LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » IDSA- Refusing to follow the Review Panel Rules!!

 - UBBFriend: Email this page to someone!    
Author Topic: IDSA- Refusing to follow the Review Panel Rules!!
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 2 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
It's not bad enough the IDSA has ruined soooooo many lives while raking in $$$... and that they keep strutting their stuff all over the place, burying us in the process... and have no regard for our welfare.

After making it so people have needlessly suffered and died from a TREATABLE disease... and then being made to do the right thing by the AG's office in Connecticut ... they are IGNORING the rules they are suppose to follow!

AND IN TURN SAYING TO HECK WITH PATIENTS!!!

[Mad]

http://www.lymedisease.org/news/lymepolicywonk/336.html

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 1 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
Action Alert-

IDSA Violated Voting Requirements of AG Settlement Agreement

During an antitrust investigation of the IDSA guidelines development process for the 2006 Lyme disease treatment guidelines, AG Blumenthal's office uncovered significant procedural deficiencies, including conflicts of interests of the panel members.

A settlement was reached and the IDSA is breaching it.

The IDSA is manipulating the voting process to favor NO change in the guidelines. The AG has sent the IDSA a letter requesting that they redo the vote in compliance with the agreement.

Action Needed - If You Live in CT

If you live in CT, please email and thank Richard Blumenthal for investigating the IDSA and for enforcing the settlement agreement.

Our health is at risk and we thank him for trying to protect it.

Your letter might read: "I want to thank you for investigating the IDSA and for enforcing the settlement agreement. Patients with Lyme rely on your broad-shoulders!"

Your subject line should read: "IDSA Lyme Disease Guidelines."

Contact CT Attorney General Blumenthal.
[email protected]

``````````````````````````````````````````````````
Action Needed - If You Live Outside CT

If you live outside of CT, call your own state Attorney General (AG). Let your state AG's office know that the IDSA is trying to go around the rules set in AG Blumenthal's settlement agreement.

For contact information on your Attorney General, click on your state on the left hand menu in the link below.

http://www.naag.org/current-attorneys-general.php

Ask your AG's office to show public support for AG Blumenthal's enforcement of the Settlement Agreement.

The IDSA is a powerful group that mainstream medicine looks to for recommendations. Let your AG know that this agreement developed by the CT AG is important to your health.

Sample Phone Blurb

I am calling today because an injustice is being done to Lyme patients throughout the country, and you are in a position to rectify this wrong.

The IDSA was found to have conflicts of interest with its 2006 Lyme disease guidelines.

Now we find that the IDSA is manipulating the voting process to favor no change in the guidelines in violation of the antitrust Settlement Agreement.

The AG has sent the IDSA a letter requesting that IDSA redo the vote in compliance with the agreement. Please show your public support for enforcement of the antitrust settlement agreement and contact CT AG Richard Blumenthal to help keep the IDSA honest and non-biased in their pursuit of Lyme disease guidelines.

*****************************************************************
For more information and to download a pdf to send to your Attorney General's office, please visit www.lymepolicywonk.org.

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067

Icon 1 posted      Profile for seekhelp     Send New Private Message       Edit/Delete Post   Reply With Quote 
[cussing] [cussing] [cussing]
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

Icon 1 posted      Profile for sutherngrl     Send New Private Message       Edit/Delete Post   Reply With Quote 
When they chose a new panel, they chose clones of the old one.

They refuse to keep up with science. Maybe they are just too stupid to understand the research! What a bunch of idiots!

They could care less about the suffering of lyme patients; and only a group so errogant would have totally disregarded the settlement between them and the AG.

The group as a whole should have their medical license taken. I mean if you can't move forward with science, you have no business being called a doctor.

What a shameful bunch!

Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
djf2005
Frequent Contributor (1K+ posts)
Member # 11449

Icon 1 posted      Profile for djf2005     Send New Private Message       Edit/Delete Post   Reply With Quote 
[email protected]$% them

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 1 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
If you don't follow the rules, isn't that called cheating?

cheat

To deceive by trickery

To deprive by trickery; defraud

To act dishonestly; practice fraud

To violate rules deliberately, as in a game: was accused of cheating at cards.

`````````````````````````````````````````````````

If you don't follow the rules when lives are at stake, what does that make you?

[Mad]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
TerryK
Frequent Contributor (5K+ posts)
Member # 8552

Icon 1 posted      Profile for TerryK     Send New Private Message       Edit/Delete Post   Reply With Quote 
The whole reason the IDSA agreed to the settlement in the first place is to avoid a lengthy and expensive court battle. If they refuse to comply then hopefully AG Blumenthal will go forward with the case. One can only hope that they will be required to answer for their unethical behavior.

I'd certainly reach into my pocket to contribute to such an effort. Maybe it will take legal action by lyme patients against the IDSA to get the help we need. [cussing]

Posts: 6282 | From Oregon | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

Icon 1 posted      Profile for sutherngrl     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think thats what its coming to....legal action. I will certainly do my part to contribute.
Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628

Icon 1 posted      Profile for METALLlC BLUE     Send New Private Message       Edit/Delete Post   Reply With Quote 
Agree, I'd donate to see those sons a' *****es go down.

This is criminal.

--------------------
I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.

E-mail: [email protected]

Posts: 4157 | From Western Massachusetts | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
djf2005
Frequent Contributor (1K+ posts)
Member # 11449

Icon 1 posted      Profile for djf2005     Send New Private Message       Edit/Delete Post   Reply With Quote 
unreal

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
riverpatrol
Member
Member # 12182

Icon 1 posted      Profile for riverpatrol     Send New Private Message       Edit/Delete Post   Reply With Quote 
This is a blatant violation of the settlement agreement made between AG Blumenthal and IDSA (I read the 18 page pdf). I think this would/should bring the entire IDSA organization under scrutiny and any other guidelines they have authored should be suspect. This is beyond outrageous, how they so willfully ignored the AG agreement and twisted the rules to their obvious benefit. How long can this arrogance be tolerated?

It will be interesting to see their response to AG Blumenthal's letter. No doubt they will profess innocence and somehow make it look as if they are being unjustly persecuted - again.

Posts: 69 | From So Cal | Registered: Jun 2007  |  IP: Logged | Report this post to a Moderator
LightAtTheEnd
LymeNet Contributor
Member # 24065

Icon 1 posted      Profile for LightAtTheEnd     Send New Private Message       Edit/Delete Post   Reply With Quote 
I hope they lose in court and set a precedent.

--------------------
Don't forget to laugh! And when you're going through hell, keep going!

Bitten 5/25/2009 in Perry County, Indiana. Diagnosed by LLMD 12/2/2009.

Posts: 756 | From Inside the tunnel | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
Amanda
Frequent Contributor (1K+ posts)
Member # 14107

Icon 1 posted      Profile for Amanda     Send New Private Message       Edit/Delete Post   Reply With Quote 
what really interests me is that 4 of the 8 panel members voted to change the guideline that lyme must be confirmed with a diagnostic test.

SO that means half the panel at least felt that current diagnostic tests ae not good enough to rule out (or in) diagnoses of lyme.

I think this whole thing, from teh beginning, was not about the scinece, but about maintaining their authority and prolonging the process as much as possible to avoid a lawsuit.

I mean, this is just perfect legal defense for them, isn't it?

"well yes, You Honor, the guidelines should not be changed, but you can't sue us for ignoring scinece, since half our panel members did agree that some parts of the guidelines must change, but you also can;t sue us, because it takes a "supermajority" vote to actually make the change", O Whoops, did we violate a procedural agreement?, oh well, that isn't significant, its not the science"

And isn't it convenient for them that they have an even number of panelists?

Well, as they say, "Past is Prologue"

--------------------
"few things are harder to put up with than the annoyance of a good example" - Mark Twain

Posts: 1008 | From US | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
djf2005
Frequent Contributor (1K+ posts)
Member # 11449

Icon 1 posted      Profile for djf2005     Send New Private Message       Edit/Delete Post   Reply With Quote 
Like i said, [email protected]$* them.

What goes around comes around.

Karma is a ***** and they will get theirs.

How we treat people on this planet affects more than we know.

I firmly believe this.

Derek

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

Posts: 2269 | From Lansdowne, Pa | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

Icon 1 posted      Profile for Pinelady     Send New Private Message       Edit/Delete Post   Reply With Quote 
It just makes me Sick. Sick and Tired, and Tired and Sick.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

Icon 1 posted      Profile for Pinelady     Send New Private Message       Edit/Delete Post   Reply With Quote 
Look at this. Now they are even citing with other countries in defense of their crimes.

http://patient-research.elsevier.com/patientresearch/displayAbs?key=S0002934309005026&referrer=http%253A%252F%252Fby114w.bay114.mail.live.com%252Fmail%252FInboxLight.aspx%253Fn%253 D470110765

Is that proper ethics?

