LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Is it possible to have these Igenex results and it NOT be Lyme?

 - UBBFriend: Email this page to someone!    
Author Topic: Is it possible to have these Igenex results and it NOT be Lyme?
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725

Icon 1 posted      Profile for BackinStOlaf     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm asking because I always hear that docs won't treat on a blood test alone. But let's so you have these results- Can it be anything else? (this is hypothetical, these are my result and I do have symptoms but just curious if it is possible to be something else)

IGM: CDC and Igenex positive

18 -
22 -
23-25 -
28 -
30 -
31 +
34 -
39 +
41 +
45 +
58 +
66 +
73 -
83-93 +


IGG Igenex Postive
CDC Negative

18 -
22 -
23-25 -
28 -
30 -
31 ++
34 +
39 IND
41 ++
45 -
58 -
66 +
73 -
83-93 -


P.S. I have had mild gingivitis in the past

--------------------
First Symptom 9/09
Multiple docs, negative Labcorp test
LLMD: 1/10
Positive Igenex/CDC test
Treatment 2/10
2/10-8/10 Amox, ceftin, zith, flagyl
Currently: Bicillin, Minocycline, still dealing with severe breathing issues

 -

Posts: 1121 | From New York, New York | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
JunkYardWily
LymeNet Contributor
Member # 24271

Icon 1 posted      Profile for JunkYardWily     Send New Private Message       Edit/Delete Post   Reply With Quote 
i would say for sure yes (im no dr by the way)

you will have the antibody bands for life so there is no current way to tell, at least with a western blot, if the infection is past or present.

hypotheticly you could of at one time had lyme, beat it off and now something else is causeing you problems though you still have the antiboties for lyme.

for example people who have at one time had mono will have those antibodies for life, doesnt mean they have a current infection of mono.

--------------------
sick since 9-09
igg, 18,23,41 reactive
igm, 41 reactive

Posts: 436 | From Kansas City | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
You got a CDC positive for IgM (which an IDSA doctor would challenge but Dr. C explains is very relevant for chronic active lyme). So, yes, it sure appears that you have your work cut out for you. And, congratulations for having a clearer picture now so that the work can begin.

I'm no expert on what the specific numbers mean but I would say with your symptoms (which you obviously have or you'd not even have done the test) and the test results - that you should be working with a very good LLMD.

Are you all set up with one now? You may now need to get tested now for coinfections.

So that you can read for yourself, Western Blot bands are discussed here:
-------------------

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077

Dr C's Western Blot explanation
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725

Icon 1 posted      Profile for BackinStOlaf     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks Keebler-

Yes I am seeing Dr. M in NYC and I am on day 6 of treatment with Amoxicillin 3,000 mg a day

Have followup in a few weeks.

I don't feel any different since starting treatment.

--------------------
First Symptom 9/09
Multiple docs, negative Labcorp test
LLMD: 1/10
Positive Igenex/CDC test
Treatment 2/10
2/10-8/10 Amox, ceftin, zith, flagyl
Currently: Bicillin, Minocycline, still dealing with severe breathing issues

 -

Posts: 1121 | From New York, New York | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
randibear
Honored Contributor (10K+ posts)
Member # 11290

Icon 1 posted      Profile for randibear     Send New Private Message       Edit/Delete Post   Reply With Quote 
i'd say yep too.
39 plus and 41 plus is a sure sign, at least that's what i've been told.

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
JunkYardWily
LymeNet Contributor
Member # 24271

Icon 1 posted      Profile for JunkYardWily     Send New Private Message       Edit/Delete Post   Reply With Quote 
im sorry i must have misunderstood the ?. i thought you were asking if its possible to have sympotoms of lyme with positive WB. if thats the ? then the answer has to be yes, its possible.

if your asking if thats likely i would or you should persue other posibilities i would say for sure not. you have symptoms plus this WB treat the lyme.

i didnt notice much improvemen trom my treatment either. if there has been much improvement its been VERRRRYYYY gradual.

--------------------
sick since 9-09
igg, 18,23,41 reactive
igm, 41 reactive

Posts: 436 | From Kansas City | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
St.O.

I am so sorry to be the one to break the news to you but you will not likely see substantial improvement for some time. You may get a sense that you are on the right track but this will be a process.

If you take good excellent care of yourself and have good liver support, you may be able to tolerate the protocol very well.

Good luck to you, indeed. Feel healing happen.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
kareamber
LymeNet Contributor
Member # 20110

Icon 1 posted      Profile for kareamber     Send New Private Message       Edit/Delete Post   Reply With Quote 
Looks like Lyme for sure.

