only in your mouth, you would be taking less than what I did on the protocol.
The probiotics in the mouth - and a spilanthes mouth rinse helped, but it was not until andrographis that I found total relief. This can burn a bit, so put it in a little water first as a great mouth rinse:
WHAT IT DOES: Licorice root is sweet in taste and cooling in action. It detoxifies poisons from the blood and liver, and reduces general inflammation and pain.
It moistens and heals the lungs and digestive tract.
- Full chapter at link above.
================================
If you have high blood pressure, it'd be best to have the DGL kind of licorice:
(Start with one, chewing it. As I'm up to 4, 4x day, I swallow 3 and chew one with just a touch of coconut oil and stevia -and try to keep it in my mouth.)
posted
Okay so I am little confused here...what are the Ulcers in my mouth from? The Bactrim? The yeast?
It's not a lyme symptom? Why would it come out now all of a sudden?
The link you showed me to the ulcers is not what my mouth looks like. Mine is all on the tongue. Like the little taste buds are all inflamed and it makes my mouth dry all the time.
I haven't had any problems with my ears, just light sensitivity.
Posts: 134 | From NY | Registered: Aug 2009
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Keebler
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posted
- Yes, the ulcers can be a lyme symptoms &/or from abx. Many sorts of infections can contribute to various kinds of mouth ulcers. Mouth ulcers can take all sorts of shapes and sizes.
I was not on abx when my mouth started all that trouble. However, as your problem started with Bactrim, you would certainly want to ask your LLMD and, perhaps, switching drugs would help.
Are you taking any meds that cause "dry mouth" - be sure to read if that is in the side-effects. The "CankerMelts" will help moisten your mouth.
LIGHT sensitivity - oohhhh. sorry. my ears and my eyes are all sort of on that same train. Still, MAGNESIUM should help. Fish oil, too.
Vitamin/mineral/electrolyte balance might be examined, too. Are you getting enough D3?
posted
I take those already, which is why I found it odd when I started taking the Bactrim.
I should be getting the mouth rinse too and I just did the pill powder on my tongue. How often do I need to do that? Tastes gross.
Posts: 134 | From NY | Registered: Aug 2009
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Keebler
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posted
- Oh, so you just happen to have andrographis on hand? Well, that's sure handy.
(I have to say this) It's best if you can read about it first. I am not a doctor but, after reading about it and then talking with your doctor, this seems the reasonable way to proceed:
Maybe 1/4 to 1/2 tablet, chewed and allowed to remain in mouth as long as you can a couple times a day and before bed. You might add just a tiny touch of coconut oil and a slight bit of pure stevia or xylitol (but no artificial sweetener). It will still taste gross. I've found no way around that but it works so well for me that I don't mind.
Oh - you can also add a DGL tablet (or a half) and chew with the andrographis. DGL is naturally sweet and also antimicrobial. But it was not enough, alone.
Be sure to increase your water intake a bit as andrographis will increase urine output. It also can make one a bit more tired the first week or two. But taking just enough to coat your mouth a few times a day is not the full dose so you may not notice these effects.
I started by taking just one tablet, four times a day and saw improvement in a week or so. However, that might be too high of a dose as you are already on several abx. I'd start slow and low and see if that is enough.
=========
A cracked tongue can also be a sign of adrenal deficiency. And that certainly goes along with lyme. The Singleton book, linked above, has great detail on how to help support the adrenal/endocrince system.
Another consideration is if you are getting the toxins out of your gut fast enough. Toxic buildup in the G.l. tract and liver can show up in the mouth. That is where liver support comes in but also something to "capture" endotoxins. Sarsaparilla, Carob, Cholestyramine, etc . . . Flax seed meal or other things to ensure frequent bowel movements is also a good idea. And, again, magnesium helps there, too.
I don't think you also need the mouth rinse but it's a nice option for rotation. I think you really might want the CankerMelts - or DGL chewables. CankerMelts last longer in the mouth - even through the night. You can't choke as it sticks to the side of your mouth. Great to help calm a cough, too.
The mouth rinse might be enough for you, so I offered that as a possibility. It was not enough for me, though.
