posted
hi guys have any of you had a swallow thing with a click in it, that got better, i had it a few weeks ago and the iv roc and oral rifampin made it be alot bettter, if you don't mind i would like to ask you a guys couple of Questions about it, i am still on these meds and the swallow stuff and clicking is alot better but still comes and goes. now when your throat stuff started to get better did it just get better right away or did it come and go with more and less intesity and graduly stop coming back getting better over time
any input you can give me is greatjy appresiated
sorry for the poor spelling Thanks
Scott
-------------------- LSG Scott Posts: 488 | From Boston, Cape Cod, Mass | Registered: Aug 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Breaking up for easier reading; -----
From LSG Scott:
hi guys
have any of you had a swallow thing with a click in it, that got better, i had it a few weeks ago and the iv roc and oral rifampin made it be alot bettter,
if you don't mind i would like to ask you a guys couple of Questions about it,
i am still on these meds and the swallow stuff and clicking is alot better but still comes and goes.
now when your throat stuff started to get better did it just get better right away or did it come and go with more and less intesity and graduly stop coming back getting better over time
any input you can give me is greatjy appresiated
sorry for the poor spelling Thanks
Scott -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- From where do you hear the clinking coming? (Ears, throat, jaw - and if jaw, where exactly?)
If you feel it, where do you feel it? What kind of sensation (pressure, pain . . . snap, crackle, pop as a sensation - I know you said it clicks but, as a sensation that can be experienced differently) ? If pain or pressure, is it just that instant or does it continue for a while?
-
[ 02-13-2010, 10:55 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I did that when I started treatment. It did not last long, but it did scare me. I even clicked when I breathed sometimes.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
I think any symptom may come and go with a trend toward less intensity/getting better over time.
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Scott, do you snore? I have sleep apnea and have recently been told that my soft palette has collapsed due to weakened muscles. So there is much change in the normal anatomy.
I sleep with a machine to keep my airway open.
Good luck and hope it isn't something dangerous.
Posts: 2360 | From SE PA | Registered: Mar 2004
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
I've had a clicking swallow. Never thought it related to lyme, so it's very strange to see it being discussed here. I had it for a few months (maybe 4-5?). Had 1 wk of IV abx around Christmas and I don't remember having it since then. The click is like maybe an airbubble popping in the back of my throat - annoying. And yes, sometimes I do snore but never had restless sleeeping before lyme.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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posted
I have a similar symptom as well. It feels as though there is muscle spasm in the throat/ear area. It is annoying, but does not cause disability. I am hoping it will go away.
Good luck!
Posts: 172 | From ohio | Registered: Feb 2010
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you can't here it but it feals like a click in my upper throat area in the front side where the chin meets the throat.
pinelady all my symtoms srarted after treatment except for the vertigo.
that's how i found out i hade lyme, mri showed lesions, lots of them, and big too.
my nuero said it was one of the worst she had seen.
just a bunch of new symptoms over the last 6 months of treatment
you said the click didn't last long for you, how long was that?
the click in my throat i have had it for the past 2 months and now finally getting btter along with every thing else since i added rifamin
two months iv roc and the click just got worse two weeks rifampin and i started getting better
all my symtoms to many scary neuro symtoms to list are better very quicky by adding the rifampin the herx is crazy mind stuff
and almost after every dose is that normal? Guys?
but it is doing good things for me it looks like bart is my real trouble maker
also if you look at Dr.Bs when to sespect Bart or BLO section of his guiedlines it fits me to a T.
FYI the roc and other ABX over the ast 6 months were also very good for me just not for the Bart stuff i guess
i say this because my follow up MRI was vastly improved and showed no enhancement,no new lesions and the lesions ae signifigentyl reduced.
i think i hijacked my own post oops.
anyway also is it normal to have this stuff flare up whe i'm over doing it and stuff if i get tierd my bells drops a little lower
thanks Scott
-------------------- LSG Scott Posts: 488 | From Boston, Cape Cod, Mass | Registered: Aug 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I am still just waking up but now need to eat and rest a bit. I can't address your full post but only maybe about where the click is coming from.
You said: " . . .where the chin meets the throat."
I wondered. This may be TMJ - common with lyme but you should get an x-ray, CT, or MRI of your jaw bone. The thing is that TMJ is a grey zone of insurance blackout.
It's not really dental and not really medical for most insurance coverages. However, some do still cover it for medical and most cover as medical diagnostics, just may not cover treatment.
I'm not sure who to tell you to see first but you need imaging to be sure if this is a structural matter or not. I'd start with your GP but find out who the top specialist is in your city for TMJ.
While lyme or other infections can certainly be a cause, you need the very best imaging scan from the get-go. So find out who the best is to do that - or where he does the scans, the specific name and parameters of the scan, etc.
It could be more tendon and soft tissue, but you still need the best scan possible to see.
First: magnesium is a number one helper to calm TMJ. Don't eat hard foods.
Do you grind your teeth at night (bruxism)? If so, magnesium should also calm that. You can do a basic search for TMJ and find lots of stuff. I'd start with Wiki (while they are terrible with their lyme page) they are excellent at describing other things and they have great illustrations:
Be sure to avoid steroids as some TMJ doctors may want to inject . Be sure to consult your LLMD before you do anything other than the basic supplements suggested in Burrascano's Nutritional list (and magnesium hold a place of importance there but you may need magnesium shots or IV - not into your jaw, though).
Nutritional Supplements in Disseminated Lyme Disease
==========
Acupuncture can also be of help as can a gentle cranial-sacral course of treatment. But, first, get the images so you know what the structure looks like before doing any hands on work. -
[ 02-14-2010, 03:19 PM: Message edited by: Keebler ]
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