LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Fellow twitchers - lose the dairy

 - UBBFriend: Email this page to someone!    
Author Topic: Fellow twitchers - lose the dairy
dsiebenh
LymeNet Contributor
Member # 5353

Icon 1 posted      Profile for dsiebenh     Send New Private Message       Edit/Delete Post   Reply With Quote 
I wouldn't believe this if I had not seen it happen to me.

Chronic Lymie, 20+ years, lots of neuro symptoms. My legs have been twitching for almost 20 years, it was originally called Restless Leg Syndrome, before MS and later, Lyme.

On a whim I tried going 2 months gluten- and dairy-free. I resumed gluten and looked for digestive sx, and had none. The next week I resumed dairy, had a little diarrhea but didn't feel there was a definite cause and effect. I resumed eating both gluten and dairy.

Over the next couple of weeks I felt much more inflamed. I also had an intensifying of my leg twitching. Eventually I realized that it might be the dairy. (Duh)

I stopped dairy again 5 days ago, and last night I did not need any rx meds for the legs. When I am off the dairy, it seems magnesium Potassium Aspartate is strong enough to stop the leg twitching. If I am eating dairy, the Magnesium is not strong enough and I also need to take Baclofen to quell the legs.

Looking back, I realize I had the same effects during the 2 months I had quit dairy. I was looking for digestive improvement but did not see any. The real improvement was in reduction of inflammation and quelling the legs.

Give it a try for a couple of weeks - you might be surprised.

Posts: 252 | From NJ USA | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346

Icon 1 posted      Profile for disturbedme   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm glad going dairy free helped your twitching.

I've been dairy free for over 6 years and it hasn't helped my twitching... but maybe my twitching would be worse if I still consumed dairy... who knows.

I think everyone should have a food allergy test done. Most people are allergic to something or other or many things, especially when you have a longterm illness like lyme. And finding out what you're allergic to and stopping eating it, would really, really help.

--------------------
One can never consent to creep when one feels an impulse to soar.
~ Helen Keller

My Lyme Story

Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007  |  IP: Logged | Report this post to a Moderator
f13girl
LymeNet Contributor
Member # 23844

Icon 1 posted      Profile for f13girl     Send New Private Message       Edit/Delete Post   Reply With Quote 
MS recovery diet and most MS diets recommend no gluten, no dairy, no legumes, no yeast, no sugar and very low saturated fat.
Posts: 200 | From New England | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691

Icon 1 posted      Profile for kidsgotlyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Allergy testing WILL NOT show if you have an intolerance to a certain food. I'm talking about the allergy test that is administered by an MD.

They have told me that I nor my daughter are allergic to wheat, but when we go off of it, we feel so much better,

If you are going to get tested, do it some other way than an MD.

I don't think that regular allergy testing can test for a gluten allergy.

--------------------
symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections.

Posts: 1470 | From Tennessee | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
You don't think gluten played a role in your restless legs and twitching?

The dangers of gluten, soy, corn and dairy:

www.dogtorj.com

Click on "Gluten intolerance in Dogs and Cats" ...

Then click on "The Battle of Helms Deep"

very enlightening!

More info here:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/91781

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95444 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
jennyflyer
LymeNet Contributor
Member # 12792

Icon 1 posted      Profile for jennyflyer     Send New Private Message       Edit/Delete Post   Reply With Quote 
The only thing that I've truly seen help my twitching is Magnesium. Once I started taking it consistently, the twitching all but stopped.

--------------------
Jennifer

Posts: 266 | From Ocean County, NJ | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
randibear
Honored Contributor (10K+ posts)
Member # 11290

Icon 1 posted      Profile for randibear     Send New Private Message       Edit/Delete Post   Reply With Quote 
how much mag? my bottle says 250 mg.

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
jennyflyer
LymeNet Contributor
Member # 12792

Icon 1 posted      Profile for jennyflyer     Send New Private Message       Edit/Delete Post   Reply With Quote 
500 mg twice a day. I picked up that Nature's Bounty at CVS when they were have a two for one sale.

I was so skeptical but it's the only thing I've changed over the last 6-8 weeks; the tingling stopped a few weeks ago after dealing with that nonstop for 3 years.

--------------------
Jennifer

Posts: 266 | From Ocean County, NJ | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
jennyflyer
LymeNet Contributor
Member # 12792

Icon 1 posted      Profile for jennyflyer     Send New Private Message       Edit/Delete Post   Reply With Quote 
Twitching, sorry meant to write "the twitching stopped a few weeks ago".

I still have the tingling. The magnesium hasn't helped that.

--------------------
Jennifer

Posts: 266 | From Ocean County, NJ | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
dsiebenh
LymeNet Contributor
Member # 5353

Icon 1 posted      Profile for dsiebenh     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Lymetoo:
You don't think gluten played a role in your restless legs and twitching?

The dangers of gluten, soy, corn and dairy:

www.dogtorj.com

Click on "Gluten intolerance in Dogs and Cats" ...

Then click on "The Battle of Helms Deep"

very enlightening!

More info here:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/91781

I'm not done yet, I will have to revisit Gluten as well. I was looking for digestive issues when I first quit Gluten, not "neuro" issues.

But dairy exhibits a dramatic exacerbation of neuro sx within a couple of days.

Posts: 252 | From NJ USA | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
dsiebenh
LymeNet Contributor
Member # 5353

Icon 1 posted      Profile for dsiebenh     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Lymetoo:
You don't think gluten played a role in your restless legs and twitching?

The dangers of gluten, soy, corn and dairy:

www.dogtorj.com

Click on "Gluten intolerance in Dogs and Cats" ...

Then click on "The Battle of Helms Deep"

very enlightening!

More info here:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/91781

Thanks for the links, the Lymenet post is extensive an scary stuff.

Dave

Posts: 252 | From NJ USA | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.