LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Does your body shut down?

 - UBBFriend: Email this page to someone!    
Author Topic: Does your body shut down?
wendihk
LymeNet Contributor
Member # 20554

Icon 1 posted      Profile for wendihk     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have had Lyme/Babesia for almost 5 years and am currently on Bicillin and seeing a homeopath who is giving me supplements. I lost a lot of weight due to stomach problems and am fairly weak.

Anyway, when I do a lot of physical stuff like on the weekend I get to a point that my body actually shuts down. I am wondering if this happens to anyone els.

What I mean is that all of a sudden I will get very cold and my whole body will start to hurt. Then I will feel nausea and headachey and every part of my body hurts.

This is frustrating because I used to go nonstop and I'm having trouble accepting that I can't do the things I want to do.

Does this happen to anyone else and what do you do about it?

Posts: 114 | From New York | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
unsure445
LymeNet Contributor
Member # 15962

Icon 1 posted      Profile for unsure445     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes, this happens to me too. Usually in the evening. I describe it as I want to be "turned off". Its like I don't want to be awake because its just an all over discomfort.

Fortunately it happens later in the day than it used to and less frequently.

Not much you can do about it. Usually I finish what I need to do with my kids and then go to sleep. Its not a good feeling.

I guess it our bodies way of telling us we overdid it. I hope it improves for you soon.

--------------------
unsure445

Posts: 824 | From northeast | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
wendihk
LymeNet Contributor
Member # 20554

Icon 1 posted      Profile for wendihk     Send New Private Message       Edit/Delete Post   Reply With Quote 
Does anyone know what is happening to my system that makes me feel cold? It's really weird, no matter what I put on or do I am chilled to the bone.

I am also 5'9" and about 115 lbs. Can it just be that my body runs out of fuel and starts burning ketones?

Posts: 114 | From New York | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
canefan17
Frequent Contributor (5K+ posts)
Member # 22149

Icon 1 posted      Profile for canefan17     Send New Private Message       Edit/Delete Post   Reply With Quote 
Your body becoming cold is part of the fight or flight response given off by the Adrenals.

It's why we get goosebumps too when we get cold. and the hairs on your body will stick straight up!!

Goosebumps and body chills are a direct result of the Adrenals responding to too much stress. Sending more oxygen to the body/muscles in an attempt to cool you off.

So no coincidence that ater a long weekend or a heavy workout... your body temp would drop and start to "shutdown."

Don't do moer than what your body/adrenals can handle.

Make sure you are supporting your adrenals too.


If you wanna know if your workouts are too strenuous... Know what your avg body temp is...

then hr or 2 after a workout check your body temp... if it's unusually lower than normal it means your body can't handle that workout.

After a workout your body temp should actually increase if you are healthy.

Posts: 5394 | From Houston, Tx | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
map1131
Frequent Contributor (5K+ posts)
Member # 2022

Icon 1 posted      Profile for map1131     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sounds like your sick body is screaming for help. Maybe it's screaming STOP?

We don't do a very good job listening to our powerful machines and it's needs and wants. We just think we have to keep going at the rate we did before our body was so ill.

I can't explain the cold part of your shut down.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

Posts: 6444 | From Louisville, Ky | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
wendihk
LymeNet Contributor
Member # 20554

Icon 1 posted      Profile for wendihk     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have noticed that since I have been so sick and lost a lot of weight my body temperature has been low as well. I have read that quite a few people on here also have low body temperature.

What can I do to help my adrenals? My homeopath had the infectious disease doctor run bloodwork for my thyroid and everything came back normal.

It is frustrating that I feel so weak and icky and most of my bloodwork has always come back normal. I mean, how is this possible?

The only thing that always shows up is that I am anemic.

Posts: 114 | From New York | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
canefan17
Frequent Contributor (5K+ posts)
Member # 22149

Icon 1 posted      Profile for canefan17     Send New Private Message       Edit/Delete Post   Reply With Quote 
wendihk,

You can't go by thyroid blood tests.

It's what's happening at the cellular level that we don't see.

For example, Lyme Disease, heavy metals, etc these things can bind to hormones IN THE BLOOD and render them useless.

So what you see on thyroid blood tests is not always what your body is getting. Sure it's what's in the blood... but that's irrelevant when dealing with Lyme.

Go off of symptoms and be willing to do something about it.

There's a lot of good information here if you SEARCH adrenals or thyroid.

Work on your adrenals first. Maybe get a cortisol saliva test.

http://www.drrind.com/therapies/metabolic-symptoms-matrix

^^^ amazing website... will help you determine what your issue is.

Posts: 5394 | From Houston, Tx | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Echoing canefan:

ADRENAL support pretty much screams out here. Huge issue with lyme and sounds like a huge matter for you to investigate. And, LISTEN TO YOUR BODY. Stop. It is screaming for rest. Pacing is important.

More links to adrenal help here:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/89790

Topic: NATURAL SLEEP - Links to articles & supplements
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
wendihk
LymeNet Contributor
Member # 20554

Icon 1 posted      Profile for wendihk     Send New Private Message       Edit/Delete Post   Reply With Quote 
One quick question. I just was online reading about adrenal fatigue and everything I read said that people with this tend to be overweight. Everything else seems spot on. How come I'm underweight?
Posts: 114 | From New York | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

Icon 1 posted      Profile for sutherngrl     Send New Private Message       Edit/Delete Post   Reply With Quote 
From what I've read ppl with adrenal fatigue in general, loose weight or can't gain weight.
Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
lymebytes
Frequent Contributor (1K+ posts)
Member # 11830

Icon 1 posted      Profile for lymebytes   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes. I actually can be hit w/a feeling of "fever" though and if I take my temp, I don't have a fever. I feel utterly weak, tremory, nauseated and fogged with episodes like this. I can only say I feel like I am knocking on deaths door...then it will suddenly disappear. I am always surprised I survived it, it is that bad.

I have also lost weight. Weight loss has happened twice for me, in the beginning w/severe stomach issues. I had Bartonella and H.pylori. When I overcame both, I gained weight way beyond what I wanted.

Then I was bitten by a cat and reinfected w/Bart and next came H.pylori - I lost 30lbs. the last year, I am just now getting it all under control again.

Get tested for H.pylori, it can make everything much worse. There are specific abx and PPI's to treat H.pylori and thankfully stomach issues resolve within a few weeks. For some reason w/me Bart and H.pylori go together and then weight loss followed.

I recently posted about this "co-infection" my LLMd says can be brutal.

--------------------
www.truthaboutlymedisease.com

Posts: 2003 | From endemic area | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Adrenal fatigue can cause severe deviations at both ends of the scale. Typically, those with Addison's are severely underweight.

However, if lyme is involved one can also have Addision's and be either very underweight or very overweight. As with other symptoms, lyme patients' symptoms vary greatly. One common factor those is a major dysfunction of one or more systems/organs/functions of the body.

That dysfunction can take a wild wild and be all over the map at various points in time.
---

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Remember that lyme really messes up the HPA axis (Hypothalamus/pituitary/adrenal network). The pituitary has much to do with weight/growth. Mess up any part of the endocrine system and other parts suffer, too.

For those with weight gain (but also those with weight loss), this book is specific to lyme and other chronic stealth infections. The author discusses the endocrine connection and effects of STRESS on a person with such infections.

You can read customer reviews and look inside the book at this link to its page at Amazon.

http://tinyurl.com/6xse7l

The Potbelly Syndrome: How Common Germs Cause Obesity, Diabetes, And Heart Disease (Paperback) - 2005

by Russell Farris and Per Marin, MD, PhD

================================

http://www.ncbi.nlm.nih.gov/sites/entrez

PubMed Search:

infection, obesity - 2433 abstracts

viruses, obesity - 388 abstracts

viral, obesity - 464 abstracts

bacteria, obesity - 889 abstracts

-----------
One of those:

J Dent Res. 2009 Jun;88(6):519-23.

Is obesity an oral bacterial disease?

Excerpt:

. . . It seems likely that these bacterial species could serve as biological indicators of a developing overweight condition.

Of even greater interest, and the subject of future research, is the possibility that oral bacteria may participate in the pathology that leads to obesity. . . .

-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
wendihk
LymeNet Contributor
Member # 20554

Icon 1 posted      Profile for wendihk     Send New Private Message       Edit/Delete Post   Reply With Quote 
My stomach problems are actually mainly Gerd and gastroparesis due to a partially paralyzed vagus nerve. This is all attributed to the Lyme/Babesia.

I have had every gastric test imaginable and this is what we've come up with.

However, I do believe now that I suffer from the Adrenal Fatigue but a lot of the symptoms are the same as for Lyme.

This is so confusing....

Posts: 114 | From New York | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Wendi,

You may have mentioned earlier and I may have missed it. I'm assuming with stomach problems that you are already on a gluten-free diet? If not, that can make a huge difference not only in stomach pain, function but also with full body pain, fatigue and brain fog. It's amazing.

And that is why most LLMDs strongly suggest that their patients are gluten-free, it makes that much difference. Oh, it would cure lyme but, for many, healing in nearly impossible in the presence of gluten.

Also you mentioned that your homeoopath is giving you supplement. If only homeopathic, you may not be getting what you need. If your homeopath is also a ND or L.Ac., then they'd be trained with herbs and other nutritional supplement as well. But, if just a homeopath, you may not have the full "menu" of options.


You mentioned your body "shutting down" - well, there are also considerations of the heart and blood pressure - and the mitochondria which can be severely damaged by lyme.

Mitochondria are the tiny little "batteries" inside our cells that give us energy. With mitochondrial dysfunction (common to lyme), all bets are off. It can be very dangerous - and damaging - to push a tired body too hard.

Much more here about all that - and what can help:

---------------

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/77325

Topic: To everyone with cardiac symptoms please read!

===============

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

Joseph J. Burrascano, Jr., M.D.


* Page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

Notice he stresses rest.

* Pages 31 - 32 for LYME DISEASE REHABILITATION and specifics in coordinating a rest / work-out schedule and non-aerobic Physical Therapy.

--------------

This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:

http://www.lymepa.org/Nutritional_Supplements.pdf

Nutritional Supplements in Disseminated Lyme Disease

-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
canefan17
Frequent Contributor (5K+ posts)
Member # 22149

Icon 1 posted      Profile for canefan17     Send New Private Message       Edit/Delete Post   Reply With Quote 
wendi,

Cortisol saliva test (get it from community pharmacy(don't need s cript)

Cost 120 bucks or so.... you'll know quickly whether you have adrenal fatigue or not.

I'd say 99% of people with Lyme do. It's inevitable.

All the stress placed upon the body... your adrenals eventually give-way.

And unless you support and/or defeat Lyme... then you will continue to be confused between symptoms of Lyme and symptoms of endocrine (that rhymed <<<< so did that lol)

Posts: 5394 | From Houston, Tx | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
This book, by an ILADS member LLMD, holds great information about treatments options and support measures, including discussion about ADRENAL matters:

http://tinyurl.com/6lq3pb (through Amazon)

THE LYME DISEASE SOLUTION (2008)

- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com

=========================

Many libraries carry this book and you can read 95 customer reviews here (average 4.5 star out of 5) AND see inside the book:

www.amazon.com/Adrenal-Fatigue-Century-Stress-Syndrome/dp/1890572152/ref=sr_1_1?ie=UTF8&s=books&qid=1263516913&sr=8-1

Adrenal Fatigue: The 21st Century Stress Syndrome

~ James L. Wilson, ND, DC, PhD, Johnathan V. Wright, MD

About $10. And qualifies for free shipping with a total $25. Purchase at Amazon

================================

Many good articles about Adrenal Dysfunction:

http://www.vrp.com/ArticlesSearch.aspx?k=Adrenal_Dysfunction
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091

Icon 1 posted      Profile for Rumigirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
You said you're seeing an Infectious Disease doctor?? Ooops! Unless you have hit the jackpot (VERY unlikely), they DO NOT know Lyme and co-infections well, nor do they understand all the ramifications of these diseases well.

Please read all the info at the top of the Medical Questions about Lyme Literate doctors, ILADS, etc. You need a Lyme Literate doctor. I doubt that is what you are seeing.

And, it sounds like you are doing way too much, given that you are now ill, and need to accommodate that. Rest is essential.

Posts: 3747 | From around | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.