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

Icon 1 posted      Profile for sutherngrl     Send New Private Message       Edit/Delete Post   Reply With Quote 
It might be convenient that they have an even number of panel members. I know one dropped out just in time to make it an even number, claiming that he had family issues causing him to withdraw from the board. Very suspicious!
Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
ticked-offinNc
LymeNet Contributor
Member # 15420

Icon 1 posted      Profile for ticked-offinNc     Send New Private Message       Edit/Delete Post   Reply With Quote 
Very evil. Derek, I hope i live long enough to dance in the streets when their karma comes full circle.
Posts: 261 | From Piedmont | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
Nicole_Denise
LymeNet Contributor
Member # 20620

Icon 1 posted      Profile for Nicole_Denise     Send New Private Message       Edit/Delete Post   Reply With Quote 
I know I found it interesting, and actually encouraging that 4 of the panel members voted to change the rules about testing. I honestly expected them to do absolutely nothing. Well, they are still doing that, but they are only able to because they flipped the rules around on voting.
Posts: 503 | From Alberta, Canada | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
troutscout
Frequent Contributor (5K+ posts)
Member # 3121

Icon 1 posted      Profile for troutscout     Send New Private Message       Edit/Delete Post   Reply With Quote 
By the time they all figure out how wrong they are...they will have all come down with neuro-borreliosis.......

Ha, ha

Trout [Wink]

--------------------
Now is the time in your life to find the "tiger" within.
Let the claws be bared,
and Lyme BEWARE!!!
www.iowalymedisease.com
[/URL]  -

Posts: 5262 | From North East Iowa | Registered: Sep 2002  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 1 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
"I know one dropped out just in time to make it an even number, claiming that he had family issues causing him to withdraw from the board. Very suspicious!"

Just so you know...

The member of the Panel that had to leave was faced with a serious personal situation. My best to him and his family.

It does appear suspicious though... doesn't it? But it was confirmed.

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
So do we know how they voted on the various issues, then, besides diagnostic testing?
Posts: 13049 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395

Icon 1 posted      Profile for lymewreck36     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Pinelady. I think that probably it is Europe that is siding with the IDSA, rather than the other way around.

People here do not believe in Chronic Lyme at all. ID docs will chase you out of their office if you even suggest you have that.

But I think it goes back to the lead from the U.S.

That is just my take from living here anyway. I could tell you stories of what I see here!!!

Mary

P.S. IDSA can go straight to @#!% 1!!!!

Can't ask evil people to do the right thing. Gotta take'em straight to court.

[ 02-05-2010, 02:40 PM: Message edited by: lymewreck36 ]

Posts: 1011 | From North Carolina | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162

Icon 1 posted      Profile for TX Lyme Mom     Send New Private Message       Edit/Delete Post   Reply With Quote 
This same topic can be found in the Activism Forum. There are better things that we can do about it than simply express our disgust by blowing off steam here at LymeNet.

http://flash.lymenet.org/ubb/ultimatebb.php/topic/8/2183


Check out the suggestions for activism -- whether you are a resident of CT or not.

http://www.lymedisease.org/news/lymepolicywonk/336.html

Posts: 4563 | From TX | Registered: Sep 2002  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 1 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
Robin2538462945 said.. "So do we know how they voted on the various issues, then, besides diagnostic testing?"

No, I'm sorry, we don't. Only that example was used in the official correspondence. BUT..

If the IDSA had done the process properly... that one example would have been in our favor... so I will "assume" that the others would turn out differently too.

Hey TX LYME MOM...

HOWDY!!!

Yes, there are things to do and we are working on another project too. Hopefully, it will be ready to go soon. But you know how it goes when the IDSA is involved...

So much corruption, so little time! [lol]

Between the rally and this popping up... we all could sure use a BIG bowl of ice cream and a weeks rest!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395

Icon 1 posted      Profile for lymewreck36     Send New Private Message       Edit/Delete Post   Reply With Quote 
I know it there are better things to do than just bash the IDSA, but gosh, it does feel good sometimes!

Mary

Posts: 1011 | From North Carolina | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 1 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
You are right wreck. I think my head would explode if I didn't say it like it is.

[lol]

More news from LYMEPOLICYWONK

ILADS Calls on IDSA to Remove Barriers to Lyme Guideline Change

http://www.lymedisease.org/news/lymepolicywonk/340.html

Be sure to read the letter ILADS wrote to the IDSA.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.