Coconut oil was not enough for me, either, but it smoothes the andrographis nicely. Too much, though, and it becomes too thin to stick around the mouth long enough.
Good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
No, I meant the acidophilus pills. My LLMD told me to crack them open and pour the powder on my tongue.
I also take Magnesium and Fish Oil and D3, since my levels were low last blood work.
The CankerMelts wont work for me because its not on the side of my mouth. It's on the tips of my tongue and on the right and left side towards the top of tongue and they are very tiny.
It almost looks like a mild rash of the tongue, but they aren't welts or sores. Just little tiny red bumps that are sore to touch and burn depending on the food or drink.
Can I order andrographis online?
Posts: 134 | From NY | Registered: Aug 2009
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posted
Sure seems like a reaction to the Bactrim with the timing.
However, B12 deficiency can cause a sore tongue. Have you had levels cjecked recently?
Posts: 819 | From East Coast | Registered: Apr 2009
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Keebler
Honored Contributor (25K+ posts)
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posted
- Oh, so you don't have andrographis at home. Well, if you think acidophilus tastes bad, hold on to your hat for the andrographis.
Acidophilus (as well as other probiotics but NOT Saccharomyces boulardii - are good to open into your mouth.
Saccharomyces boulardii powder could be breathed into your lungs and you do not want that to happen so always keep Saccharomyces boulardii as a capsule to swallow.
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CankerMelts' "juice" from it and your saliva will coat the entire mouth - it's just that the patch adheres to the side of the mouth - or where every you put it.
Also, you might want to avoid nuts for a while if you've been eating them. If a herpes virus is responsible (as can happen with mouth eruptions), nuts can make it worse.
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This is the kind I've used and what Buhner suggests:
I would also order chewable DGL to compensate for the taste.
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I forgot to mention above but if you are still using regular toothpaste, I suggest stopping. All sorts of harsh ingredients go into toothpastes.
Even all types of Tom's of Maine burned my mouth. The only two that worked for me:
Welenda Calendula Toothpast (orange and white tube)
Auromere Herbal Toothpast (with Neem and Peelu). [There is a French accent over the first "e" in Auromere but my computer won't do that.]
But - I've ditched all toothpastes, totally. Better and richer for it, too.
I use just plain baking soda. So that it won't scratch, my dentist suggested getting the brush wet, dusting on a bit and letting it melt for minute first. Then floss. Then brush again.
And - then WATERPIK. Waterpik can clear out lots of bacteria deep under the gum-line that could be contributing to the problem.
Although labor intensive, such actions can also be good for your heart as infections in the mouth can affect the heart. Brushing and flossing really don't quite get out all the debris.
I am often too tired for the waterpik so vow to get started earlier in the evening each day. Hah. Some days, I just swish as much as I can and that also can be helpful.
Some, too, have done "oil pulling" - swishing for a while with a good oil like organic coconut oil, spitting out, repeating . . . The word is that this can help pull out some toxins. While some find that helpful, I noticed no benefit from it.
However, coconut oil can bring a short term relief - only for as long as it would stay in my mouth, maybe 10 minutes. Then the burning would blast to high as soon as that was gone. But, for some temporary relief until you get some DGL and andrographis . . . it might help.
I do still suggest the CankerMelts as they will keep your mouth coated with a soothing solution.
posted
Hmmm I will call the doctor and ask him about the andrographis and see what he says.
B12 were low at first but not at last blood test but I have the weekly b12 shots at home.
I did the acidophilus powder at lunch and I feel no difference. Guess I need to do it more.
If it weren't for that, a few muscle twinges and the occasional anxiety/breathless feeling, I would feel like myself.
Just started to add exercising back into the routine and I have been feeling good minus the stuff mentioned above.
Posts: 134 | From NY | Registered: Aug 2009
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Keebler
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posted
- In addition to talking with your LLMD, you might want to have your dentist take a look.
While andrographis helped me so much, and it may also help you, there may be other things going on so it is good for an expert to first take a look.
And, remember, that good liver support is also essential to a happy mouth. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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