--------------------
IgeneX IGG POS 30+ 31++++ 41++
IGM 30+ 31+++ 34IND 41IND 83-93IND
Quest NEG IGG 30 and 41 only

Posts: 538 | From Everywhere | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
timaca
Frequent Contributor (1K+ posts)
Member # 6911

Icon 1 posted      Profile for timaca     Send New Private Message       Edit/Delete Post   Reply With Quote 
Even if you are convinced you have lyme, you could also have other tick borne pathogens, and other reactivated pathogens (like EBV, HHV-6, Cpn, enteroviruses).

I had a WB very similar to yours from Igenex. Some would say I have lyme. Some would say no. But I have lots of doctors convinced that EBV, HHV-6, Cpn and enteroviruses are a problem for me.

Get tested for lots of things. Treat all that look wrong, starting with what looks most obviously wrong.

Best, Timaca

Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005  |  IP: Logged | Report this post to a Moderator
map1131
Frequent Contributor (5K+ posts)
Member # 2022

Icon 1 posted      Profile for map1131     Send New Private Message       Edit/Delete Post   Reply With Quote 
That's a pretty positive test result. Can't look at that and not see the writing on the wall.

Sure you could have several other infections, bacterial, viruses and protozoa going on. Gingivitis isn't going to reflect all those bands.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

Posts: 6448 | From Louisville, Ky | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
merrygirl
Frequent Contributor (1K+ posts)
Member # 12041

Icon 1 posted      Profile for merrygirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
not everything is always Lyme. SOme folks have Lyme blinders on.

It is ALWAYS good to rule out other ilnesses!

But your test is suggestive of lyme for sure (not a doc)

Posts: 3905 | From USA | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
NOPE.

Band 83-93 is the DNA of the Bb.

As stated below.. I am not a doctor!

PS.. ST Olaf asked if it was possible to have these results and NOT have Lyme. I said NO.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95968 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by BackinStOlaf:
I don't feel any different since starting treatment. [/QB]

I never felt any better or worse on amoxy. For me, it was like drinking water.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95968 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

Icon 1 posted      Profile for sutherngrl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lyme is a clinical diagnosis! The test are used to back up that clinical diagnosis.

Some ppl do not herx, some herx immediately, some herx in 2 weeks to 4 weeks. Unfortunately there is no standard for herxing.

Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359

Icon 1 posted      Profile for Lymeorsomething     Send New Private Message       Edit/Delete Post   Reply With Quote 
BackinStOlaf, Dr. B mentions using probenecid when using Amoxy to keep concentrations up. Perhaps you could try this as well...

--------------------
"Whatever can go wrong will go wrong."

Posts: 2062 | From CT | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
You're both right! But testing DOES have its place!! [Smile] It's like a lamp leading the way.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95968 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
lymebytes
Frequent Contributor (1K+ posts)
Member # 11830

Icon 1 posted      Profile for lymebytes   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
That test is very positive and warrants treatment.

You need to be tested for all co-infections as well, now that you know you have Lyme without a doubt, co-infections are common in most of us.

--------------------
www.truthaboutlymedisease.com

Posts: 2003 | From endemic area | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
WildCondor
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
You have Lyme specific bands... [Smile]
IP: Logged | Report this post to a Moderator
Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759

Icon 1 posted      Profile for Hoosiers51     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had an IgM similar to yours, and I am pretty convinced I have Lyme. Also tested positive for babesia duncani and bartonella henselae through non-specialty labs.

Then, when I got the Stony Brook testing done, it showed all the same bands on the IgM that Igenex had shown, PLUS band 23, which was negative on my Ignenex.

I thought it was strange that I had so many of the Lyme-specific bands (including 39) on Igenex, but not 23, so when I saw the Stony Brook, that cleared it up for me...SB came back with 18, 23, 39, 41, 66. I showed 93 on Igenex (not sure if SB tests that one, and don't think they test 31 or 34).

I also had IND's on my IgM where there weren't +'s, and many IND's on my IgG. But anyways, I think yours is probably positive....I had more faith in Igenex once Stony Brook came back with a similar result.

Posts: 4590 | From Midwest | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
bonafidejason
Member
Member # 24472

Icon 1 posted      Profile for bonafidejason   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was so used to being critical of all the test results and doctors opinions that when i got a CDC positive for Lyme, I was still like, "hmm... maybe not"
Being critical is exactly what got me so far. It got me diagnosed when everyone told me it was impossible i had Lyme. But there comes a time when you have to accept a diagnosis and a treatment if you are going to get better. It looks like you have Lyme, and I would get ready for a LOOOONG treatment. Don't expect a rapid recovery, but you will get better, and there are lots of people ready to support you.

Posts: 19 | From Oakland, CA | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by lymebytes:


You need to be tested for all co-infections as well, now that you know you have Lyme without a doubt, co-infections are common in most of us. [/QB]

Yes.

Hoosiers... I sure HOPE Stonybrook checks for the DNA OF THE Bb!!! [Roll Eyes]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95968 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.