posted
MY DR.THINKS I HAVE NEURO LYME.I HAVE HAD VARIOUS NEUROLOGICAL SYMPTOMS FOR ABOUT THREE MOUNTHS SUCH AS TINGLING SENSATIONS IN SCALP AND FACE,TINGLING HANDS AND BURNING FEET.I WAS TAKING DOXICYCLINE FOR 1 MONTH WITH NO RESULTS SO JUST STARTED CEFTIN . HQW LONG SHOULD IT TAKE TO START FEELING BETER?
Posts: 3 | From NEWTOWN SQUARE ,PA | Registered: Feb 2010
| IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Ed that may depend on your dosage. Do you have a LLMD to help you?
Sounds like lyme but you may also have other infections with it that will require treatments as well. I was on doxy for over 2 mths.
and it took care of a lot of my neuro symptoms, but there is still lots of treatment I need.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
posted
Ed...I had the same tingling sensations in my scalp and face and the burning hands and feet. I have neuro lyme as well.
Everyone responds differently to meds and I think it depends on how long you have been sick. I personally saw results within 2 weeks of starting IV antibiotics.
Good luck...hope that helps!
Posts: 114 | From Atlanta, GA | Registered: May 2009
| IP: Logged |
lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
I had ths for years. Sugar and carbs make it worse.
Its like someone took a razor to your feet then poure salt on the wounds and tied it up tight.
IM on 120mg of cymbalta which helps with the pain, adderall too.
Posts: 2905 | From New England | Registered: Sep 2004
| IP: Logged |
posted
I had this for years. Sugar and carbs make it worse.
Mine is the same...pain in my feet and legs gets way worse with sugar and carbs. I can't believe I didn't put it together sooner...
For me it's yeast...not lyme or bart! Since going after the yeast issue, things are getting better.
Posts: 114 | From Atlanta, GA | Registered: May 2009
| IP: Logged |
lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
I cant go after the yeast issue,
when I take anything to kill it I become morbidlly sick and suicidal
Posts: 2905 | From New England | Registered: Sep 2004
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
hmmm, that's probably a die-off herx. have you tried somethign mild like otc candex or something. not nearly as harsh as diflucan.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
posted
Ceftin seems to be a very effective drug. I'm on it right now and had a massive herx, which I'm still feeling somewhat, a few days after starting it. Just a warning, with Neuroborreliosis and Lyme in general you will usually feel worse before feeling better. I had a splitting headache yesterday, likely from all the Bb and co-infections that had taken residence in my brain dying off and releasing floods of toxins.
Be prepared for some pain. I find that retreating to a dark, quiet place with a damp towel on your head helps a bit. Basically though you will have to endure it.
-------------------- Bart and Babesia seropositive Current tx: Rifampin, Biaxin, Bactrim DS, Artemisinin, Resveratrol (japanese knotweed), Red Root, Boneset Posts: 168 | From PA | Registered: Feb 2010
| IP: Logged |
It has decreased neuro. symptoms across the board.
Posts: 376 | From New Jersey | Registered: Jun 2009
| IP: Logged |
Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
I have the burning feet, especially my right one. I have always attributed it to bart.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
| IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Burning feet is a symptom of neuropathy which can be caused by anything that damages the nerves. All of these infections seem to do that. Diabetes does it as well.
I've been infected for decades. It took a quite a long time for the burning feet to go away and they still come back once in awhile.
Terry I'm not a doctor
Posts: 6286 | From Oregon | Registered: Jan 2006
| IP: Logged |
posted
Burning feet has always been a red flag for Bart. You can search history as this has been brought up on the board many times. I believe it was Dr. B that said it was associated with Bart.
Posts: 805 | From Utopia | Registered: Feb 2006
| IP: Logged |
posted
This is neuropathy...it can be from tick born infections. Ask for Neurotin to help with the pain.
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
| IP: Logged |
posted
I did not notice results on doxycycline 200 mg twice/day untill at least 6 wks and from there a slow steady improvement. I think it does better than ceftin at crossing BBB at higher doses but correct me if otherwise. Ceftin will kill blood borne spirochetes quickly and you will notice results more quickly too from what I have heard. Was it TF who said once you've cleared out all the blood borne stuff you can follow up with some cyst clearing Rx like flagyl etc. and finish that job on that microbe.
Beachinit.
-------------------- Ideas not advice. Posts: 448 | From Downeast Maine | Registered: Jul 2009
| IP: Logged |
posted
I had some episodes of one of my toes feeling like it was on fire after contracting and being treated for Lyme. I told several doctors about it and they looked at my like I was nuts. But the good news after seeing several doctors about what I believed could be reemerging/persistent Lyme, I was put on IV rocephin and later oral zitthromax. Guess what, after the antibiotics, the burning disappeared. The zithromax seemed to work the best for taking this away for me. I am again struggling with other symptoms that seemed to remiss when on abx and then reappear when off them for awhile(believe they are due to persistent Lyme disease while all the doctors beg to differ), but the burning sensation seems to be something that was cured and so far has not returned.
Posts: 35 | From Reading, Pennsylvania | Registered: Mar 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic